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The Fiber Disease

Human Anatomy, Physiology, and Medicine. Anything human!

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Postby Sabrina » Sat Jun 17, 2006 2:42 am

Ms. /////,
Your email addressed to Dr. Zerhouni and dated 5/30/06 was forwarded to
the Centers for Disease Control and Prevention (CDC) for response. CDC's policy for all correspondence received through the mail or faxed/emailed is answered by postal mail. Would you please email me your mailing address for us to address your correspondence.

Thank you,
Rhonda Jones
CDC Controlled Correspondence Specialist
Centers for Disease Control and Prevention
1600 Clifton Road, D14
Atlanta, Georgia 30333


Any comments? :?


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Postby RANDY » Sat Jun 17, 2006 7:45 am

Not sure what he can do. The best thing is to contact your Senator and tell him to contact the local and state health departments and to tell him to contact Wymore.

Wymore is willing to talk to ALL senators right now.
I am writing Allen and telling him to contact Wymore.

Everyone in Virginia should do that since he is aware. I took this lead from what they did with Feinstein in CA.

You can tell your Senator that Feinstein and Allen of Va are making the CDC and NIH aware and that they should jump on that bandwagon and then follow up.

I am not sure how they do it in the UK. Sorry.

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Postby Linn » Sat Jun 17, 2006 12:20 pm

RANDY wrote:Not sure what he can do. The best thing is to contact your Senator and tell him to contact the local and state health departments and to tell him to contact Wymore.

Wymore is willing to talk to ALL senators right now.
I am writing Allen and telling him to contact Wymore.

Everyone in Virginia should do that since he is aware. I took this lead from what they did with Feinstein in CA.

You can tell your Senator that Feinstein and Allen of Va are making the CDC and NIH aware and that they should jump on that bandwagon and then follow up.

I am not sure how they do it in the UK. Sorry.

Randy


I wrote MA Senators Kennedy and Kerry.

only Kennedy's answered w/ a bot message. :roll:

Apparently this is not an important issue to them.
Mr. Wymore may wish to correspond w/ them, since I firmly believe these two senators will make things move if they get involved.

PS:

I was wondering if any one is donating to the foundation at all. since Dr. Wymore commented that only he and one other colleuge are basicaly supporting the research by themselves. Thats not right. :? That would be a shame if we dont help out a bit. even if every one who ever posted here gave $1
that would be a lot.

any ways I do not have a lot but I have the address and will be mailing a modest donation. Can any one match it? Please. :) (Its tax deductable)
"How far you go in life depends on your being tender with the young, compassionate with the aged, sympathetic with the striving and tolerant of the weak and strong. Because someday in life you will have been all of these".

~ George washington Carver
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Postby Doobie » Sat Jun 17, 2006 2:36 pm

http://www.des.emory.edu/mfp/Kuhnsnap.html Crises are triggered when scientists acknowledge the discovered counterinstance as an anomaly in fit between the existing theory and nature. All crises are resolved in one of three ways. Normal science can prove capable of handling the crisis-provoking problem, in which case all returns to "normal." Alternatively, the problem resists and is labeled, but it is perceived as resulting from the field's failure to possess the necessary tools with which to solve it, and so scientists set it aside for a future generation with more developed tools. In a few cases, a new candidate for paradigm emerges, and a battle over its acceptance ensues - these are the paradigm wars.
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Morgellonswatch style

Postby Sabrina » Sat Jun 17, 2006 11:08 pm

Sabrina wrote:
CDC's policy for all correspondence received through the mail or faxed/emailed is answered by postal mail. Would you please email me your mailing address for us to address your correspondence.

Thank you,
Rhonda Jones
CDC Controlled Correspondence Specialist
Centers for Disease Control and Prevention
1600 Clifton Road, D14
Atlanta, Georgia 30333


Peace,
Sabrina


Dear London,

So happy to see that your back! Glad everything is well with you too. Thank you so much for contacting the CDC. I thought this was very important, so to save you from retyping and everything, I have posted this important information here for you to all of us.

One question I do have is how did you get the CDC to break their policy? And several times no less!!! :?

http://lymebusters.proboards39.com/inde ... 1150395396


Thought some might be interested in seeing my correspondence with the CDC.....If you don't like what I wrote, well too bad. It's too late.....My fist letter I will share was sent on May 28th 2006: sorry to appear acidic, but they are messing with my life and I don't play that.
______________________________________

05/ 28/ 2006 This is not a joke. I am a Morgellons victim. I had faith that the CDC was already in action to help us with this mysterious illness by some new Task force they had ALREADY?? formed. Is this true, there is a task force formed?
If so, since you are a public, government entity, inform me of whom is on this TASK Force?
If you can not release the names, please provide their title? Why is there no mention on your website of Morgellons disease?
Are you working on this disease or not? Is the CDC lying to the American People- us, the Taxpayers?
I anxiously await your answer to these vital questions. I have provided both an email address and my physical address as well as my home ohone number. There should be no problem at all trying to reach me with your answers.

Sincerely,
XXXXX______________________________

Their blanket reply, devoid of any real answers:


Dear XXXXXX,

We apologize for the delay in answering your E-mail. Thank you for your inquiry regarding the condition some refer to as “Morgellons.” CDC is presently bringing together medical experts from several scientific specialties in a working group to help us understand this pattern of illness or syndrome. Our aim is to gather information on people reporting this condition to see if they share common traits, experiences, or anything that might have put them at risk for these symptoms. We hope to learn enough about the condition so we can offer useful advice for control or treatment, something that is not possible now because too little is known. Since CDC has no clinical center or hospital to evaluate or treat patients, we urge persons who believe they are suffering from this condition or who have distressing symptoms to seek evaluation and medical care from their local health care providers. If symptoms do not improve, we suggest that such persons seek evaluation at the closest teaching or university hospital-affiliated clinic. We hope this advice is helpful and that you feel better soon.

(there ws no signature; guess they were a lil scared, eh?)

_____________________________________

So, you know I can't let them do me like this, right? so I immediately shot them a quick line......here you go.......:



To: CDC
June 15th, 2006

Thank you in getting back with me on this issue. I, as have numerous others, have sought out medical attention. Most physicians are labeling us DOP, or Delusions of Parasitosis, and this diagnosis is even being given without a full examination, and some, without any type of examination at all.

I would like to know who comprises this Task force to study this disease and when the first meeting is scheduled to convene. If needed, I would be more than happy to assist with this task force and have no problem transporting myself to these meetings.

Currently, I am seeking advice, LEGAL ADVICE.

I sincerely, appreciate your organization getting back in touch with me.
I would highly suggest your "established team of experts" seek onformation
from the the Dept. of Agriculture.

Thank you for allowing me this suggestion. I do so hope you will not hesitate to contact me if I can be of anymore assistance. My offer to assist this special task force is genuine.

Sincerely,

XXXXXXX

__________________________________

Now, who is hiding what for whom? Hmmm.......

They know good and well what this is .....I KNOW THEY DO


PS Hi Dan!!!


AND reply #2

Hey, they just sent me anonther letter via email today.......here you go........
ps: Man, they said they could not use my assistance.m Hell no, they would like my arse to disappear.....and it looks like we will be waiting a while.......
___________________________________

Dear Ms. XXXX,



Thank you for your kind offer of assistance. The composition of the internal CDC Morgellons Working Group has not yet been finalized. The first meeting of the working group will likely occur before the end of June, 2006, but it will not be open to the public.


Reply #8

First of all....I'd like to say that I did not post this in anyway to interfere with Betsy's great letter......

I wrote my short letter ( ad lib really) on May 28th- back when we were all discussing the CDC and so on and so forth.....Did 'nt even know I was going to send them a letter that moment, but it just kind of happened.....I was actually looking for something on their site and just saw that small email box saying "contact" at the bottom......

So impulsively, I did.....I did not even know Julie? nor Dan Rutz name at the time I sent that....it was later on that evening or the next when Gregg and Carrie posted to me their info......

and I do believe, this was even a day or so before flowerchild ( love that name) posted her CDC /Senator thread........

It was just out of the blue I got those two emails back from them yesterday....and wanted to share....that's it.....I hope I did not step on anyones toes here by sharing the info.....plus my letter was kind of crappy anyway......but did you not just love the second one (not the pink one...hah! but the one above where I offered my assistance.......to be on there task force.....

hehe they wrote me back within a matter of 45 minutes I think.....I could just see them now reading my letter.....Oh, Dear god no......hahaha.....


Leigh Ann, I will go do that tonight......In fact I would love to read that......I never wrote to you or to alex thread b/c I just do not like surveys nor giving my information out...never know , you know? But, I then saw your sweet family on that video and knew you were

An A okay person.....I hope that did not come out wrong....No disrespect to you or to Alex and also a big thank you two for all the work that you have done on our behalf.....

I guess, deep down, I just hate surveys, am lazy and did not want to fill anymore paperwork out......I was just following tamTam around and became obsessed with

his riddles....that's all I did was search and search and search.........Lord, I did more work this past year than I did in my first 4 of college........
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Postby Sabrina » Sun Jun 18, 2006 5:32 am

Here you go Randy.



Drug Warriors Push Eye-Eating Fungus

On April 16, the New York Times ran a full-page ad from contact lens producer Bausch and Lomb, announcing the recall of its “ReNu with MoistureLoc” rewetting solution, and warning the 30 million American wearers of soft contact lenses about Fusarium keratitis.

That same week, the House of Representatives passed a provision to a bill requiring that the very same fungus be sprayed in “a major drug-producing country,” such as Colombia. The bill’s sponsor was Rep. Mark Souder (R-Ind.) and its most vocal supporter was his colleague Dan Burton (R-Ind.), who has been promoting the fungus for almost a decade as key to winning the drug war.


http://www.inthesetimes.com/site/main/article/2657/

Peace,
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good find

Postby RANDY » Sun Jun 18, 2006 7:38 am

That is a darn good find. Did you ask Wymore about it?

Can they test for it is always my first question.

If there is a test for it?..Then I am there.

Can you investigate more? Great find.

I need to study it more but it sure hits the target for me along with the Eastman Kodak pollution of crop killers.

What would happen if they mixed them together?

What was the other one..I have to go back a few posts to find out.

Good find! I just do not know where to go with it from here. Anyone with any ideas?

Makes the most sense to me..instead of a governmental plot to de-populate.

Randy
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Postby RANDY » Sun Jun 18, 2006 9:00 am

http://www.sciconnect.com/jokes.htm

Ya just gotta check these out. For a little brevity.
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Re: good find

Postby Sabrina » Mon Jun 19, 2006 12:29 am

RANDY wrote:That is a darn good find. Did you ask Wymore about it?

Can they test for it is always my first question?

If there is a test for it?..Then I am there.

Can you investigate more? Great find.

Randy


But Randy, I do not have eye eating fungus! :D

Don’t get me wrong, I feel for the people that do as that condition looks pretty serious to say the least. Why research something that this could not be? :?

No, I have never spoken directly to Dr. Wymore. I was always discouraged to do so as I was always told it took away valuable research time. Since his open letter I have felt much more comfortable with the idea of talking to him and some day I may get the opportunity to do that, but for now, I’m good. Not much to say really since I do not believe I even have Morgellons. :wink: I do hope his letter to health care practitioners helps a lot of people. This would have helped me tremendously in the beginning! It’s awesome for him to do that!!! 8)

How do you think London got the CDC to break their rules with the e-mail and all? :idea:

Where are you Tamtam? :(

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ok

Postby RANDY » Mon Jun 19, 2006 10:30 am

I know..but we do have flesh eating fungus.

I have been studying T-Cells and proteins..and I am starting to think that our T-Cell count may be a marker. I am not sure.

I am still going for the pesticide theory of mine. Makes the most sense...Spray in Mexico and Columbia and it travels by air or insect to Florida, Texas and California where it mutates and is carried by humans to other humans.

Makes the most sense to me. Since Lyme starts up North not down South. It masks itself as Sarcoid and Lyme...cell wall deficient bacteria, non- caseating granulomas...T-Cells......Interesing little buggers..has to do with my original Cytokine theory. It all ties in. I just don't know how quite yet.

There seems to be thousands on autoimmune things out there. This is just one of the many of them.

We gotta block some protein from expressing itself...but I have no idea how to even look for a protein. But I am sure the cure is blocking the expression of a protein caused by the mutated DNA being copied (RNA)..and then the protein being expressed causing the fibers to fill our bodies and cause all of grief..like sticky proteins..I am sure our fibers are an expressed protein of some sort.

I swear I need a scientist for a beau.

It is a condition or syndrome not a disease...not yet.

We need more people like Wymore..volunteers working on this. We need Bill Gates' foundation to help Wymore investiate this.

Still don't know where Tammie boy got his samples..he never did answer that one did he?

And Cilla...immune from it so much as not to write anyone... but tells us to. I never take advice from those that do not do what they tell others to do. My basic rule of thumb.

I guess I was 100% correct all along.

Apologies anyone? I am here to accept them!

It is all coming out now. The turht of who is telling the turht and who is a BS-er always does.

Gonna read some more of my science books and magazines.

Randy

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Postby Cilla » Mon Jun 19, 2006 12:05 pm

Hi All,

I do not know how you have the time to wonder about my, or anyone's, motivation in trying to be of some help to you.

Can you not see that many people, not doctors or scientists, just ordinary people such as I, would be concerned?

If you do feel that you have a condition that is not being treated, or is being misdiagnosed, then, surely, you would wish to try and do something about that.

If you feel that, currently, many doctors are not yet aware of this apparent condition, who could you contact, in order to increase awareness?

I must say, I am very impressed by the response received by Randy from Mr Allen!

It also appears to me, from the CDC responses, that they, too are taking this issue very seriously, so well done to Sabrina and London for writing to them!

I also like the fact that this organisation would seem willing to include the views of those who may have this apparent condition in its initial deliberations, although the first meeting of the task force is not to be open to the public.

I think that things are moving on somewhat, and this is largely due to the effort made by you!

It may turn out that there is not a new condition, and that you may have something else, I do not know.

I see that Sabrina, for instance, said that she does not even think she has Morgellons disease.

It could well be that this is all the result of global warming and increased use of pesticide on agricultural animals, causing insects to migrate to humans, and to behave in strange new ways.

There would seem to be a rise in tinea infections also, so maybe these two phenomena have intertwined, causing symptoms in people.

These are the sorts of issues the CDC task force can sort out.

If you are in any way worried that some sort of scientific experiment has added to any of this, maybe for some individuals, maybe not for all, though, then, once again, you could raise this possibility with the authorities (only if you want to). I have no earthly idea if this has happened, or is even possible, but, if I had an apparent condition of the nature outlined supra, I would mention what has been claimed, apparently by a scientist, to the authorities, in a brief, to the point, and overall polite and non-accusatory little note.

This is one of the benefits of residing in a democracy, in that we can, without fear, ask about something that concerns us, if we have a legal interest in doing so.
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Postby Cilla » Mon Jun 19, 2006 12:23 pm

Hi Randy,

I apologise for suggesting that anyone write, in a polite and non-accusatory fashion, to the authorities charged with the overall management of biosafety in laboratories permitted to carry out experimentation at containment level 3 or above.

I recant, despite an apparent scientist stating on this site that a stray target from such an experiment would seem to have been released, and is the cause of this apparent clinical condition.

I repent, despite the legislation that demands a priori assessment of certain types of experimental research and reporting of all incidents of an adverse nature to the authorities in question.

It could well be that the letters already sent by you to your Senators etc. will, in tandem with the results of the CDC specialist taskforce, result in a higher degree of knowledge among doctors generally re the new ways insects would seem to be behaving in 'untropical' areas, and the general increase in tinea.

This is all to the good!
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