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The Fiber Disease

Human Anatomy, Physiology, and Medicine. Anything human!

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Postby Sabrina » Thu Nov 24, 2005 8:06 am

Happy Thanksgiving to all! :D

I am so proud of everyone who has contributed to this thread and wish to thank all of you. This is more than I could ever have hoped for and would like to recognize Dr. Martin, Cliff Mickelson, and the people who run this board.

I honestly don’t get all of this scientific stuff but I’ve been reading right along and love to see brilliant minds at work. And you guys are brilliant!

Things are already changing. I was officially diagnosed last week with Morgellons by my local Health Department and they are treating me.

My child is still being refused treatment and all doctors involved seem to be content with this decision despite physical evidence of the Morgellons fibers. He has no chance for professionally monitored treatment until more is known about what this is. My child’s future may be in the hands of one of you reading this thread.

So, be skeptical, but be open minded. Think critically, this is mandatory. It’s real, don’t waist anymore time.

I offer my assistance to any researcher in any way I can.

Peace,
Sabrina
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Fiber Disease

Postby AMom » Thu Nov 24, 2005 9:35 am

My TRUE story is too long to tell.. But, I have been a member of Morgellons for Three years now.. first dx was that of a Bacterial infect. then Myiasis, Next; Lyme positive, I was also dx with DOP after a derm dr. did a biopsy on one of my many gross volcanic lesions?
(do dr's do biopsies on delusions? NOT!)
I was on abx for 14 months, it took 7 until I came out of the fog. But ALWAYS I have had the fibers come!
I have kept a journal and they have a cycle to them, in which it is that time of the month now!
(This is NOT hormonal, I had a complete hysterectomy 10 yrs ago)
Seven days After the full moon is usually blooming time for many of us.
I have seen Exactly what others have seen in my environment, and others.. exactly what Tamtam describes- an organism that is in an anorobic state, floating, some look lie a boomarang, and others look like a floating seahorse, but thin as a feather, clear/white.
We have studied this from all angles, gone round & round as to what this may be?
I have taken a break from this for a while now, but too many other things have now come up for me to have to get busy again finding help to identify this "Unknown"
I was dx with Lupus six months ago.. and have been on Plaquenil, and it's helping me out alot, so I am more active than I had been.
Dr's do NOT want to look for the cause of this autoimmune syndrome, and I have been to the finest universities here in my state.
I am here to say to anyone that does want to investigate this disableing disease, that I am a perfect candidate for your investigation-s.
I have documented this from the very beginning.. with photo's of lesions, video tape, ALL my lab results, Dr's notes, AND.. I have tape recorded ALL my dr's visit's.. that includes Infectious disease Dr's, and Rheumatologist, at two of the biggest Universities here in the mid-west!
I also have jars filled with samples of what I swab out of all mucous membranes that have grown fungus..
(NOT ONE of the Drs I saw cared to know what those fibes were, or what kind of fungus was in the jars!)
QUOTE; from last Rheum Dr.--
"What is it you want us to do for you?"
me; "To tell me what this organism is that is in me causing my immune system to work over time?"

Dr; "We are not concerned with that--We are Clinicians, that is all--think of it like this, your body is a house on fire, and we are the firemen, we put out the fire, and IF you want to know what caused the fire, then you have to go somewhere else to ge those answers"

Me; But I have been to your Infectious disease dept. and they told me that YOU would be able to look for the answer's..

Dr; I don't beleive they would tell you that...
............................
And so this wasn't the first time this scenerio was played out to me, so I just shut up, got my script for Plaquenil, and will have to wait again for someone who really cares, and wants to know what this Mystery is.
THEN.. last week I saw a Dr. I haven't seen in many years, and after telling him and showing him all my papers, he tells me he has been sick, and shows me the lesions on his chest.. now I am examining him, and there's no doubt he has this too! His lesion looks exactly like what so many of ours did/do!
I directed him to the Morgellons web-site...
I have spent years researching this.. and the possibilities of what this is, and where it came from are endless.. I have heard and read it all. from Aliens to Zoonosis, A Parasitical, Bacterial, Fungus, Virus?????
Now.. I have spent time trying to understand the cells that this organism has disruppted, causing the Auto immune syndrome that EVERYONE around me now has.
Trying Real hard to seperate the fibers and what my body is doing now, because no one will identify the organism causing the immune system to keep fighting...
Like triggering the MICROGLIA CELLS to wake up, and excrete the poisons in me.. and destroying so many other cells.
I guess in conclusion--
This is a VERY REAL thing going on.. and it's EVERYWHERE!!!!
I have lost Everything because of this.."Unknown" like so many others have too!
Parts of my brain, a hypertrophied heart, Kidney- bladder infections- vision loss, rapid tooth decay, My house, car, any ability to work, and all trust in those I believed in to help, and didn't!
Sooo if there is anyone who has the time, and money and wants to KNOW & SEE the truth, well here I am!
I triple Dog dare you!
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Postby bugga » Thu Nov 24, 2005 1:59 pm

To TamTam
I live in Hawaii and have been reading most of the tales(for want of better term) from everyone. My family has been afflicted with these parasites. My brother has been battling them for about two months or so. Others are showing signs. They don't live here in Hawaii. These are real, there is no doubt in my mind. You have stated that Lepidoptera is one of the dominant gene inputs. The agriculture industry here uses a spider to combat nematodes, called a box spider. At certain times of the year, they are everywhere.Just out of curiosity, I went online to read about this pest control
.Seems that Lepidoptera is a common agent. Do you know anything of this.?
The website that I found some perhaps pertinant info in is "Blackwell's Synergy."
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Postby London » Fri Nov 25, 2005 1:10 pm

TamTam,

I recently noticed you mentioned Bonnie. Have you had the chance

to meet her? They say she is something else-hyperkinetic if you will.

Too bad they would not listen to her years ago. Her discovery sug-

gest that the ability to create intricate social networks for mutual ben-

efit was not one of the crowning flourishes in the invention of life.

It was the first.

And Tam Tam one last thing, Harveyi? what do you think about

him? He seems to light up a room when the right kind of people (that's

people just like him ) enter the room., does he not?

Well Tam Tam, I thought maybe you would like to read something more

Social for a change. Repetion can get stale. I kmow. Oh guess who

I saw thru the glass the other day? Yes, it was tiny little C.Ellen. She

looked as though she was smiling at me with those bright red lips and jet

black eyes. I had to laugh-I had never seen her wearing red lipstick.

Have a nice day.

Sincerely, London
London
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Postby Cilla » Fri Nov 25, 2005 5:45 pm

Hi DJ,
It is not a question of agreeing to disagree about whether delusional parasitosis is, or is not, a diagnosis of exclusion, and which incidentally can only properly be made by those qualified and skilled in that particular art. These are matters of health care law, not of fanciful conjecture or of individual beliefs or opinion. I actually do not hold a personal opinion one way or another, but I do know what the law underpinning the clinical dianostic practice of delusional parasitosis states, viz. that it is always a diagnosis of exclusion. Therefore it is incorrect to say that a person who believes themselves to be suffering from a parasitical infestation or infection should primarily consult a psychiatrist in order to exclude mental illness. A whole range of physical conditions, which would include, (but not be restricted to), actually having parasites, must be considered by the expert physician in the relevant field first of all. This is important, because some diagnoses require urgent specialist medical treatment. A person may have a serious medical condition which manifests itself by producing intense pruritis (itching), which the patient may wrongly attribute to parasites, e.g. The same applies to those patients who have intense feelings of formication, (an impression of bugs crawling on or under their skin). This may be due to a medical condition, or to some kinds of prescribed medication, or to some types of illicit drug use. Or, the patient may actually be quite right!
It is only after all of the relevant medical conditions have been ruled out that the physician, (a dermatologist, e.g.), would consider a possible psychiatric referral. If the psychiatrist, after performing a psychiatric assessment, does diagnose delusional parasitosis, he or she may prescribe the drugs you mentioned, viz. pimozide or risperidone, or one which you did not, olanzapine.
If I state that something is an important medico-legal principle, that is exactly what I mean, in that its observance is crucial and axiomatic to good clinical practice and medical law.
Definitive diagnosis of any condition cannot take place on line, or in the absence of an examination and assessment by a qualified health care professional. If people have clinical features that would be strongly indicative of this particular condition then they should obviously be advised to consult (in the first instance) not a psychiatrist, but a parasitologist, a specialist dermatologist, or a physician who has professionally published on it and its consequent treatment. They could most certainly make use of Tamtam's most informative thoughts and request that the doctor prescribe one of the drugs mentioned in this, or in any other recent protocol devised by, e.g. Dr Schwartz.
I hope that you do, as part of your future scientific career, persuade other scientists in your faculty to analyse the constituent parts of the fibers under question. I dearly hope that many scientific university faculties undertake to do this. safely and effectively, and that curative drug treatments will arise from this.
However, I do not see how you could offer to examine patients, or come to any assessment of their condition. You are not a medical doctor, and so could have no real understanding of the range of possible differential diagnoses to which I have alluded above. Do you think that any reputable university would allow you to engage in research for which you are manifestly not qualified? Analysing and examining samples from patients is one thing, but examining patients, and pronouncing your assessment of their physical or mental condition, is quite another. The medico-legal fallout from this could be apocalyptic.
I am not saying that research is not needed, but any proposal involving examining sick patients would surely have to include input from interested physicians if it is to have any hope of being both ethically and legally approved by the appropriate committee.
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Postby DJ » Fri Nov 25, 2005 7:17 pm

_at_ Cilla:

I thought at first you were half-way intelligent, but you seem to be so dense that any point I try to make, clarify, then RE-MAKE, completely flies over your head, while you insist on arguing with me about matters that are completely non-argumentative in nature. I can't believe
you would waste that much time writing a response to my previous posts that one: you obviously had not grasped the concept of its meaning in the first place, and two: you are responding, agreeing with points I made previously as a means of counter-argument!!!! If I had known that this was your mentality, I would have never wasted my time in the first place.

And where the hell did I say I was going to make some kind of diagnosis of a patient's mental or physical illness if they came to see me? I am also completely qualified to take samples and make observations, and I never said I was going to assess someone's mental condition!!! This is crazy.

If anyone else would like to talk this over with me, feel free to ask questions, but not Cilla because it seems to be a waste of time. I am here to offer my help. But, if you are unable to listen to reason and understand my motives because of some kind of defensive behavior or, I don't know what, then I can't do anything to try and help you.
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Research Article

Postby Been there » Sat Nov 26, 2005 1:30 am

Stealth Proteins: In Silico Identification of a Novel Protein Family Rendering Bacterial Pathogens Invisible to Host Immune Defense
Peter Sperisen1 , Christoph D. Schmid1, Philipp Bucher1,2*, Olav Zilian2

http://compbiol.plosjournals.org/perlse ... %2E0010063

I believe this is the proper forum for this considering the current topic.
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Postby Skytroll » Sat Nov 26, 2005 1:41 am

squirrel pox, fox pox,

s
Last edited by Skytroll on Sat Dec 16, 2006 7:41 am, edited 1 time in total.
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Is this possibly Cynoacterium?

Postby Been there » Sat Nov 26, 2005 12:35 pm

tamtam wrote:Maybe Ruth has a fine eye for things.

quorum sensing- micro cystis- goo

White fluffy floating material that constitutes congregation of a type cyanobacterium on the surface of water. It will unite in plaques and bloom
Attachments
IMG_1208crop.jpg
From an experiment done in May, forgotten, burned by a cigar I hope it isnt cynoacterium. Please pardon the photo quality. I seem to have infested both eyes getting close to it. If any chance, I will use a ring light and macro lens. It will require movin
(449.82 KiB) Downloaded 135 times
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Morgellons - Fiber Disease & credibility

Postby FiberSymptoms » Mon Nov 28, 2005 6:00 am

-------------------------------
Last edited by FiberSymptoms on Sat Dec 02, 2006 10:57 pm, edited 1 time in total.
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Synthetic Biology?

Postby Sabrina » Mon Nov 28, 2005 10:21 am

Bacteria Can Take Pictures of Themselves

By PAUL ELIAS, AP Biotechnology Writer
Wed Nov 23, 3:40 PM ET

http://news.yahoo.com/s/ap/20051123/ap_ ... erial_film

SAN FRANCISCO - The notorious E. coli bug made its film debut Wednesday. That's when researchers at the University of California, San Francisco and the University of Texas announced in the journal Nature that they had created photographs of themselves by programming the bacteria — best known for outbreaks of food poisoning — to make pictures in much the same way Kodak film produces images.

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It's the latest advance in "synthetic biology," a disputed research movement launched largely by engineers and chemists bent on genetically manipulating microscopic bugs into acting like tiny machines, creating new, powerful and inexpensive ways to make drugs, plastics and even alternatives to fossil fuel.

The field seeks to go beyond traditional genetic engineering feats where a single gene is spliced into bacteria and other cells to manufacture drugs. Synthetic biologists are trying to create complex systems that function as logically and reliably as computers.

Mainstream biologists, however, scoff that biology — life itself — is too unpredictable and prone to genetic mutation to understand, let alone tame and turn into miniature factories.

Bioethicists, meanwhile, fret that synthetic biologists are attempting to create new living creatures and are inventing technology that can readily be used by terrorists.

Still, a growing number of engineers are jumping into the nascent field, whose chief goals include breaking down microbes and other living things into smaller components and reassembling those parts into useful machines.

"There is kind of a hacker culture behind all of this," said Chris Voigt, a University of California, San Francisco researcher who, at 29, was the senior author on the bacteria-as-film paper in Nature.

Voigt and colleagues took from algae light-sensitive genes that emit black compounds and spliced them into a batch of E. coli bacteria. The organisms were then spread on a petri dish that resembles a cookie sheet and placed in an incubator. A high-powered projector cast photographic images of the researchers through a hole on top of the incubator, exposing some of the bacteria to light.

The result: Ghostly images like traditional black-and-white photographs of the researchers responsible for the invention, at a resolution Voigt said was about 100 megapixels, or 10 times sharper than high-end printers.

The work, though, isn't intended for commercial markets.

"They aren't going to put Kodak out of business any time soon," said Massachusetts Institute of Technology researcher Drew Endy, a leading synthetic biologist.

Instead, the creation will be used as a sensor to start and stop more complex genetic engineering experiments. The idea is to create a genetically engineered cell that lays dormant until a laser is shined on it, prompting it into action.

Such an accomplishment would add to the growing success of a field that is making strides around the world, in such projects as:

_Scientists in Israel made the world's smallest computer by engineering DNA to carry out mathematical functions.

_J. Craig Venter, the entrepreneurial scientist who mapped the human genome and launched the Rockville, Md.-based research institute named after himself, is attempting to create novel organisms that can produce alternative fuels.

_With a $42.6 million grant that originated at the Bill and Melinda Gates Foundation, Berkeley researchers are engineering the E. coli bug with genes from the wormwood plant and yeast to create a new malaria drug.

Even as they wrestle with scientific hurdles like controlling genetic mutations, thorny ethical issues are cropping up.

It's cheap and easy to buy individual genes online. They cost about $1 each, down from the $18 apiece charged just a few years ago. Researchers last year created a synthetic polio virus by simply stitching together these mail-order genes.

National security experts and even synthetic biologists themselves are concerned that rogue scientists could create new biological weapons — like deadly viruses that lack natural foes. They also worry about innocent mistakes: organisms that could potentially create havoc if allowed to reproduce outside the lab.

Researchers are casting about for ways to self-police the field before it really takes off. Leaders in the field have organized a second national conference to grapple with these issues this coming May and the Arthur P. Sloan Foundation in June handed out a $570,000 grant to study the social implications of the new field.

"This is powerful work and we live in an age that many tools and technologies can be turned into weaponry," said Laurie Zoloth, a bioethicist at Northwestern University. "You always have the problem of dual-use in every new technology. Steel can be used to make sewing needles or spears."

Can anyone here recommend a synthetic biologist that I could consult with? :?

Peace,
Sabrina
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Postby C3 » Mon Nov 28, 2005 5:15 pm

About questions:

Hawaii and spider boxes?
Not very likely. Many insects can transmit infectious agents and this is one of the reasons why insect cell technology has become so important.

London is prestigious but confuses other readers.
Knowing Bonnie Bassler?: indeed I am not a molecular biologist.
Harveyi? that is a fusion between Houston based lyme buster dr. Harvey, luciferase and an auto inducer in the form of vibrio. Earlier I mentioned that vibrio can be (omni)present.

c. ellen and lip stick?
It sounds you make the statement that in vitro chlorella seems to have obtained properties of rhodophyta.

Not too bad!

E. coli?
keep this one very good in mind.
deduct introductions after 1980
this could yield also e.g enterococcus faecalis.

tamtam advises everybody to have a look at the video that has been made available by the courtesy of first officer in the field "southcity"
His gallery of lesions is pretty consistent.

A few pages back you can click to see the video:


http://www.crossinglines.net/The%20caus ... efault.htm

copy the video!
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