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The Fiber Disease

Human Anatomy, Physiology, and Medicine. Anything human!

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Postby RANDY » Sat Dec 30, 2006 1:35 am

DS:

If you are asking and sincere, ask me what you really need to know. I feel that you are not asking in a sincere way and that your phone works.

Does your phone work?

Do you need me to call you if you can not make lond distance phone calls?

How does one have a cable connection and not a phone connection?

If you are tellng the truth, ask me what you need to know.

I can answer tomorrow..I have to go finish a project right now and have wasted much to much time on this infantile site.

Randy
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Postby Marcos » Sat Dec 30, 2006 1:41 am

Randy,

The best medicine has a bitter taste sometimes, but it was wrong for me to play policeman.

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Postby Frank N Stein » Sat Dec 30, 2006 2:02 am

One suggestion that I have is to form a group, to develop a presentation, which includes a good description of the problem, and as much data as possible. I would be willing to request a meeting with an assistant to my Congressman, so long as I felt that I had a good presentation.

Randy impresses me as the type of person who could organize such an effort. Elections are coming up in 08. If the CDC has not produced anything by then, we should be prepared to light a fire under them.
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Postby Frank N Stein » Sat Dec 30, 2006 2:41 am

J Jill wrote: In May of 2004, she was calling for people- asking for 500- to contact her. This was on a related board, now closed.

Reason stated for needing 500 responses? Quote: "It is info for a documentary and possibly...possibly..a script to shop to the studios for a movie of the week...but that is way off..so do not count on it. My brother (Randy's brother) does this type of thing in LA (Los Angeles). So, sometimes things hit and sometimes they don't"

End of quote by Randy
***



Jill, this quote simply tells me that Randy has close contacts in the media and entertainment industries. For a group who needs public exposure as much as we do, I just don't see this as a bad thing.

We are all very sensitive to privacy issues since we have been labeled as delusional by the medical community. Those of us who have this affliction know that it actually does effect our emotional state. Yet neither of these points outweigh the fact that we desperately need public and government exposure as a group of people in dire need of assistance.

If Randy has the contacts, lights, camera, action baby.
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Postby RANDY » Sat Dec 30, 2006 2:52 am

Here is what I want to do.

I am not the best person to make a presentation. We have a doctor that can do this.

Anyways.....We need lots of letters after a name to make a good impression in public but we, without letters after our names, can do all the thinking and planning and grunt work.

That is what I am about, doing the hard work so someone else can take the spotlight. That is who I am. Not the lies being told here.

1) In order to find out what this is we have to prove what it is not. That is the forum we have to play in. I need help with ideas. Some of my ideas are MRSA, AIDS, and a few others.....Citovsky wants agrobacterium, and although an inaccurate test, lyme too. But there are many more tests needed. I need to brain storm on this.

We need blood types, a base line CBC for all involved etc.etc.

I can not play in the field of chemtrails and nano technology. Those are not the players that exist in real life, Not really, not yet.

We have enough problems with looking nuts. This opens about 20 more doors into that when you are dealing with politicians and most middle of the road medical professionals.

We have to prove what it is not in order to prove what it could be. What already known diseases does it mimic? Could it be a mutated version of something that already exists? These are the questions we need to ask and test for, across the board with all involved.


if we reach dead ends with all these tests then and only then can we venture into unknown territory.

If we have a doctor in each state, only one and the web site set up so that the doctor can list themselves then people that THINK they have this can go to this doctor. That saves all that mental anguish we have all gone through.

This also sets up a future model for any future unknown illnesses or syndromes.

If we have a criteria for testing which would include a pysch evaluation, a detailed medical history, photos, samples taken, a set of questions that are not leading and a barage of blood work to exclude what it COULD be then we have a first year base line.

We have no real base line now that is across the board nor do we have just one doctor in each state that can follow a protocol. After all these years..that is sad.

Now I have heard through the grapevine that Mary (MRF) may be following my lead and trying to duplicate what I have been posting and taking about. If that is true I wish she would mention it. Why duplicate when we are on the same side? If she wants to run a race with me, that is childish. I do not care to compete.

She knows what I am doing but she had a sheet of paper that if you wanted to be part of her group you had to promise not to talk to me. She had people sign that paper and that s the truth..my hand to G-d. I am not making this stuff up. That is how childish this has been for the last three years.

I do not care to be part of that I know and you don't game mentality, which rears its ugly head here all the time. This disease moves faster than we can and if you play that game you may be dead before you get the last laugh.

To continue: These doctors can then submit their findings to a central location with an established data base.

That is phase one. Compare what has been collected and evaluate. Scientific research done without a grant. Most people would have to use their insurance.

I started http://thesherwoodforestgroup.com to try and get funding for those without insurance before the Montel free prescriptin thing came out...(I actually wrote him to tell him of this idea about 2 years back...who knows....) but my move to Seattle got cancelled due to sickness in the family as I mentioned before. Therefore my non-profit in Seattle got held up too.

Step two is write an article and get a grant.

Step three is have enough money to do scientific research from a grant.

Right now we are fortunate enough to have Citovsky going for the Agrobacterium grant so he can study one aspect of this disease.

This disease is multi-level. Research on only one level will not find out what this is, I don't think.

But we have to have a logical step one, two and three. I am thirsting for input.


I just can not be out in space looking for things that have a conspiracy swing to them.

That is all.

Thank you for letting me speak my peace.

I just now got word that one of us, who tried to take her life and has been in a state hospital and in jail is being interviewd to represent us for, I am told, but not confirmed, a Psychology Today article.

I am not saying anything bad about this person but I do not feel this is the best representation, the best face of our disease in such a magazine.

I heard but can not confirm that this was set up by the MRF. I hope it is not true. Time will tell.

Again, I am not in competition with anything but this disease. I do not want it to win and populate the planet. We are so far behind in fighting it.

Randy
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Scuze the typos as many of you know I am dyslexic. Gotta jet!
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Postby RANDY » Sat Dec 30, 2006 2:59 am

Marcos,

Thanks..i think?

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Postby Frank N Stein » Sat Dec 30, 2006 3:34 am

All sound like very good ideas Randy.

I will not be back until Tue. Hopefully we can all smoke the peace pipe and work toward a common goal in the new year.

Happy New Year to all.

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Postby Doc44 » Sat Dec 30, 2006 3:54 am

juju wrote:Why does every one feel threatened by Randy?
Her points are quite valid. :?


HUH......what turnip truck did you just fall off of?

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Postby Linn » Sat Dec 30, 2006 3:57 am

I support Randy
You can add my name to your plan of action.
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Postby Barz » Sat Dec 30, 2006 5:50 am

Okay, Well this disease has proven to carry with it a form of paranoia.

May it be from the denial of medical treatment or the CDC and other derms response to what is going on. Randy has made it clear to me basically that she wants everyone's phone number. Why cant you just pm ds. Why do you think this person is lying? I have never been to your website. I have been warned of the games you play. Call me paranoid day and night, but you will not get my contact info, Missy!!!
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Postby RANDY » Sat Dec 30, 2006 6:27 am

Barz,

In order for a group to become activist they have to talk to one another and not just by e-mail. Be real.

As far as games, I play zero games. The people that want this site to be thought of as a joke are the ones playing games..they do this with the endlesss posts that have nothing to do with our disease and the make believe videos etc and the paranoid accusations. .

I say to the people reading this site. Pay very careful attention how these people operate and it will be very clear to you who the enemy within actually is. Sheeps clothing people. Either that are they are just too dumb to get it. I think it is sheeps clothing.

Anyone with a mind can see what I am trying to do and the lies that the other "side" if there is such a thing, is trying to do. every tie I post a grass roots effort they spam away in a fit of terror that someone may read what I have to say. Proteths too much people!

Be open, look and see who the tricksters are. They will never give their name or number for fear of what? They make up the fear so they do not have to reveal their true motivation and that is to discredit this site and those sick with this disease.

They say they know what is going on but will not tell. Now does that sound like a real sick person with this disease or someone working to discredit it?

Open your eyes people! It is so obvious!

Also I can PM but being dyslexic makes it hard for my to type and I can get more stuff done on the phone. Serious stuff. And I prefer the phone when discussing this disease. It makes it more personal.

But you are paranoid. Firghtened,paranoid people never can be actiivist. They can never get anything done. Their mind gets in their own way and they become inert. Nothing to fear but fear.Ya know?

Thanks LINN! Love ya!

Randy
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Postby RANDY » Sat Dec 30, 2006 6:35 am

Bet you aint a Doc-poser.

Doc44 wrote:
juju wrote:Why does every one feel threatened by Randy?
Her points are quite valid. :?


HUH......what turnip truck did you just fall off of?

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