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The Fiber Disease

Human Anatomy, Physiology, and Medicine. Anything human!

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Postby yyz » Fri Jan 20, 2006 8:21 pm

TamTam,

When you say cyanobacteria, do you mean "cyano like", or do you mean true cyanobacteria? What species exactly? Or, because of fusion with protozoa, is it nondeterminate?

Are you saying Cyclospora cayatanensis? Suspect, or reference only? Some of us do not have persistant diarrhea.

What do you think about I. belli?


Thanks,
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Postby J Jill » Sat Jan 21, 2006 4:46 pm

London wrote:Randy,

Been there ( where you and your thoughtS are) and done that.

We too would like to know the same things as you desired in your post.

But you know.....something is better than nothing. And that's what we've been given by our gov't and our medical professionals> NOTHING!

Better yet, I'll rephrase that: Our medical society gave us :HUMILIATION

Our Government gave us: THIS DISEASE


AND YOU KNOW WHAT ELSE? THERE IS NO CURE!

( MAYBE ONE DAY WHEN THEY CAN FIGURE OUT OUT HOW TO MAKE MONEY ON THE CURE. RIGHT NOW THEY EITHER DO NOT HAVE ONE OR THEY ARE WAITING FOR MORE OF US TO GET INFECTED!

NOTE: i'M WHO i SAY i AM BUT i DO SEE YOUR POINT TO BE CAUTIOUS. wHY RIDDLES?
jUST PLAYING THE WICKED GAME WITH THEM!


SINCERELY,,LONDON



London,

You need to stop speading remarks such as in your above post.

I do not believe for one minute there is NO CURE- for any disease.

First off, if this is man made- someone has the info somewhere.

Do you remember when it was said there was no cure for AIDS?

Well- now there is. See the research and patent by Dr (Rabbi) Antelman-
Tetrasil/Imusil.

$9.00 for 1 injection. 1 injection is all that is needed. See the research of
Boyd Graves. He had the injection and is now HIV/AIDS free.

So, if there is a cure for AIDS and the scientists are now stating that AIDS and Chronic Fatigue and one and the same- then I'd look at Chronic
Fatigue. How to treat/cure.

Seems the Fiber disease has a huge fatigue factor.

Could be that HHV 6 is a component. If it is, research is needed. A cure is possible.

I don't have 'we're doomed' in my data banks.

More later.
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Fiber Disease - We're doomed

Postby givemeabreak » Sat Jan 21, 2006 5:38 pm

Jill,
While you absolutely right about the "we're doomed" concept, you are wasting your breath.

London has repeatedly proved she has no concern for anyone but herself.

She continually exhibits rude, and damaging, behavior despite many pleas for her to cease these activities.

I am sure everyone noticed that this thread has turned into the mini Londonbusters / TamTam thread. Anybody with true scientific, or medical, background quit posting to it long ago.

It does not occur to London that many with this disease are extremely depressed and full of hopelessness. Some even suidicidal.

Yet she continues to preach this apocalyptic mantra, while intentionally trying to confuse the issue which she well knows frightens people.

Then there's the manic cycle of spam posts, every other week.

She REFUSES to decompose any of her references for the people that ask her to dumb it down a notch.

This constant destructive behavior is going to push someone over the edge. It happens. Everyone go read EDRL if you doubt what I am saying.

And to all of those who want to respond with "what have you done" and that I am a sniveling, traitor......................

Don't bother. I have done more for this cause than most individuals and make these statements because I am still rational and concerned about what is going on here.

So get a clue. A nameless, faceless person publishing a homemade video is not evidence. It's ridiculous and an embarrassment to the suffering community. Litigation, using the video as evidence? Laughable.

The government gave us this disease? You have no proof of that.

There is no cure? You have no proof of that either.

Saying something is a fact, does not make it a fact. You guys don't seem to get that.

What a shame that what little progress is being made is being destroyed by this small group of irrational people.

Makes me wonder just exactly which side you guys are on.
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Postby J Jill » Sat Jan 21, 2006 6:12 pm

Hello Gimmeabreak,

Thanks for the input. You stated the matter succinctly.

I agree with your insights.

Point is, for the reasons you sited, her wild remarks must be countered with facts.

If, for no other reason than to stop the obvious attempts to create fear.

I recall that others used fear successfully in the past. Hitler comes to mind.

Magicians' tricks.

I'm curious- what is EDRL? Google produces lots of links....

Thanks in advance...
"When you dine with the devil, bring a long spoon."
Machiavelli
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IN defense

Postby RANDY » Sat Jan 21, 2006 6:30 pm

Just to state something without causing any trouble..there is no cure because no one knows what this is and this TAMTAM character seems to be flooding lymebusters and all other boards with South and many talking to a person that once in a while answers back but yet does not have the courage to even call Schwartz and discuss our plight.

There is no cure as of today and that is a fact. I believe in my heart that this is man made and that right is mine. Maybe global warming caused this or the distruction of the rain forest..but the way it is being ignored and made like it does not exist and the way the CDC and NIH have gone about doing nothing about it and even sending doctors notices that if a patient mentions MORGELLONS that they are DOP ( my cousin an immunologist got this notice,) is criminal.

The medical community and our government should be on top of this but they are lack as they are in New Orleans. They do not care and that is just not acceptible. Five die of Bird flu and it is ALL over the TV. We have thousands who are sick and no coverage by any major NEWS organization except what Mary has done.

There is no cure...no one knows what it is.......those are the true facts so London should not be strung up for mentioning them IMHO.

That is all..I wish for all of us to be able to be opinionated and for all of us to come together to work together and form a unified front of level headed people. That dream may be as far off as a cure.

Best of luck to all......TamTam if you exist...give us your credentials or call Schwartz.

Thanks,

Randy
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Elliot's Disease Research Library

Postby givemeabreak » Sat Jan 21, 2006 6:36 pm

This is one of the first forums regarding this disease.

Elliot was suffering from this disease and commited suicide.

http://members4.boardhost.com/Kritters/msg/2025.html
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Postby J Jill » Sat Jan 21, 2006 6:57 pm

Speaking of Dr Schwartz, I wish him well this week. I've read of his problems. I believe he is really attempting to help those in distress- drug users and those with the Fiber Disease as well.

As an aside, I quit drinking my all time fav- Diet Dr Pepper- due to his exposure of Aspartame. I've read Betty Martini's articles as well. Makes sense to me.

The lab mice had holes in their brains from the Aspartame- yet it found it's way into products.

You have to wonder about that.

As to London- I can only say 'enough is enough'. As 'Givemeabreak' stated, there are people out there reading the various boards- looking for hope. Just a tidbit of hope. Maybe some are suicidal? Maybe this barrage of negative posting is just what pushes them off the edge?

Additionally, I don't believe that:

1) we don't know what this is
2) there is no cure

You can make the statement that 'we don't know what this is- therefore- there is no cure.

I say to you- do you analyze the red dots that are measles? Or chicken pox?

NO.

I say- this disease is a part of/result of/compilation of various pathogens.

Bacteria and fungal involvement goes without saying. What else is present is the variable.

Why do I say that?

Because when the majority of sufferers take antibiotics and/or antifungals there is improvement. Some state they are cured.

Take a glance at the posters on Lymenet.org. Look in the history. There are posters who have mentioned the fibers. Most have no idea what these 'specks' are because they do not have a microscope to see that they are, in fact, fibers.

Follow the stories of these posters. After a length of time on antibiotics/antifungals/herbals or combinations of same, they state that the fibers are gone. GONE.

Others claim the fibers go away with low carb diet in combination with antibiotics, exercise and essential oils applied to the body along with keeping the enviornment clean.

I'm saying there are cures out there- I don't care what the Fibers turn out to be.





:!:
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There is no cure

Postby givemeabreak » Sat Jan 21, 2006 7:01 pm

I wouldn't have posted this, except I simply could not believe I saw "there is no cure" stated as FACT, AGAIN, right after I just explained how DAMAGING that is and it is baseless.

Everybody has the right to believe what they want, but at least have the decency to filter your comments and state them as an OPINION.

There are many people that have recovered from this thing so "there is no cure" is simply just not accurate, from Randy or London.

Randy you are referring people to Schwartz who says he has a cure, so which one is it? I'm sure you are going to say, "He never said that and I am evil!". That's your usual response. Say it if you must, but oh yes he has. Explicitly and implicitly.

There is no GENERIC or GUARANTEED CURE. That is true. The same treatment does not work for everyone, that is also true.

But people HAVE recovered, so quit blasted telling everyone there is no way to recover. That goes for EVERYONE.

If nothing else so YOU don't get on the wrong end of a lawsuit when someone commits suicide, or goes postal and shoots a CDC rep, and references these forums as part of the reason.

It is ridiculous that this concept has to be continually explained to a bunch of adults.
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Postby yyz » Sat Jan 21, 2006 7:35 pm

There is no cure right now, but only treatment at best. Symptomatic treatment. You can't cure something that you can't understand, fail to understand, or neglect to understand.

And, I have the right to say that just as you have the right not to believe me or take advice thereof. I am posting from the USA where even though I have lost rights pertaining to health and happiness, I still have the right to free speech. I offer no credentials nor do I charge a fee, therefore I will not, and do not, have to offer a disclaimer or warranty towards such iteration.

Try not to forget that.

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Postby givemeabreak » Sat Jan 21, 2006 7:54 pm

"There is no cure right now"

Wrong, there are documented cases of people that have recovered.

End of story of that one.

And yes people have been cured of many things that weren't understood at the time. The empirical treatment, and evidence, gathered from such endeavors led to a standardized cure. It's part of the discovery process.

But most of you guys don't even bother to consider what has been discussed, or documented, about this disease for the last many years.

You are correct in the fact that you have the right to post whatever you want. I am trying to point out to you hard heads that you have a MORAL OBLIGATION to the suffering community to state it as your OWN OPINION and to filter your comments somewhat.

If you don't care about how your actions affect your suffering "family" I can't control that. I can only try to keep the innocent bystanders informed about what a crock of BS it is.

Have a nice day.
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Not true

Postby RANDY » Sat Jan 21, 2006 8:30 pm

We must agree to disagree.

I had this disease 17 years ago and it lasted for three horrible massive lesion years which left tons of scars no my face and arms. Then after three years I finally got rid of it and then it came back with a vengence for almost 4 years now. So I was "cured" as you say for 10 years. NO, I was in remission.

When it vanished I had no lesions, no fibers, no arthritic pain, no fatigue, no brain fog. Then one lesion showed up and now 4 years later..I am still covered in them and I have tried anti-fungals, anti-biotics, anti-parasitics, Septra, Avelox, Biltricide etc etc and I apply Panafil on the lesions every night which makes them go away but new ones pop up all the time.

I eat macrobiotically, I have a VERY clean home without carpets. I have an air purifyer, new mattress and totally new bedding and curtains.

My basement in waterproofed with a dehumidifyer on all the time.

So please, we are talking science here not emotions. There are other sites for that. There is no cure. There is only remission. In order for there to be a cure you have to know what you are curing and that is unknown unless you are keeping secrets which is criminal.

If you think that there is a cure, show me one person who has been in constant remission for over 10 years,.. I know over 50 people with this disease and not one has had a long term remission. This may hibernate in your body but it does not leave your body and that, no matter how hard that is to hear is the damn truth otherwise it would be all over the sites how to cure this and believe me someone would be making tons of money..so please...false hope is a sin.

Truth gives you the possibility to deal with this.

Prove to me one cured person and how they did it. It is not true.

I am not trying to hurt anyone here.. but in the SEARCH for a cure we must speak the truth and give facts to back it up. All those tooting a cure are short of facts..really short on facts.

I have all my medical records sitting right in front on me. I can back up what I state.

If you are going to say people have been cured, I say good luck to them with their remission and I hope to G_D that it never shows up. But remember that when you are under stress or have an emotional situation happen in your life this creature, whatever it is will pop up again and it will be much harde to force into remission the second time around.

I am a realist. I am not here to be anyones mom and protect them from the truth. I speak the truth and we are all grwon-ups here.

There is NO CURE because WE DO NOT KNOW WHAT IT IS! How can you tell you are cured if there is NO TEST FOR IT. Honestly.

I am not here ot fight you. We will have ot agree to disagree and I have 17 years of this under my belt with 4 years of it recently.

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There is no cure

Postby givemeabreak » Sat Jan 21, 2006 8:40 pm

"There is no cure"

Wrong.

People have recovered and have not had a relapse.

If you haven't, sorry, that's your INDIVIDUAL case.

End of story.

So I can keep posting it as long as you guys want to keep making sweeping generalizations about things you have no facts to back up.
There is no way you can speak to the fact there is no cure for the entire suffering population.

You think there is no cure for you, or evidence you can be cured with today's remedies. Sorry, that sucks. Neither have I. But other people have recovered.

You have posted, in the past, Schwartz has cured over 100 people. So pick a side and stay on it.

Have a nice day.
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