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The Fiber Disease

Human Anatomy, Physiology, and Medicine. Anything human!

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To Cilla

Postby Sabrina » Wed Apr 05, 2006 12:35 pm

Dear Cilla,

I knew you were an angel!

I broke down in tears when I read your post. Thank you for what you have done for us.

Don’t want to believe tamtam is correct but the evidence mounts.

The fact that he is doing this in the “interest of women and children” means he is doing it for me and mine. This screams of chivalry. Thank you tamtam.
Due to the bizarre nature of this disease I always provide myself with reality checks. I have learned to video tape things that my eyes cannot believe. Unlike any video so far that I have seen, I have the white fibers clearly being pulled out of actual skin, it’s undeniable. Doctors are stumped when they view this and never did they call me delusional.
Do you know about the crystals?

I did enjoy the good doctor’s story about the Mother who tried to save her son. However, Morgies have a unique set of circumstances that must be carefully taken into consideration.

I have been told by my son’s infectious disease doctor that I was making him sick. They can take your kids from you for Munchausen’s syndrome. Many sufferers have already had this happen, sad reality. I tried to ignore her comment since it was a waist of my time and attempted to move on to the real problem practically having to force her look at my video. She never said that again but I hate to think of what could have happened to us if I had not had this visual evidence. She still refuses him treatment of any kind.

How can you help your child when your scared to death that they will take custody and lock you up for being delusional when your really not? What good would I be to my son then?

How many doctors does a Mother have to go to before she says, “They are not going to do anything for us because they don’t know what to do. God help me I’m completely on my own. Do I spend another year going from doctor to doctor in hope to get him treated?”

The answer is NO. I have to move on and I must act. I’m moving my mountain right here. I had to become a pharmacist, a biologist, a researcher, doctor, parasitologest, and everything else this disease from hell entails with only a high school diploma. It is up to me to figure out how to help him because in my case, that meeting was way too important for that doctor and professor to miss.

So Cilla, pass that along if you would please.

When we talk about pain and suffering caused from illness it is hard to compare and judge. All I can honestly tell you is that if I had a choice between this and cancer or AIDS, I wouldn’t pick this. Perhaps this gives you the scope of the seriousness of my suffering.

I thank you once again for all of your persistance and productive efforts to our cause. You restore my hope.

Peace,
Sabrina
Last edited by Sabrina on Sun Apr 16, 2006 3:39 am, edited 2 times in total.
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Postby ukguy » Wed Apr 05, 2006 1:28 pm

Standby and Sabrina:

You last posts are practically identical to a PM I sent
to Cilla yesterday regarding this exact same situation.

This is a very different situation to most other diseases.

Cilla, I hope your colleague can read these words and
I would be very interested in talking with him.

Thanks once again,
Ukguy
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Postby Doc44 » Wed Apr 05, 2006 4:57 pm

Concerning Fibersymptoms question of why a vet entomologist would be advocating the DOP diagnosis so doggedly; Hinkle is an entomologist with the vet extension service at the University of Georgia. She has close affiliations with the American Pesticide Applicators Association including funding from them through grants. Exposure to some pesticides and expecially the new biopesticides (GM nematodes) are thought by many to be responsible for at least some of the Morgellons/Fiber Disease symptoms. Now you know the rest of the story. It is simple 2 + 2 = $$$$...at our expense.

Doc44

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Postby in_the_uk » Wed Apr 05, 2006 5:00 pm

Cilla,

I hope that you do not take my last post in any way negative to evrything that you have achieved by you deligence and determination to find an explaination and cure for this thing. I am presently firefighting this problem whilst trying to maintain a normal life.

I would be very happy to speak to your colleague and I am certain that my friend Ed would also co-operate fully if it meant an elimination of the symptoms and a global acceptance of the disease.

Helen
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Postby London » Wed Apr 05, 2006 5:07 pm

Dear Sabrina,

Now that was what I call " a great post!" Thank you for taking the time to write that. It touched on every aspect that is so important in
a way I'd describe as both elegant, yet to the point at the same time.
Thank you.
_______________

Dear fiber symptoms,

I liked reading your post too. It pinpointed accuracy that is simply
the harsh reality we all, as sufferers, have to deal with. Thank you
for such a well written post.
_______________

Dear Helen,

No mam, I'm not in the UK, I live in Texas with the "cowboys".
Yes, you answered my question and I respect your answer. Your
story about " a crate" brought into the town was interesting. I wish to hear more about this if you could share information about it.
Thank you.

________________

Dear Randy,

Thank you for another invaluable tip. I use the Gold-Bond powder as well, yet never thought of making the paste with it. Thanks for the tip.
Also Randy, I wanted to know more about this C-Protein Test.
First, how were your results? ( if you care to share them) And I also wanted to know is this a test that can simply be done at every Dr.'s office
or is it in fact some test that must use special instruments, etc., maybe one where they would have to send us to a "specialist" for testing or send off to a certain lab for proper result readings? I.e., maybe off to Bown Labs, etc.,
I also wanted to share with you a quick story about a lady that post a L.Busters. Her name is Becky and she is also a Texas native. She used some special Dr. in New Mexico to perform her "fecal-smear test"- maybe other testing as well, but I am not sure of the details. I do not have the results she shared with us in front of me to present here, but they were "jaw-dropping" to say the least. From pinworms to Candida.
With this being said, I ws wondering if you knew why it is that so many of us have gotten multiple "negative" lab-results? I do not understand this.
Some people said that they knew, by sheer visual seeing of these organisms, that their specimens were def. positive. Yet all results showed "Negative". Any help would be greatly appreciated.

London
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Postby in_the_uk » Wed Apr 05, 2006 7:11 pm

Hi London, out there with the cowboys? You live in a big country.

the guy who actually owns the engine that the crate transported is going to take the engine away soon. The engine is still in the crate and I think that the guy is going to leave the crate. I don't know how they are going to deal with the fall out when the crate is disturbed.

I have emailed the Health Protection Unit in my area and the reply was that my GP will inform them of any threats to public health. I wrote back and told him that my GP probably won't inform them but they really must be aware.

I ahve also left a message on the answer machine at the CDC on (404) 639-3534. I left contact details but no one has responded yet.

This crate needs placing into a sealed container and testing. However, if it is an sealed container then possibly the oxygen deprivation may kill whatever is there and hence the theory will never be proved.

Ed is going to start the salt and vit C regime today. I started it because I had read before that there is a link between Lyme and this thing. I thought that it can't do any harm, except to my pocket and it is better than doing nothing. Ed is full of fibres and crystals and so I will report back on the effect it has on him. He is very busy with his mill and does not have interent access like I do and that is the reason that he doesn't post.

Helen
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Postby J Jill » Wed Apr 05, 2006 7:57 pm

Helen,

You mention that the building that houses Ed's business had been a Mill?
Just curious as to what sort of mill? Saw mill? Wheat/flour mill?

Ed is sharp to realize so quickly that his fibers are related to the crate. Most people with the fibers that I read about have no idea as to the source.

Interesting that you mention the wood crate.

I have an acre of trees- about 25- 35% of which are dead or dying. This phenomenon is not just found in my yard but on my street, city, town.

Curious.

Initially, I thought it may have been due to a drought some years ago but it has been quite a number of years since our last drought. About 15, actually.

Maybe the reverse is true? IOW, not a drought but something in the rainwater?

Do you see the Chemtrails in your area?

Jill
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Postby in_the_uk » Wed Apr 05, 2006 8:56 pm

Hi Jill,

It was a cotton mill, but it hasn't been used for 35 to 40 years for that purpose. After it was a cotton mill a company used it for making quilts that they filled with kapok and for the last 20 years Ed has been in it.

He says that one night he was working around the crate and he was "bitten" all over and following that his troubles began. I don't know if you saw my description of my fibres but I mention something that "propelled itself" from my knee into the room somewhere. I had an idea that it went towards the settee. This evening as some friends where coming round I thought that I had better spray the sette with vinegar and vacuum it in case they wanted to sit in that room. I found, where I believe the "misslie" landed, a cushion that is absolutely covered in fibres, including long thin white and clear wavy ones and the little bright white ones and a little bright white feather. I spoke to Ed about it and he said that when it was really bad in his mill they were just floating about in a dense fog. He pointed to a street light and said that you could not have seen that light through them. He has always saaid that they came from the crate, even before I mentioned this problem in America or California. He said that the other night when he was using his steam cleaner to disperse vinegar nto the environment and he sprayed the crate "all sorts" of things were coming off.

The crate obviously needs preserving and testing to ascertain that the assumption is correct. But who is going to test it and what would they look for?

It's quite perverse really that this area of the country was chosen for the cotton industry because the damp climate controlled the fibres from the looms and kept them from floating about in the weaving sheds.

Interesting about your trees that it is not just one variety that is dying. In the UK, during the 70s I think, we had Dutch Elm disease which came from Holland and decimated the Elm population, but that was just Elms.

I don't see chemtrails where I live. It is dairy and wind swept moors where I live, but I grew up on the flight path to an airport and if I looked up in the sky and saw a trail I would think it was the vapour trail off the wing tips of the 6:45 from Gatwick to Manchester!

Helen
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Postby J Jill » Wed Apr 05, 2006 10:42 pm

Hello Helen,

Thanks for the details. England sounds so quaint!

The condition of the mill sounds dangerous. Maybe vinegar isn't strong enough? Did Ed try bleach? I hope he has an air cleaner in the mill?

That "missle" that landed on a cushion and caused the fibers is really key. I would quarantine that cushion in a plastic bag (or 2), post haste.

Brings to mind a poster on a board a while back- with the theory that the fibers came from cotton. Since then, many others came to that conclusion. While it is not the only source, it seems to be an important one- who doesn't wear something cotton?

With the cotton, as well as other crops, many growers spray them with
nematodes. Corn, soy, and many other veggies get hit with the nearly invisible worms.

They spray golf courses and recreation areas with them as well.

One of my favorites is the following:

Hill and Allen are testing natural weapons, like nematodes or the spores of fungi, to get rid of deer ticks before they latch onto people. Ticks spread Lyme disease, which has become an important public health problem in some areas of the United States.

Brilliant, eh?


http://www.ars.usda.gov/is/AR/archive/m ... ck0398.htm

Below is only 1 link to purchase the nematodes:

http://www.yardener.com/HowToUsePredatoryNematodes.html

Google: nematodes spray (and or purchase) and you will get hundreds of links.

In addition to the nematodes, there are parasites of the nematodes.
Catenaria anguillulae-

http://helios.bto.ed.ac.uk/bto/microbes/catenar.htm#Top

All that in our produce, clothing and more!

I said all that to say that I wonder if there is something in the crate wood that reacted to the cotton fibers that would be in the mill? Some chemistry or reaction between something in the wooden crate and something in the mill (old cotton fibers maybe?).

Many people with the fibers have noticed the problem started after working with mulch. There's the tree connection again....

The other day, I read that indoor fungal spore
concentrations in moldy houses are much lower than those in sawmills.

Makes me wonder if there were nematodes (from the cotton) that came from the mill- attracted to the fungus in/on the wooden crate?

I'd love to know if the shippers (of the crate) had any sort of problems.


Here is another interesting link:

http://www.na.fs.fed.us/spfo/pubs/howto ... newilt.htm

Excerpt:

The common presence of the pinewood nematode in forest products due to secondary transmission has resulted in restrictions on wood exports from North America.
end excerpt

Pine wilt- little nematodes- actually Beetles- that destroy pine trees. Because they feed on fungus, you have to wonder where the fungus is originating? Greenhouse effect?

I've had the Dutch Elm disease kill most of my Elms but was surprised that even the hard wood trees such as the Hickories were dying as well.

I had a border of 30-40' pines and they are all dead or dying. All this in the past 5 years, give or take.

Strange times we live in.

Jill




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Postby Linn » Wed Apr 05, 2006 11:56 pm

London:Hey, Helen and UKGuy, why don't you all choose 3 Universities in the UK
and write them a brief letter and give them Tam Tam's video link???
This would be great!!! Is that a yes??? What about you Lynne?


London, Mary from Morgellons asked me if I am in
contact with any one from UMASS since that is only
20 min from me. That is where she went to school
for micro-biology. and so she knows people there.
I am waiting for her reply, and I am sure she is extremely
busy so I need to be patient.
Then there is and Harvard and other Boston
area colleges.
I am also near MIT.
They probably will not see me if they think this is still a fruitcake
disease. :roll: And currently I am symptom free. (its been two months now.

Helen, thanx for sharing that, the fibers sound similar
(the very small) ones and green and black, and black specks.
Also are the lesions intensely itchy and/or do they hurt?
How about neurological problems?
fatigue? concentration?

Any one have tingling in their shin or numbness in fingers?
For now I am not having skin symptoms at least but I am so afraid as was mentioined by fibersymptoms that I am again only just in remission and not cured. I know I am not cured.

I do not have feathers. I did see strange
insect looking parts that almost look like
an insect that is deformed, that was not completly formed
in the making. Like a flying ant wing or something weird.

I cant believe some of the strange things I have seen,
that seems like a real life X files or something.
Regards,
Lynne
"How far you go in life depends on your being tender with the young, compassionate with the aged, sympathetic with the striving and tolerant of the weak and strong. Because someday in life you will have been all of these".

~ George washington Carver
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Postby in_the_uk » Thu Apr 06, 2006 12:21 am

Jill, Parts of England are quaint! It's nice where I am.

Ed has tried everything, he has spent a fortune on trying to get his mill clean. The vinegar idea came from a site that I read concerning unidentified skin parasites. I don't have the link at the moment. That's a shame really as it may have other useful tips. He was so pleased with the effect of the steam/ vinegar approach (he is putting it in his steam cleaner). I saw him the evening that he had started with it and he said that it was the first time since the trouble started that he could dare to roll his overall sleeves up and that he felt safe enough to work there. He said that they were just dropping down from the beams. I have suggested that he gets a big drum and fills it with vinegar/ water and leaves it on a low light overnight on the first floor. The vapour should fill the volume and do 8 hours work for him whilst he is sleeping. He says that as he attacks them then they bite him. He certainly rates it above bleach.

The cushion is interesting. What is most interesting about it is that the fibres didn't migrate to the adjacent cushions. Both sides of the cushion are covered with fibres that I recognise and can't possibly have got there any other way as I don't really use that room. I took it outside and sprayed it with neat vinegar and then puyt it in a bin liner and filled the bin liner up with fly spray and sealed it. When I showed it to Ed there was a horrible mucous in one patch. It wasn't in the bag before hand and Ed said that he gets that on his overalls when he sprays them with fly spray. Don't really know what I'm going to do with it now. It was a present and I haven't even taken the label off yet!! Another interesting thing about the cushion is that whatever sprung from it obviously had a large payload. Everything that is now on the cushion would have released into my leg - a large number of clear wavy ones, a few short stiff bright white ones, one long wavy red one and one feather.

Interesting point about the cotton fibres. The mill has been used for 20 years as a garage workshop and the crate is in the middle area of the ground floor. I would image that the only place where cotton fibres may possibly be present would be behind the plaster on the walls. I don't think that there is by any means a high concentration of cotton fibres in that area.

It suddenly dawned on me the other day where I had heard of nematodes. They sell them to gardeners for controlling slugs. Scarey really if you are growing organic vegtables and you end up with a worse problem than if you had just put slug pellets down.

Ed trys everything. One day he found that he got some relief whilst in the mill from rubbing bark chippings on his overalls. The council put bark chippings around trees to stop the weeds.

He has asked the man who owns the engine to get in touch with the person who crated it up to find out how he is, but the engine owner is not really moving very fast on it. I don't think that he realises the situation. the other thing is that he imported it himself on a private deal. I wonder if it had been done by a professional outfit whether it had would have been treated at the ports. The problem with the mill now is that Ed is getting it under control but it will take months and it will be like painting the Forth Bridge, as soon as he gets to the end he has to start at the beginning again, until it is completely eradicated. In the meantime, he can't earn any money. The crate may have picked something up from the hold of the aircraft.

I would like to know if I am infectious. Is it transmitted by a bite or a sting or can the fibres transmit it by getting into the skin and if I sit close to someone or if I touch someone will it be transmitted?

Helen
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Postby Linn » Thu Apr 06, 2006 12:38 am

Helen;would like to know if I am infectious. Is it transmitted by a bite or a sting or can the fibres transmit it by getting into the skin and if I sit close to someone or if I touch someone will it be transmitted?

I can speak for my self, having slept in the same bed with my husband who has been symptom free, and having grandchildren sit on my lap that it does not spread that way.
however two of my grandaugters had black fibers on the back of their hands and one on their forearm. I removed the fibers with a tweezers and applyed vinegar every day and night and they are gone. I got them before they took hold apparently. I think contact is part enviromental, and maybe part chemical make up of individuals? That is my guess, because the third grandaughter who is the sister of the one who had it on the froearm did not get any thing, nor has the girls parents.
Lynne
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