Human Anatomy, Physiology, and Medicine. Anything human!
THANK YOU TamTam and Cilla for your replies and the information -
TamTam - It doesn't look very encouraging for me, does it? Would it make any sense for me to see an ID doctor if there is no effective treatment for this disease?
Right now I am taking Bactrim & Doryx for infection, but I really never get any better, the antibiotics just keep me from getting worse. I also have been taking garlic tablets, vitamin c and green tea tablets. I don't know if they help or not, but at this point, they can't hurt. Of course, nothing has diminished the infestation on/in my head, it is a constant battle (to keep from loosing what's left of my mind.)
Guess I will just try to stay on some sort of antibiotics, as lomg as my dr. will prescribe them.
TamTam, thank you so much for trying to help me/us, I sincerely appreciate all of your research efforts. Plrase keep the info coming!
Operating systems are at least 10 year ahead.
Non disclosed top science may have at least 25 years.
If a calamity occurs or the target has been model for biological warfare you will never hear about it.
Pest control is the equivalent of disease control in humans.
If momentum of economy relates to population density than
disease control must be part of military strategy.
Economy is extention of warfare during peace, they say!
If You can control disease, You can inflate or reduce growth models.
Today the big public bonanza is bioinformatics and e.g bio systematic.
A new type race towards supremacy.
The second WW may turn out to have been an interlude.
All was around and studied.
Top scientist of Germany went to the U.S
We exist out of cell and cell can be programmed: also in the long run(...)
Apoptosis = programmed cell death!
To control and regulate are the strongest parameters.
A recent study relates cancer to infection with bacteria and geografical location. Time span 1954 up to now.
What did 1954 provide in relation to the cancer gulf?
If You think that what is made public represents cutting edge(...)
1961 was public quorum sensing.
If e.g 1980 yields a calamity than 1970 would yield a firm base.
Concepts and calamities can be repeated and I think 2000 represents one.
You do not suffer from the same strain I think but from a reinfection or relapse after a trigger.
When did you recognize the fibers first?
Dear Mrs Befour,
The best therapy a regular G.P could prescribe is I suggest Itraconazole.
I think if You would combine this with essential oil like mint oil,
You could have succes.
To alternate is the art, according an old tropical medic
(in relation to trypanosoma)
e.g topical application of:
coppersulfate/ mint oil/ t tree oil / pinus pinaster oil/ and e.g econazole nitrate or micanozole nitrate.
True recommendation is mint oil because it seems to trigger cell lysis.
tamtam, hello hope you are well
mexico and the latin community already is visiting see here
company / org: Uninet S.a. De C.v.
isp : Network Information Center Mexico
online status: offline
number of visits: 14
pages viewed most recent visit: 6
total pages viewed all visits: 16
last visit duration: single event [s.e.]
total duration all visits: 07m 14s
first measurement: January 5, 2006 7:59:24 PM
last measurement: January 7, 2006 10:33:31 AM
operating system: Windows XP
browser: IE 6.0
resolution: 1280 x 1024 pixels
IP address: 220.127.116.11
"First they ignore you...
Then they laugh at you...
Then they fight you...
Then you win." - Mahatma Gandhi
This is HUge. Very very interesting the TIMING concerning the release of this story.. TamTam-- this is EXACTLY what I meant be saying that the timing is Great presently with hopes of public release of this story... timing is everything and quite frankly I am shocked after reading this story and beginning to understand just how big this news is relating to what we suffer from.. Thanks to ORION.. Here' s a snippit...
"Honest doctors and scientists who tried to treat or research Lyme disease according to ethical principles have been viciously persecuted by government-backed organisations in the US, Europe and elsewhere. Many specialists in the US were threatened with loss of their license or had anonymous, false allegations sent to the medical board, which tied them up in mountains of paperwork and legal fees...some were forced out of medicine or even driven to suicide.
Instead, medical disinfo agents, most of whom have a background in military/biowarfare units, such as Dr Allen Steere, Mark Klempner, Philip Baker, Edward McSweegan, David Dennis, Alan Barbour etc were enabled to assume top positions in Lyme research , CDC, NIH etc from where they issued false information , covering up the true seriousness and chronic nature of the disease, and comdemned untold numbers to a living hell."
full story can be found here http://rense.com/general69/lyme.htm
"First they ignore you...
Then they laugh at you...
Then they fight you...
Then you win." - Mahatma Gandhi
Your reply to my last post was an answer to my prayers because I have begun to loose hope and am becoming increasingly depressed. Thank you so much!
(I apologize in advance to the other forum members who believe that I should correspond via e-mail to TamTam. As I have stated before, I hope that in telling my symtoms, I might be able to help other suffers.)
My disease began in the fall of 2000, with lesions on the left side of my face around my cheekbone, starting at my ear. At night while I was lying in bed, I could feel "things" crawling under the skin on my face. The lesions eventually spread the entire length of my cheekbone down beside my nose, to my lip.
When I began to have lesions on the right side of my face as well, I began to realize that they all were connected somehow, like a spiderweb. That is when I really became aware of the strange fibers, I had been so preoccupied with the horrible, oozing sores on my face, that is all I could see.
Every lesion had the fibers coming out of it and there was a trail of fibers from one lesion to another. I always knew when I was going to get a new one because I would feel an intense stinging sensation.
After trying every remedy I could think of I found that if I could remove the fibers the lesion would stop growing. When I began removing the fibers is when I discovered the "black" things, the wads of fibers under the skin, the sticky fluid, strange red worm things and on and on.
After several years of operating on myself, I thought I might have had it under control. But it had been silently moving into my scalp all along. I noticed that I seemed to be shedding on everything and my hair just didn't feel or look the same. About a year ago I began to have the lesions on my head and the loss of most of my hair.
I have stopped getting new lesions on my face, with one exception, on my forehead. This one causes me the most pain of all, because it is connected to my eyes and nose, and it will never heal.
I tried to make this as short as possible and only focus on the progress of the disease. I hope that I have answered your questions and please know that I am eternally grateful to you for your help. I will be glad to answer any other questions that you may have.
This article might be very interesting to you -
Carl T. Hall, Chronicle Science Writer
Thursday, June 21, 2001
Even though biological weapons are banned, military planners are actively searching out new ways to bring biotechnology to the battlefield.
A new scientific report, commissioned by the Army, was issued yesterday by a panel of experts. It highlights an extraordinary range of military "opportunities" in biotech, ideas that many experts said would be developed whether the Pentagon wants them or not.
"It's clear that biotech is going to change the way we fight wars, and it's also clear we have to get there first before the others get there," said study co-author Mauro Ferrari, a professor of internal medicine and biomedical engineering at Ohio State University.
The list of possibilities reads like an inventory of props for a spy thriller set sometime around 2025, which also happened to be the "planning horizon" for the National Research Council's 16-member Board on Army Science and Technology, authors of the new report.
Among the ideas:
-- Bioengineered tracking agents soldiers would swallow before going into the field, which could help the Army follow troop movements and maybe allow sensor-equipped snipers to distinguish friend from foe.
-- Nonilluminating paints to make military vehicles invisible to radar.
-- Wrist-top biosensors to guard against germ warfare, combined perhaps with vaccines that could be developed rapidly in the field and "functional food" rations laced with edible vaccines.
-- Armor as flexible as skin, tough as an abalone shell and enhanced with "living characteristics," such as the ability to heal itself when torn.
Even more far-out possibilities fall under the general heading of biology- based "performance enhancement" for soldiers, including brain implants, real- time monitoring of gene expression and performance-enhancing drugs.
Some items on the list raise ethical problems, which were not addressed in the report, titled "Opportunities in Biotechnology for Future Army Applications." Just what circumstances might warrant tracking a soldier's DNA, for example, were not spelled out in any detail.
Instead, authors of the new study identified five "high-priority" areas where the military was told it should focus research: "self-replicating systems for wound healing," small-scale vaccine production, rugged computer data-storage devices, "shock therapeutics" and genetically tuned vaccines.
Robert Love, staff director for the panel, said the military had no choice but to explore all sorts of new ways to support troops in the field, citing such possibilities as bioengineered field rations designed for easy digestion.
Biosensors ingested by soldiers, for example, represent "a very important idea" for tracking troops heading into harm's way, he said. "The digital soldier already carries a lot of electronic equipment," he said. "This is a new dimension of intelligence on the battlefield."
But the panel steered away from speculating as to which gadgets might actually work and which might be better left on the drawing board.
The main point, said panel chairman Michael Ladisch, a professor and director of a biotech research lab at Purdue University, is that the military needs to take this stuff seriously -- even if some of it does seem outlandish now.
"There are lots of different ways this could develop, and a lot of it is going to develop anyhow," he said during a phone interview. "The Army really needs to keep on top of things."
Right away, he said, that means bolstering the military's ability to evaluate biotechnology. The idea is to equip the Pentagon with the expertise to determine which research projects are important to the country's defenses, and of those, which can be left up to private industry and which need Pentagon grants or technical help to bring to fruition.
Meetings to go over those details are planned with military brass later this year, Ladisch said, after the Army, which is the lead service branch for biological defense, has had a chance to digest the new report's findings.
E-mail Carl T. Hall at email@example.com.
Page A - 5
URL: http://sfgate.com/cgi-bin/article.cgi?f ... 158957.DTL
©2006 San Francisco Chronicle
Last edited by FiberSymptoms on Sat Dec 02, 2006 10:52 pm, edited 1 time in total.
Hi All. And can I just say that my heart goes out to all those suffering. I truly hope you find some peace soon.
Ok, I'm based in the UK and have been trying to find the identity of the 'bug' that has been driving me crazy for around 4 years. I am not suggesting that the cause of my frustration is attributable to the findings being made in this thread and would wish that anyone who identifies with my experiences keep an open mind until they are closer to the truth. Hope that makes sense.
So just to make myself clear again: I AM NOT attributing my experiences to Morgellon's, Lyme's disease or anything else right now since I do not have enough information as of yet.
My reasons for posting: I've been searching for answers for a couple of years and was beginning to doubt I'd ever find any explanation that matched my experiences quite closely AND carried some scientific weight.
There are some very gifted and tenacious people who have contributed to this thread. I hope I may contribute something useful at some stage, right now I was hoping for feedback from anyone that has an opinion.
Ok, me: I've lived in the UK all my life and just holiday around Europe.
I've never visited anywhere exotic as such. I wouldnt say I'm an outdoor kind of person.
The sensations I would feel while in bed at night soon started while I was working at my pc or just watching tv.
During the day the sensations can start at my ankles and seem to work their way up my body.
Thanks to all who have contributed to this most interesting of threads.
Last edited by ukguy on Thu Apr 13, 2006 10:01 am, edited 4 times in total.
Do not apologise for your post being longer, and more detailed. People are naturally entitled to privacy where their medical data is concerned, but they also must voluntarily give a clear account of their presenting complaint, and of their past medical history, if they are to have any hope of receiving the best advice and guidance with respect to the type of medical specialist that they should consult, or (from scientific experts such as Tam tam), the specific medications that they should ask their doctor to consider prescribing.
I felt very concerned for you when I saw the photograph of your lesion that you posted quite recently, because it looked very angry, inflamed and (by its colour), possibly infected.
You do not have to answer the following questions, but they might help you to clarify the important issues within your own mind. I know how difficult this can be when you feel desperate and unwell, but you will get through this.
What is your doctor's diagnosis, and is this how the lesion looked before you commenced the prescribed systemic antibiotic therapy? Was a swab perhaps taken from it, to ascertain culture (of any microorganisms) and their sensitivity (to specific antibiotics)? Has your doctor prescribed any regimen of topical treatment? E.g., with what have you to clean it, are there any creams or lotions to be applied, and has any kind of dressing been recommended? Does the lesion look any better now that you are on the antibiotics? If it is still troubling you, perhaps you should go back to the doctor, and ask if he or she would prescribe additional treatment, such as the antifungal medication (or similar) and the cream mentioned by Tam tam.
These measures will all help to address the bacteriological and the fungal possibilities, and it is crucial to keep any open wounds very clean, so that secondary infections do not arise.
Not everyone who has open lesions per se has the fiber disease. Many possibilities exist, which is why a doctor should be consulted, and should be re-consulted if the wounds or lesions do not fully heal, even if they show some improvement. Many possibilities exist to explain why a wound or lesion does not heal, or why a person is suffering multiple instances of these breaking out. Sometimes, onward referral to a specialist is required.
In the case of the fiber disease, it would seem that the current medical specialist (Dr Schwartz), believes, with good authority, that the problem is partially bacteriological, sometimes also fungal, but also helminthic and parasitical. Therefore, if it is the fiber disease that you have, (as opposed to a whole plethora of other conditions, which only a doctor could diagnose, after a full examination), how can this be cured unless the latter two elements of the diagnostic equation are taken into account and competently treated?
I am sure that Dr Schwartz stated, in an earlier post, that this condition can be treated and cured with his regimen or protocol, which he clearly outlined. Patients can consult him, I believe, or they can ask their doctors to do so at their request. It is true that the latter professionals would only consider doing so when they have exhausted other possible diagnoses, which is quite reasonable, as the problem may be something else.
But there must come a point where the reasonable thing to do is to seek Dr Schwartz's help and advice, or to refer the patient to a parasitologist or helminthologist.
This is particularly so if the patient's clinical history and presenting clinical features would tie in with a possibly parasitical problem. Perhaps specific laboratory tests could be undertaken, e.g. to detect the presence of helminths, or of antibodies to helminthic infestation, (occasionally the latter can be detectable in the patient's venous blood samples).
I think I read that Dr Schwartz was recently at the stage of trying to get the helminths, which are apparently exiting from the affected patients to whom he has prescribed anthelmintics, precisely identified in a laboratory. I do not know if this great doctor has been given this actual information as yet. What I do know is, if anthelmintics result in the exodus of many worms, then they indeed must be a big part of the fiber disease problem.
What I additionally know is, if people with the fiber disease also experience feelings of being bitten, stinging sensations, and of insects crawling on them, and if these pathological phenomena all cease when prescribed the medication within the Schwartz protocol that lethally targets the functioning at the neuro-muscular junctions of arthropods, then these, too must be a big part of the fiber disease problem.
How much more evidence does a person need? I think that this disease should be re-named Schwartz Syndrome forthwith, and that scientific papers should be disseminated throughout the professional literature as a matter of urgency. Once registered health care professionals have a solid blueprint to work to, and to prescribe from, they will do so. Believe it or not, most of them are basically altruistic, and went into the profession with the most noble of goals, to help people, and to fight suffering and disease.
New, or orphan, diseases spring up from time to time. I think that we have to be pragmatic here, and treat those suffering sooner rather than later. Their immediate environments should be attended to also.
In one sense, where this all started is rather academic. It may have been carelessness in an experimental lab, it may not. It would not do any harm for the authorities to be much more proactive in tightening up safety and reporting protocols when dangerous microrganisms, or those that might become dangerous when cloned, are used. Such rigour should extend to the care and treatment of any mammals used, (in related pharmacological experiments, e.g.), and to the manner in which the animals' waste products are handled and safely disposed of, (with no dangerous particles being allowed to become airborne, e.g.). There would perhaps be a need to educate all staff, including those that might empty the litter trays, in any new safety protocols that might be deemed prudent.
However it all began, the important thing is to treat people and to get them well. I feel this particularly strongly because of what Dr Schwartz said in his post about loss of eyesight being a possibility, although this can be precluded with the precription of fluconazole. Where is the sense in anyone waiting any longer?
Hi Uk Guy,
I am sorry that you have been left suffering, and unsure of what to do, especially after the doctors you consulted mentioned delusional parasitosis. As you have indicated a lack of travel to exotic parts in your post, you obviously understand why they would think of this, although they would have been interested in your earlier proximity to farmland and the animals therein.
This is obviously because, hitherto, it was virtually impossible for UK residents, (unless they holidayed in far flung exotic locales), to have insects of the arthropod class not only living on, but breeding on them. There were the odd exceptions, e.g. cases of ophthalmic myiasis, or scalp myiasis to be found in some individuals who worked very closely with farm animals. The literature describes such rare cases as usually involving someone like a shepherd in a remote area with poor access to washing facilities, and thus with poor personal hygiene. Alternatively, patients who are lying moribund and helpless may pick up such infestation and infection because they are immunocompromised, if other factors within the environment are present. Another possibility is described in a similar condition that can afflict avid horse lovers, (the type of person who is working with horses, or who spends a very great deal of their time with them). These are all rare, and the signs and symptoms with which you presented would not quite fit the text book description. If you appeared clean, tidy, with ostensibly good health and fuctioning immune system, the doctor would find it difficult to make the pieces fit. Your descriptions of the white fibres having movement might make them think of a fungal involvement, but they might not be comfortable with the idea that the activities of the bugs intensified next to electricity (or artificial light). The jumping of the insects would perhaps be worrying for them to classify, especially if you could hear this with such acuity at night in the sheets, especially when you had already had a room treated after finding a bed bug on your chest. What would really be difficult for them is the description of something insect like moving and jumping inside your external auditory canal, (I don't think you really mean the inner ear, as this has a distinct anatomical meaning), and the possible implications of the white skin 'flakes' would probably elude them. Although the phenomenon of the transfer of itching to others is documented in writings on the fiber disease, it's not so common in the professional literature generally. This actually shows you how powerful a hold the published research based literature has on health care professionals. Even if they are themselves sitting there scratching in your presence they are more likely to believe the bona fide literature above all else, to the exclusion of all else, no matter the cost. This is why I truly believe that there will be a sea change if and only when someone with the vision and acumen of Dr Schwartz publishes scientific papers in the relevant clinical journals. Proof would be provided in his account of the abnormalities detected in the various laboratory specimens sent off from his patients, and (with the express consent of those involved), in photographs of lesions before and after his treatment.
Then, everyone will be interested, as when Legionnaires Disease first hit the medical press, and when the association between Helicobacter pylori and gastric ulcers was proven.
Meanwhile, what are you going to do, especially now that your wife feels that something is also biting her? Your wife may not have, and may never get, the full range of the clinical features that you are complaining of. There may need to be a genetic susceptibility before a person gets this, but getting the odd bite is not very nice, and even thinking about it can make you itchy. However, thought, by itself, cannot make the phenomena you have found and photographed appear. If these appear very similar to those photographs taken by other sufferers with the fiber disease, such as some of those who contribute to this site, then something would appear to be going on.
Could I ask some questions, which you of course do not need to answer, either wholly or in part. You could answer whatever points you feel comfortable with by sending me a personal reply. Please do not include your real name, or information that might identify another, including the health care professionals you have consulted. I am not criticising anyone concerned for mentioning delusional parasitosis, because this new condition, (if this is what you have), has not effectively been brought to their attention yet.
1. Where (approximately) in the UK do you live? By this I only mean, is it in a big city, or a semi-rural area?
2. Which kinds of medical practitioners have you consulted (generally, no actual names of individuals or hospitals, please)? E.g., g.p., or specialists with an interest in infectious disease, or tropical disease.
3. What did the bed bug you found look like? Did you feel better, at least for a while, once the bed room had been 'treated'? How exactly was the room (and ? bed) treated?
4. What treatment did you get for the 'scabies'? Did this help a little, at least initially, or temporarily?
5. What treatment, systemically or topically, have you been prescribed for your ear infections? Has anything helped, even if only a little?
6. What do you think the nature of the jumping insects might be? Do you think they are a bit like fleas?
7. What do you think the nature of the white fibres, which move, might be? If not by electrostatic movement, could they possess something akin to the nervous system of a parasite?
8. Why, in your opinion, are you so itchy at night?
9. Have you read other literature on the fiber disease that postulates that the primary form of this affliction is, at first sight, like a flake of dried skin?
10. Have you considered consulting a doctor who practises Traditional Chinese Medicine? They might have remedies that would help with the nocturnal skin itching, which seems to be predominantly within areas covered in body hair. Some writers on this subject have advocated the topical application of vaseline, or even Vick, to the itching parts of the skin, as this cuts off some of the oxygen to the 'borg'. Vick might work because it contains camphor, in addition to vaseline. Tiger balm would, by this rationale, work even better. The kind you get from T.C.M. centres is really good, and they have shampoos and soaps that are effective, with good fungicidal action also, all of which you can buy over the counter. Ask to see the doctor, though, because he or she might have more specific remedies to help you, especially with the shedding skin flakes. These centres are present in the big cities in the UK, hence my earlier question.
I hope that this helps, and that you, and the others suffering, obtain the medical help that you so sorely need sooner rather than later.
Sorry for my posts being so long, but the idea of innocent people, and particularly children, suffering like this for no good reason is really beginning to get under my skin (unfortunate choice of phrase!).
One last question, UK Guy. Others have mentioned the overwhelming 'brain fog' that develops as, possibly, the worst part of this condition. You have not really mentioned this, although I appreciate that the infernal itching and sleep disturbance is bad enough.
The 'brain fog' afflicts sufferers so badly mentally that it is almost impossible to function, although it lifts when all visible signs of the 'borg' have been removed, only to descend again when the rogue 'hairs' and 'fibers' grow in again, (which does not seem to take long). This seems to point to a physiological cause, maybe an immune or foreign body response to these elements of the parasite, or the 'fog' may also be the effects of larval or helminthic secretions. (If the latter is a main cause, does the brain fog lift markedly once a course of anthelmintic medication has been taken?).
UK Guy, I would like to help you, and any other person suffering in any way that I can. I am not a scientist, though, so I would advise you all to read everything Cliff Mickelson has to say on this disease, and the writings posted by Tam tam and Dr Schwartz. I do not know if Dr Schwartz would communicate with a medical practitioner from the UK, though. Does anybody else?
Many thanks for taking the time to reply, it means alot to me.
I'm reading through my notes of previous posts and of course your own
and will respond with more information very soon. If you (or I) believe
that any of the information is helpful to the thread then we can post here.
Many thanks Cilla.
Who is online
Users browsing this forum: No registered users and 0 guests