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The Fiber Disease

Human Anatomy, Physiology, and Medicine. Anything human!

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Postby tamtam » Mon Sep 18, 2006 7:30 pm

Earlier posted/ brought to front



NEW SURVEILLANCE DATABASE
“UNIDENTIFIED DERMATOSIS SYNDROME”

Abstract: There have been reports to state and local public health agencies from residents
throughout Georgia of thread-like skin parasites in their skin, and a related set of symptoms.
In response, the Unidentified Dermatosis Syndrome (UDS) Surveillance Database was
developed and is maintained by the Chemical Hazards Program, Environmental Health Section,
Georgia Division of Public Health. It is intended to build and maintain self-reported symptom
surveillance capacity.
Definition
The Chemical Hazards Program defines “Unidentified Dermatosis Syndrome” as reports of tiny
bugs that look like black specks, or thread-like parasites in the skin; or of "something" biting,
stinging, or crawling in the skin, and an accompanying set of symptoms including itching, visible
sores, and fatigue.
Hypothesis
The Chemical Hazards Program will examine whether:
1. parasites may be causing the symptoms, and
2. individuals may share hypersensitivity to toxins produced by certain fungi/molds present
in soil causing specific neurotoxic effects.
CURRENT ACTIVITIES: PHASE I
Surveillance Database and Initial Survey
Beginning March 1, 2006 we will administer a survey to collect data from individuals reporting
specific symptoms of UDS. Chemical Hazards Program staff is contacting Georgia residents
following referral from various state, district, and local public health agencies, health care
providers, other professionals, and individuals for voluntary participation in the survey.
Beginning September 1, 2006 Chemical Hazards Program staff will analyze the results of the
survey and decide which health education activities, networking strategies, referral resources,
environmental sampling, or medical interventions will best meet the needs of the survey
participants. Reports generated will contain grouped information only, and will not contain any
personal identifiers such as name or address.
The results of the data analyses are expected to be available to the public in late fall 2006. The
UDS surveillance database will remain in place and continue to gather information about cases in
Georgia.
Survey
The UDS survey requests basic demographic information: age, gender, race/ethnicity and
education level. Questions about their home environment and daily activities, including length of
residency, soil conditions, outdoor hobbies, employment history, and allergy history are
included. Respondents will be asked in detail about their symptoms, doctor visits, current
medications, health status of other family members and pets, and attempted and/or successful
treatments and symptom relief.
Page 2
Data Management and Entry
CHP staff will collect, manage, enter, and analyze all data from completed surveys. Survey data
will be entered into an Access database and cross checked for validity, reliability, and accuracy
by random verification of entered data and other accepted methods.
Data Analyses
Access 2000 database software will be used for data analyses. Survey questions will be analyzed
and compared using analytic techniques appropriate for community survey design. Univariate
analyses will generate descriptive statistics to characterize data from the survey. Bivariate and
multivariate analyses will assess whether trends and relationships exist among survey responses.
ArcView 9.0 software will be used to map/illustrate any trends and relationships.
If trends and relationships are found to exist and are determined to potentially be a result of
parasites and/or exposure to specific fungi present in soil, medical intervention and/or soil
sampling recommendations will provided to appropriate agencies. For more information, to refer
individuals, or to be considered for participation in the survey, please contact:

Jane M. Perry, Director
Chemical Hazards Program
Georgia Division of Public Health
Atlanta, Georgia
(404) 657-6534

http://www.google.com/search?q=cache:Mv ... us/pdfs/ha


"My advise is to unite, create a legal base and to seek litigation"

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Postby Barz » Mon Sep 18, 2006 8:43 pm

Well it seems to me the ONLY answers we WILL get is if we start litigation. What are you waiting for. Nobody is going to come to the front to do it for us. Lets go guys. We need some answers.
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Postby Skytroll » Mon Sep 18, 2006 10:07 pm

Okay, Barz,

I am ready. "No Fear" folks. If we cannot get a law team, which I am sure we can.....

Lets start listing some off. Mr. Ho might know of some. If not, we will have to go fetch.

We got the list.

And I have the Plan they are using, so far.

Now, to get the folks we need. mmmmmmmmm

Should we go federal or local, state?

Any law folks here?

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Postby Barz » Mon Sep 18, 2006 11:24 pm

This I feel may be tough. As we trust nobody. It must be someone who has background in issues similar. I am thinking Erin Brockovitch type Or something. Someone who is not afraid to go after the big dogs. And I suppose not afraid to face all that comes along with it. If this is the big cover up we believe it to be, then I assume all roads will point to nowhere. We will be in for a big fight. Especially since we basically only have hypothesis. However, If tam says this is what it is and we can prove it, we need to start moving because it will take tens of years!!!!
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Postby SarahConnor » Tue Sep 19, 2006 1:34 am

I think it is terriorism, whatelse would it be?
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Postby Skytroll » Tue Sep 19, 2006 2:35 am

Right under our noses.

Agroterrorism
Enviroterrorism
Evo Devo Terrorism
Ecoterrorism
Aeroterrorism
Pharmaterrorism

Has to be a lot of money involved.

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Postby RANDY » Tue Sep 19, 2006 4:33 am

Does anyone have it this bad? You will not be able to do anything legal until you figure out what it is and this site goes in circle and balmes everything on heaven and earth and made in labs.

Stop circling the globe and stick with one main theory and then prove it otherwise you 've got nothing.

Randy
Attachments
Image11.gif
Does anyone have it this bad?
During the End Times, Good will battle Evil. Where do you stand?
http://unknownskindisease.com
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Postby maf » Tue Sep 19, 2006 6:16 am

yep... you are not the only one... litigation?... what is the going price for healthy skin?...
Attachments
IMG_2477_crop.JPG
under the biofilm - protruding nodule (larvae or eggsack) is just one of many
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Postby befour » Tue Sep 19, 2006 6:49 am

Dear Tam,

I am all for following your advise.....but excuse me for being so ignorant,

We don't know who we would be bringing charges against....do we?

We don't know what this disease really is or how we got it....do we?

We haven't been able to get any doctor to admit that we actually have a disease...have we?

How do we proceed without any facts to prove our case?

sincerely,

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Postby Barz » Tue Sep 19, 2006 12:25 pm

Sorry Randy, We as sufferers are never going to prove it. You know that. You have had this condition for a very long time. What have you come up with? What we are going to do is prove that they do know what this is and that they are pawning us off with whatever dx we get from a physician. Which as you know is NOT what this is. Tam says that he has informed the ECDC the CDC etc. Southcity I know has documentation. They are giving us the run around. As you know they are just biding their time. They want to put us off for as long as possible. Whomever MAF is you need to get these pictures to the news. You need to exploit these photos. Have you received any help? what was your dx. who have you contacted? Randy, the picture you posted. Is that you? Has that person been treated by a physician? Lets get the REAL attention we need. USE THESE PHOTOS TO YOUR ADVANTAGE.
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Postby Sabrina » Tue Sep 19, 2006 1:41 pm

befour wrote:How do we proceed without any facts to prove our case?

sincerely,

befour


One fact is that many of us can perform on demand for anyone that cares to look. Isn't the debris that expels evidence? :?

If I can show doctors and nurses what this is and exactly how it comes out of my skin. I can surly do the same for any judge. :idea:

http://www.brockovich.com/contact/general.htm

Ok, it’s a start. Perhaps she can point us in the right direction if nothing else. Who would like the honors of making contact with this respected law professional?

Also, I think that Cilla had some formal training in law, at least that is what I gathered from her posts and not just the ones from this thread. We can review her suggestions and see if we get any more ideas on how to proceed. Given the conditions under our current administration here in the states, we may have to appeal to the international community for assistance, please keep this in mind.

Once again, I purpose that we contact the ACLU and see if we can get some names of law firms that may be of assistance. We have a clinical condition that we are being refused treatment for. Is this not discrimination?


To Sarah Boine,

Sarah, have you ever in your history of researching the fiber disease EVER sat down with a real live victim in person and watched this stuff expel from anyone’s skin?

I have been able to produce this effect with more doctors than I care to count. I did it for the director of my health department so samples could be sent to the CDC. I never received a DP diagnosis nor was I ever referred to a mental health care professional, EVER!

Many other victims have the knowledge to be able to do this as well.

MY CHALLENGE TO YOU, IF YOU ARE NOT TOO SCARED TO BECOME INFECTED, IS TO MEET WITH JUST ONE SEASONED VICTIM AND WATCH THIS MANIFESTATION WITH YOUR OWN EYES. CAN YOU HANDLE THAT SARRAH? ARE YOU WILLING TO GIVE US A FAIR CHANCE AND HELP US FIGHT FOR SOME TREATMENT? DO YOU HAVE ANY HUMANITY IN YOU?

I AM WILLING TO ARRANGE AN APPOINTMENT FOR YOU WITH A LEGITIMATE FIBER DISEASE VICTIM. TEN MINUITES OF YOUR TIME IS NOT TOO MUCH TO ASK FOR SUCH A SERIOUS MATTER, DON’T YOU AGREE?

WHY NOT SEE IT FOR YOURSELF SARAH? I DARE YOU!!!!!!

I want to believe that you are a compassionate person. And, I also want to believe that you would do anything with in your power to prevent yourself from causing more harm and devastating your professional career within the process.



Dear Skytroll,

Your hard work does not go unnoticed. Thanks.

Dear Randy,

I see your point, but we must and will have to find a way around our obstacles. Can you please tell us what your law people said? Perhaps we can start there.

Dear Tamtam,

Thank you for your perseverance and for being so patient. 8)


We won’t be stuck much longer guys, I can feel the change for it is inevitable and they know it too. We have truth, justice and God on our side, we can’t loose!!!!! :wink:


Peace,
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Postby Skytroll » Tue Sep 19, 2006 2:30 pm

The following is an e-mail sent to Ms. Brockovich,

Hello,

I and many others in the USA and in other countries are suffering from a condition that attacks our skin and we believe connective tissue. We have lesions, fibers in the lesions, some are black, blue, clear, white and red fibers that are very painful when on edge of skin surface.

I have suffered for over 15 years with this. We cannot get doctors to examine this at a deeper level.
We have stomach, intestinal problems, and the lesions leave scars that are disfiguring. We are working with a Dr. Randy Wymore at Oklahoma State.
The MRF has registered us, and I believe there are over 5,000 people who have this, but there may be many more, but, there has been a split there and we are working with Dr. Wymore directly.

This disease is disabling. It begins with an overall body itch, then lesions appear which are very painful and take a long time to heal. We have lumps, nodules, which often have to be removed, but, no investigative studies are done on the removed nodules. We have Vertigo, ear, eye problems and swellings in ankles, knees and hips. Often our muscles give out on us.

There is more, and more can be found at these web sites.
http://www.cherokeechas.com/
Pictures and discussion of what we have are seen here:
about1958-3876.html

The Fiber Disease or Morgellons is what it is being called.
We have much discussion here on what this could be, but, we do not have definite answers and/or treatment.
We are told by doctors that we are DOP or that what we have is delusional parasitosis, and are considered to have psychological problems, but, this is not so. This is very real.
The fibers seem to be the catalyst and we have investigated many kinds of sources for this disease.
We have many theories etc, but we cannot get the medical community to investigate this.
We believe that the end stage is ALS. Many have committed suicide due to the DOP diagnosis and the failure of doctors to take this seriously. We believe more will come down with this.
The CDC has started a task force on this, but, we have heard nothing from this and Mr. Dan Rutz who is media person at CDC is corresponding with a few of us.
Please contact me and I can get you more information.
We need to have this brought out into the open.
Many of us live lives of quiet desperation.

Please contact me here.
xxxxx
Thankyou,
xxxxxx

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