The Fiber Disease

[in_the_uk]

Yeah, but tested for what - MRF tested some fibers with Fourier Transform Infrared Spectroscopy, which is pretty specific, and they just said "tentativly identified as cellulose." Which eliminates polyester, but not cotton, or tissue paper.

John, forgive me, I'm being a bit lazy, but did that quote actually come from the MRF webpage or did it come from the morgellonswatch.blogspot page. I should go and scour the mrf page I know but I thought that you may know off the top of your head.

Helen

[Linn]

John the links are in this thread

and were you referring to the tests on fibers
done on the four Cal Bay area woman?

[in_the_uk]

What will really get things taken seriously is some statistical studies. You know how Lyme was discovered - unusual groupings of childhood arthritis. A correlation was found between symptoms and locations, which then led to the ticks and bb.

A doctor is not going to look for an unknown pathogen based on just one case. Nor are they going to do it based on "I've heard of lots of people on the internet who say they have similar symptoms". There's no hard statistics. Doctors need cold hard numbers. They also need numbers that can be verified.

John, the statistics are on their way, we have only been working on the leaflet for 1 week and of course we cannot be full time. Lynne is doing statistics and maybe we need to give her some assistance.

With regard to the possible theories, or "overview" each person suffering from morgellons has a different perspective and as their is no official perspective and we are all trying to work our own out then a leaflet that has come from a disparate group of people should represent their opinions. There is no official theory.

Personnally I was hoping for some kind of chart to represent the statisitics, a picture paints a 1,000 words.

Thanks for your input.

Helen

[Linn]

What will really get things taken seriously is some statistical studies. You know how Lyme was discovered - unusual groupings of childhood arthritis. A correlation was found between symptoms and locations, which then led to the ticks and bb.

ya know John I have previously said that,
does any one read what i write?
and you wonder why i get silly.

[John Kern]

It's from the MRF site. Here's how to search a site for a particular word:

http://google.com/search?q=cellulose+site:morgellons.org

- John

[Linn]

Oh no Lynne, I thought before you were reprimanding London for posting the photo of herself - the wild woman of Borneo with all those fibres coming out of her hear - and I was commenting that as I have seen years of teaching take their toll then it probably is quite a good likeness to London! Sounds like there were some crossed wires.

ya, what grade did she teach?

God bless teachers!!

[John Kern]

John the links are in this thread

and were you referring to the tests on fibers
done on the four Cal Bay area woman?

No, I was just talking about the tests mentioned on morgellons.org. I've not heard of the other tests you mentioned. Do you have a link to that?

And this is a 125 page thread - not that I'm complaining, but how can I find the link to the statistics?

I know there are limited resources - but any statistics need to be made public, so you can show them to people.

- John

[John Kern]

With regard to the possible theories, or "overview" each person suffering from morgellons has a different perspective and as their is no official perspective and we are all trying to work our own out then a leaflet that has come from a disparate group of people should represent their opinions. There is no official theory.

I appreciate that, and I know the leaflet is the result of much work. But do you see what I'm saying - Doctors are narrow minded, you can't just blow their minds open by splashing seven wildly different new to science theories on them. It's not going to help - and in fact is much more likely to have them think you are a bit off your trolley.

- John

[in_the_uk]

Lynne, don't know what grades relate to in the uk. In fact even in the uk it takes me all my time to work out what relates to the system they had in place when I was at school. I just remember that you did your "o"s at the end of 5th year.

Helen

[in_the_uk]

It's from the MRF site. Here's how to search a site for a particular word:

Thanks, I suppose now they know which ball park to be in then they can pin it down and make a more specific label. How long should that take?

Helen

[John Kern]

It's from the MRF site. Here's how to search a site for a particular word:

Thanks, I suppose now they know which ball park to be in then they can pin it down and make a more specific label. How long should that take?

Helen

The problem is, if it's cellulose, you probably can't track down much more than that. Cellulose is a simple organic molecule that is in many things.

- John

[in_the_uk]

I appreciate that, and I know the leaflet is the result of much work. But do you see what I'm saying - Doctors are narrow minded, you can't just blow their minds open by splashing seven wildly different new to science theories on them. It's not going to help - and in fact is much more likely to have them think you are a bit off your trolley.

Thanks. I think that we need to discuss it amongst the group that are responsible, namely Skytroll and Lynne and myself. Certainly I agree with you about the statistics so maybe we should give Lynne a hand to hurry her task along and put a nice little graphic in.

Also, when the website is up - next few days or so - it will make it easier because there will be room for everything that we want to say.

Helen