History of NIH DNA policies

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vacuuum
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History of NIH DNA policies

Post by vacuuum » Tue Jan 20, 2015 9:08 pm

I have one question about the history of the policies regarding DNA privacy the NIH has instituted. Simply, was there a particular study or research breakthrough that was the tipping point for instituting privacy measures?

I just read an ethics paper called "Privacy and the Human Genome Project" by Wiesenthal and Wiener, and it appears everything was coming to a head at the time the policies were created. The combination of cheaper testing, the role of the government, and the countless studies about specific genes appears to be the catalyst for the policies. But, again, if there was any one result or group of results you know of that also spurned the change I would greatly appreciate the help.

Anyone have any leads or know anything about this?

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