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The Fiber DiseaseModerator: BioTeam
London, why all the REFERENCES TO DEATH???????? Peace, Sabrina
Frank has showed us exactly what we are up against. It is now up to us to do what is necessary. He has been instrumental in helping us unite and move forward, although I am sure this was never his intention, so praise what ever God you believe in!!!
Let us carry on. My military training has taught me to use the chain of command. If the CDC will not help then we must take the next necessary step and move forward. I am purposing we as a group, create a petition. This has been attempted in the past with little to no results. The attributes that were missing with these prior endeavors entailed passion and most of all, follow-through. Frank has ignited our passion, I will promise follow through. With this there can be no failure. Please review my rough draft and feel free to add your comments and suggestions. With your support, I will rent a post office box, provide this address to all of you, and collect the necessary paper work that will need to be submitted. I think this is the safest way to protect our privacy. As an alternative to snail mail, for those who are brave, I will construct and implement this same petition at an on-line site of OUR choice. This needs to be a collaborate effort. I now pass the ball, roll with it. The Fiber Disease Request for Congressional hearing for major public health threat regarding the Fiber Disease. The issues raised in this petition presented here that need immediate attention concerns an emerging infectious and speculated contagious clinical condition that is being ignored, dismissed, untreated, and often, despite physical evidence, denied within our medical communities, research universities, and most appalling of all, our government agencies. This petition is being submitted with the intention to inform and begin to receive the help necessary by the American Congress to aid the desperate and growing population of victims who suffer from a condition called the Fiber Disease. We are requesting that a formal and public investigation be immediately implemented by Congress. Although the Center for Disease Control has stated that they would began to officially investigate this clinical condition, they continue to delay this process and are currently and consistently doing nothing to help. Because the CDC has been informed of this serious public health threat for several years now, many people feel they have done nothing but pacify thus, ultimately contributing to the continued suffering and probable spread of this apparently contagious, debilitating, and possibly deadly horrific affliction. It has become obvious that the CDC has done far too little and much too late. We the people do not know and will not know how this condition has come about, its cause, how to prevent it, or how to protect ourselves from it until somebody begins to hold accountable the correct agencies that are set in place to handle these responsibilities. Victims of this condition find it impossible to receive proper medical treatment if treatment of any type can even be obtained at all. Your constitutes suffer greatly and we need the aid of our American congress. We seek immediate relief by the way of appropriate medical treatment, professional research to identify the responsible causative pathogen causing this condition to enable further advancement of appropriate treatment and possible cure, and for responsible parties that have been liable for neglect and damages to be held accountable and make amends. Thousands of people including children represented from every state in our country and internationally claim to suffer from this condition which produces unnatural and unusual symptoms, thus making it appear to have origins of a bio terroristic nature or genetically modified source. Due to the obviously apparent and severe public health threat that this issue addresses, we request that this investigation and offered resolutions be given the utmost priority and all processes be expedited to the fullest extent possible. It is past time to find the answers to what is happening in our great country. We the people are demanding your intervention by the way of a congressional investigation. Peace, Sabrina
Alex has updated
A few important announcements: 1- If you have not already changed the temporary password (same as username) to a password of your choice, you should do it now. One reason is security. Although it is unlikely that anyone would try to hack into the database, it will be more resistant to unauthorized access if the passwords are changed at least one time. 2- Instead of starting a New Survey, I have decided on a more dynamic solution. A survey would have a fixed number of questions and any changes made to it after it begins makes the collected data inconsistent. I want to be able to add questions at anytime and allow people who have already done the survey to come back and answer only the new questions and not have to do anything twice. So as you look thru each of the (currently 7) sections of the survey, you will see new questions amoung the original questions. Also, many of the multiple choice questions now have more (precise) choices. 3- One of the most important additions is a more detailed section about your experiences with doctors. Now you can easily specify how many doctors of each type you have seen and how many of those diagnosed DOP. AND there is a place to name the DOP doctors so other people might avoid them. You can also name any doctors or other health care professional that has been helpful that you would recommend. I really want to see everyone participate in this. People are using up their insurance and then spending their own money on doctors that will never help them. And there are doctors that will prescribe anti-biotics despite a clean blood test and we need to find them. 4- I have added a forum to the site. It has almost exactly the same features as the Lymebusters forum. The purpose is to help information flow faster. So instead of emailing me with a question that has already been asked before, you can post it in the forum and then when someone else has the same question, they can find the answer by searching the forums. Or if someone else has a better answer, they can post it. The forum will be dedicated to all aspects of Morgellons Disease, doctors, drugs, food, environment, theory, but primarily, the Survey and Database. I am also thinking of starting an image and video library. I have lots of both but I know that some of you have excellent quality image and video. Go here http://usp-db.com/Morg-dBase to login. Peace, Sabrina
RECLAIM YOUR BOARDHi All. this is everybody's Board but when you are on, it seems to belong TO Randy and Frank n Pop', He is a devil pretending to care for your welfare and if someone comes to you geuinely, then somone is scamming,,,how dare you charge me of scamming when I share the NEWS ABOUT THE Comanda and I did not ask for anything in return...you are also saying that" I told them what to do"....hogwash! What do you know but Helter/skelter YOU ARE NOT THE BOSS OF ANYONE! Tam tam 's right some people can harbor insects in ther bodies and why should anyone believe us if we can not believe the other. SO PEOPLE IF YOU HAVE A FLUKE SWIMMING AROUND AND AND SECRETING ON YOU, GO TO ANY WEB SITE THAT YOU LIKE AND ORDER THE CUMANDA... ADD THE 4 DROPS OF PURE WATER AND SEE WHAT HAPPENS...JUST HAVE A GOOD ANTIOBTIC IN HAND, ONE MORE DIED IN MY STOMACH, ONE DIED IN MY RIGHT LEG (AND IT'S INFECTED, BUT GOT ANTIBIOTIC) And I did share 4 bottle with 2 friends....I aM stiil on my first bottle...TAKE CARE...
Reliefseeker
Sabrina, Could you please tell me who Alex is and who is actually putting the survey together. I received some information on the survey this AM and was unable to complete it as I am from Canada and certain aspects of my data would not allow me to go furthr. I think the survery is an excellent idea and want to participate.
Sabrina, I love the letter and I would like to add that for those of us that are not American, we should write a similar letter to our own governments. I will see what I can do regarding a letter to our Prime Minister. I agree that we need to be determined not to let people like FrankNStein break up this most important group. te="Sabrina"]Frank has showed us exactly what we are up against. It is now up to us to do what is necessary. He has been instrumental in helping us unite and move forward, although I am sure this was never his intention, so praise what ever God you believe in!!!
Let us carry on. My military training has taught me to use the chain of command. If the CDC will not help then we must take the next necessary step and move forward. I am purposing we as a group, create a petition. This has been attempted in the past with little to no results. The attributes that were missing with these prior endeavors entailed passion and most of all, follow-through. Frank has ignited our passion, I will promise follow through. With this there can be no failure. Please review my rough draft and feel free to add your comments and suggestions. With your support, I will rent a post office box, provide this address to all of you, and collect the necessary paper work that will need to be submitted. I think this is the safest way to protect our privacy. As an alternative to snail mail, for those who are brave, I will construct and implement this same petition at an on-line site of OUR choice. This needs to be a collaborate effort. I now pass the ball, roll with it. The Fiber Disease Request for Congressional hearing for major public health threat regarding the Fiber Disease. The issues raised in this petition presented here that need immediate attention concerns an emerging infectious and speculated contagious clinical condition that is being ignored, dismissed, untreated, and often, despite physical evidence, denied within our medical communities, research universities, and most appalling of all, our government agencies. This petition is being submitted with the intention to inform and begin to receive the help necessary by the American Congress to aid the desperate and growing population of victims who suffer from a condition called the Fiber Disease. We are requesting that a formal and public investigation be immediately implemented by Congress. Although the Center for Disease Control has stated that they would began to officially investigate this clinical condition, they continue to delay this process and are currently and consistently doing nothing to help. Because the CDC has been informed of this serious public health threat for several years now, many people feel they have done nothing but pacify thus, ultimately contributing to the continued suffering and probable spread of this apparently contagious, debilitating, and possibly deadly horrific affliction. It has become obvious that the CDC has done far too little and much too late. We the people do not know and will not know how this condition has come about, its cause, how to prevent it, or how to protect ourselves from it until somebody begins to hold accountable the correct agencies that are set in place to handle these responsibilities. Victims of this condition find it impossible to receive proper medical treatment if treatment of any type can even be obtained at all. Your constitutes suffer greatly and we need the aid of our American congress. We seek immediate relief by the way of appropriate medical treatment, professional research to identify the responsible causative pathogen causing this condition to enable further advancement of appropriate treatment and possible cure, and for responsible parties that have been liable for neglect and damages to be held accountable and make amends. Thousands of people including children represented from every state in our country and internationally claim to suffer from this condition which produces unnatural and unusual symptoms, thus making it appear to have origins of a bio terroristic nature or genetically modified source. Due to the obviously apparent and severe public health threat that this issue addresses, we request that this investigation and offered resolutions be given the utmost priority and all processes be expedited to the fullest extent possible. It is past time to find the answers to what is happening in our great country. We the people are demanding your intervention by the way of a congressional investigation. Peace, Sabrina[/quote]
Hello All,
Sabrina the petition is Great!!! Keep the ball rolling passionate ones!!! Be Well, Cyn The following is from Brandy Twirl a new member who has difficulties posting here. I was given kind permission to paste it here on her behalf.
Re: RECLAIM YOUR BOARDreliefseeker, You are right about reclaiming our board and it is okay to share information about products that provide relief from symptoms. I would like to know about the one that died in your stomach. Did you see it? I have had a stomach pain just above my waist and am wondering if it is from the microorgansim. Lately I have had some success with dabbing a mixture of salt and water(heavy on the salt) and spreading it on my face and other infected areas and leaving it on. The salt does not hurt and it seems to take their water source away. I am going to keep it up for awhile. Thanks for reclaiming the board.
AND LONDON
THIS WILL ALSO HELP SEPARATE AND SHOW THAT THERE ARE MANY THINGS GOING ON HERE. THAT IS WHY IT IS SO CONFUSING TO GET AN ANSWER...... PUT A SPIDER IN A PLASTIC CONTAINER AND PUT A LID ON IT. WATCH HOW IT WILL DUPLICATE ITSELF...RECREATE...AGAIN AND AGAIN....I HAVE THREE OUT OF 1, SO FAR
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