The Fiber Disease

[Sabrina]

Got game doc?

WTF????

People are dying and you want to play games Frankie? Dear Lord above what is wrong with you? Where are your priorities?

May I suggest that you start to use some of your intelligence to help us all figure out how we can best precede with obtaining legitimate research, appropriate treatment, and a possible cure instead of playing games?

Randy is not an insider. She is someone standing outside of the government process waiting for an answer just like you and I.

Her approach is to call them and ask pretty please may she have some money, and will they pretty please tell her what they know as soon as they discover it. That's the approach that Randy is taking. Your approach is to sue them and force them to resolve this matter.

Frankie boy, It has NEVER, EVER been Randy’s approach to ask “please” and especially not “pretty please” to anyone in her entire life, she considers this type of proper etiquette to be begging and finds herself above that. I cannot believe that you have not read this thread before jumping in here. You are uninformed, please read up.

Randy’s approach has always been her down fall. She, like you, wants to dictate, give orders, and treat adults like children. She is insultive and degrading just like the traits that you have displayed here. Please stop making the same mistake. The whole “holier than thou” attitude will get you nowhere here or anywhere else, in the civilian world anyway.

Read over her latest post and observe how unscientific she has just been in stating what this is and is not. She talks as an authority and has nothing to back it up. Her theory about the insect part of this is retarded and not accurate at all but hear her profess how correct she is and how everyone else is wrong. How about educating her in the scientific process? She obviously needs it more than the rest of us! If you can not see this then you are not objective at all and can only be biased.

And at what point and after how many years do we decide to stop politely asking them to “pretty please DO SOMETHING”?????? “Pretty please” aint doin it Frankie boy! We have no other alternative than to sue to get anybody to do any thing to help. If you have any other suggestions, I’m open.

OK well how about we do this. Both of you go about it your own way. Both of you respect one another, and for the rest of us who don’t have that much time to become active, we will ride the first one of you who succeeds to bust this thing open on the lead float of the Fourth Of July Parade.


One unit, different teams, same objective. How about that?

First of all respect is earned in civilian life. You are in severe need of deprogramming. How many years did you spend being a GRUNT anyway? You’re a lifer hu?

Hate to rain on your parade, but how about lets not. There is power in numbers Frankie boy. Why do you attempt to divide and not unite? And why would you want to be parasitic in personality and expect everyone to just do all the work for you while you reap the benefits?


Dear Fromcanada,

Thank you very much for posting on Dr. Nicolson. He is one of my heroes also.

I will repost what J Jill added also (excellent find Jill and thanks for posting it) in hopes that someday soon they will begin to do some valid research (that is not coming from us) so they can tell us something that we do not already know.

Good points, Standby. Somehow I believe that Garth Nicolson has also been huge in his research for the cause as well.

Truly, I believe someone will discover the mycoplasma (fermentans incognitus) was the pathogen that weakened our immune systems for what was to follow.

Did you read this?

http://lymebusters.proboards39.com/index.cgi?
board=rash&action=display&thread=1168050319

Patient Information and Notes from the
Institute for Molecular Medicine and
the Morgellons Research Foundation

Morgellons syndrome or ‘fiber’ disease has been characterized by unusual skin wounds, fibers and specks that appear to be extruded from the skin along with peripheral neuropathies that are described as itching or crawling feeling under the skin. According to the Morgellons Research Foundation (http://www.morgellons.org/casedef.html), Morgellons can be characterized by six major signs and symptoms:

1. Skin lesions, both spontaneously appearing and self-generated, with intense itching. The former may initially appear as “urticarial-like”, or as “pimple-like” with or without a white center. The latter appear as linear or “picking” excoriations. Even when not self-generated, lesions often progress to open wounds that heal abnormally and usually incompletely. (e.g., heal very slowly with discolored epidermis or seal over with a thick gelatinous outer layer.)

2. Crawling sensations, both within and on the skin surface. Often conceptualized by the patient as “bugs moving, stinging or biting” intermittently. Besides the general dermis, may also involve the scalp, nares, ear canal, and body hair or hair follicles. The sensations are at times related to the presence of easily seen insects, arthropods, and other human and non-human-associated parasites that require serious attention from the treating clinician.

3. Fatigue and weakness significant enough to interfere with the activities necessary for daily living.

4. Cognitive difficulties, including measurable short term memory and attention deficit, as well as difficulty processing thoughts correctly. Described by patients as "brain fog".

5. Behavioral effects are common in many patients. Many have been or will be diagnosed as Attention Deficit Disorder, Attention Deficit Hyperactivity Disorder, Bipolar Disorder, or Obsessive-Compulsive Disorder. Almost all, if previously seen by well-read physicians without prolonged observation, will have been labeled as “Delusional Parasitosis”. A temporal relationship to skin lesion onset is not known.

6. Presence of “Fibers” in and on skin lesions. They are generally described by patients as white or black, but clinicians also report seeing blue, green, red, and other fibers, that fluoresce when viewed under ultraviolet light (Wood's lamp). Objects described as “granules”, similar in size and shape to sand grains, can occasionally be removed from either broken or intact skin by physicians, but are also commonly reported by patients. Patients report seeing black “specks” or “dots” on or in their skin, as well as unusual 1-3 mm “fuzzballs” both in their lesions and on (or falling from) intact skin.

Other signs and symptoms include: changes in visual acuity, balance problems, bloating and swelling of legs, neurological symptoms, including changes in mood and personality, painful extremities, tinnitus, gastrointestinal symptoms, skin sores that do not heal, changes in skin pigmentation and texture and other changes, arthralgias or arthritis-like symptoms, sinus problems, breathing problems and chronic infections (Borrelia burgdorfi or Lyme Borrelia, Mycoplasma species, among others) or skin parasites. In addition, many patients have co-morbid conditions, such as Chronic Fatigue Syndrome, Fibromyalgia Syndrome or Sarcoidosis. Often patients with the Morgellons Syndrome are thought to be delusional, or they are accused of self-inflicted skin lesions. Thus obtaining appropriate medical assistance is often a challenge, because most practicing physicians have little knowledge of new or emerging illnesses that may be outside of mainstream medicine.

Patients who do not have medical assistance or are trying to augment the treatment they are receiving may want to consider the following information below developed from anecdotal studies and patient feedback. The regimen described is only suggested for patients, and it is intended for long-term use and requires daily maintenance. The suggestions below may or may not help suppress your Morgellons, and the information is not intended to replace a physician’s care or instructions. There is no known cure for Morgellons, and new information in the future may change the suggestions below.

This suggested regime must be adjusted to individual patients, the stage of the illness and co-morbid conditions. Consult with your physician in order to determine the most favorable approach. Recovery from Morgellons is very gradual and varies from patient to patient. Often patients’ signs and symptoms become worse before they slowly get better. The first treatment consideration is general diet and dietary supplements.

1. Diet is important. Most patients do not consider diet important, but it is quite important in all chronic illnesses. The Institute for Molecular Medicine has posted some dietary advice on its website under Treatment Considerations (http://www.immed.org/).

2. Vitamins and Minerals are imperative. Most chronic illness patients are deficient in Vitamin B Complex, Vitamin C, Coenzyme Q-10, among others. Information is listed in the first document in the publications section of Treatment Considerations (http://www.immed.org/). Since some vitamins can interfere with uptake and action of certain drugs, they should not be taken at the same time of day as other medications, such as antibiotics or other drugs.

3. Immune Enhancement should be considered. There are various supplements available that can boost your immune system. The Institute for Molecular Medicine has posted some information on immune enhancement supplements that you can purchase over the counter (OTC). They are listed in the first document in the publications section on Treatment Considerations (http://www.immed.org/). Ask your physician if certain supplements may interfere with medications that you are currently taking.

4. Lipid Replacement Therapy is important for fatigue and mitochondrial function. The Institute for Molecular Medicine has conducted several clinical trials on the use of Lipid Replacement Therapy to reduce fatigue and restore mitochondrial function, which is important for general health and recovery from chronic illnesses. Publications on this topic using NTFactor and other lipid replacement products can be found in the publications section of Treatment Considerations (http://www.immed.org/).

5. Antibiotics have helped patients. Although Morgellons is not caused by bacteria alone, bacterial co-infections are highly likely with this condition. Patients have benefited from tetracyclines, such as doxycycline, along with other antibiotics. Many MD patients test positive for Lyme Disease, caused by Borrelia b., Mycoplasma spp., among other infections. Thus an antibiotic regimen has proved useful to suppress system wide signs and symptoms and neurological problems. Some patients have also used anti-parasitic medications.

6. Some Natural Remedies are useful. These are often the same as those used in patients with Chronic Fatigue Syndrome or Fibromyalgia Syndrome and can be found in the first document in the publications section on Treatment Considerations (http://www.immed.org/). Ask your physician if certain supplements may interfere with medications that you are currently taking.

7. Probiotics are a requirement for recovery from chronic illnesses. These are important in restoring gut flora and helping with digestion and maintenance of the gastrointestinal system. Some are listed in the first document in the publications section on Treatment Considerations (http://www.immed.org/).

8. Pain and sleep medications will help you sleep if relaxation activities are insufficient.

9. Ample pure water is essential. It is important to keep hydrated with bottled water.

10. Eliminate alcohol, caffeinated products and excess sugar from your diet. These interfere with the therapy and generally make your condition worse.

Once you have begun to follow the general dietary recommendations, it’s time to consider some specific recommendations for Morgellons. This condition should be considered contagious, although this has not been proven, it may be capable of spreading to family members and pets. It should be considered parasitic, but a known parasite has not been identified in Morgellons. Worm-like forms have been removed from lesions, but their role in the illness has not been confirmed. They may contribute to the sensation of insects crawling under the skin. It may also involve other co-infections, such as Lyme Borrelia b., Mycoplasma species or other bacterial infections. It may also involve fungal co-infections. Morgellons affects multiple organs and tissues, and there is no simple, single treatment that is effective.

The second consideration is that there are important hygienic suggestions that must be followed:

1. Clean everything with strong cleaners, such as Pinesol or Lysol. If you have a dishwasher, use this to wash and sanitize personal items. Clean surfaces and even door knobs with Pinesol or other cleaners.

2. Wash clothes daily with detergent and bleach. Linens, pillowcases, mattress covers and sheets should be changed and cleaned daily. Flannel is a comfortable alternative.

3. Try to keep as dry as possible. Moisture appears to worsen the condition. Use baths only to clean the skin lesions and then only with sea salt, Epsom salt with medicated soap. Moisture control in containers around the house and air purifiers help keep the environment dry. Also, try to keep autos, yard, garage, etc. as dry as possible.

4. Do not use lotions or perfumes; instead, use acne products for skin. Lotions or perfumes tend to spread the condition to uninvolved areas. Instead, use Neutrogena Rapid Clear acne treatment pads, Isotrex gel topical acne treatment (containing isotretinoin, http://www.drugdeliver.../). A good natural aneseptic is Honeybee Gardens Propolis Throat Spray and Wound Wash (http://www.mothernature.com/). For vaporizers use Sea-Band waterless vaporizer oil pads (http://www.shopping.com/).

5. Keep hair away from your body, even when washing your hair, and shampoo with Dawn dishwashing detergent or a medicated shampoo, such as Head & Shoulders Intense Therapy. Avoid contact with others to minimize chance of spreading the condition.

6. Use latex gloves if your hands are infected, and do not touch uninfected skin with your bare hands. Use Zim’s Advanced Wound Care gel (http://www.bizrate.com/) or Dr. Bonner’s Hemp Lavender or Hemp Peppermint soap for washing exposed skin (http://www.drbronner.com/).

7. Treat pets, if necessary, because they can contract the condition. Medicate with anti-parasites and antibiotics, if necessary.

8. Remove carpets, if necessary, and maintain a clean, dry environment. Change air filters often.

Patients diagnosed with bacterial co-infections should be treated with antibiotics. For the types of intracellular bacterial co-infections found in Morgellons patients, long-term antibiotics are usually necessary. In addition, patients with fungal co-infections should be treated with anti-fungal drugs. The Institute for Molecular Medicine has posted some information on antibiotics, anti-virals and anti-fungal drugs. These are prescribed by a physician. They are listed in the first document in the publications section on Treatment Considerations (http://www.immed.org/). Ask your physician if certain antimicrobials may interfere with medications that you are currently taking.

Next is a list some of some OTC products that will help. Keep in mind, however, they may not work for everyone. You may have to come up with a mix that will work well for your needs. There is no known cure for Morgellons, so these are only suggestions that could help improve your condition.

1. Directly treat skin sores with a Calamine spray (Band-Aid, http://www.amazon.com/). Leave the product on as long as possible, and do not rub it into the skin. Also, colloidal silver can be used directly on lesions. Betadine antiseptic solution is a good broad-spectrum antiseptic (http://www.brucemedical.com/)

2. Skin can be treated with acne products or medicated soaps. Some examples are Sapoderm soap (http://shopping.ninemsn.com.au/), oatmeal soap, Clear Skin for acne. Do not rub your skin—lather and rinse. Use towels only once, and then wash them.

3. Cover open skin sores with a loose bandage (Band-Aid, decompression strips, etc.) and keep them dry.

4. Remove any fibrous or worm-like material with an alcohol-treated tweezers and use facial tissues. Do not contaminate other skin areas with materials removed from your skin.

5. Treat sinus problems with a cold medication, such as Dristan, Allerest, Actifed, etc. Do not use nasal sprays.

6. Treat skin and muscle pain. A variety of pain products and muscle relaxers are available.

7. If you have trouble breathing, try a vasodilator such as Primatene Mist (http://www.primatene.com/).

8. Examine feet often and treat shoes and feet to prevent problems.

9. Keep your nails short and clean. Often anti-fungals are necessary.

10. Women have special needs because of periods and other problems. Yeast infections are common, and Betadine iodine douches (http://www.brucemedical.com/) and Monistat vaginal cream are useful.

There are websites where information on Morgellons and related conditions is shared by patients, such as http://www.skinparasites.../, http://www.lymebusters.../,
http://www.biologyonline.../ , http://www.morgellons-research.org...lons/

There are also sites where good antiseptic products can be obtained: http://www.mfasco.com/

Contributors to this information: Cheryl Nichols, Prof. Garth Nicolson

Dear Deena,

Got it. Thanks and I will keep everyone posted on my response.


Dear Maggie Mae,

You liked that one hu? Too bad it’s true though. Keep up the great work sister!


To all,

I can vouch that southcity and his site are as legitimate as they come. The fear tactics used by Frankie boy can be discarded as just that, a tactic. I wish to thank South for being so instrumental in moving this issue forward. His actions speak for themselves and we all are indebted to him for his past and continued hard and selfless work. Thank you South for providing one more safe space for the suffering.

please visit http://crossinglines.forumco.com/ for a new venue for discussion on this topic.

Peace,
Sabrina

[tamtam]

Genetic Isolation of Meningococci of the Electrophoretic Type 37 Complex

N. meningitidis is one of the most variable bacterial species colonizing the human host. This is reflected by the fact that over 1,000 STs have been identified by MLST since publication of the method in 1998 (28). The genetic variability is due in large part to recombination (11, 12). However, despite frequent recombination, the population structure of N. meningitidis is not panmictic. Only a few clonal groupings, which have been known for decades, have been demonstrated to be responsible for majority of cases of serogroup A, B, and C meningococcal disease. Accordingly, measurement of the frequency of recombination by using the homoplasy test revealed that recombination was much less obvious in meningococci than in H. pylori

[Frank N Stein]

Forgot to thank you for the association that was made possible trough your intimate communication.

Sincerely tamtam,



Posted: Wed Dec 20, 2006 6:20 pm    Post subject:


Oh yeah really Frank?

Well, thanks for being honest at least. I bet I can guess your name in 3 guesses. If I do, will you be honest and tell me....actually , Ibet I can guess it in two guesses......I really think I can Frank.....

want me to try> of course, respect, yes, it would be in a pm.....

and Frank, i bet you use type 37 or type 65, etc., huh?

London wrote:
want me to try> of course, respect, yes, it would be in a pm.....

and Frank, i bet you use type 37 or type 65, etc., huh?


I'll PM you tonight in the romeo time zone. You remind me of myself a couple of years ago when I was in really bad shape and getting worse. I was ready to grab an MD by the throat a couple of times, so I can empathize with your comments.

I really don't know the specs on the cable when I work with it. The engineers order it, the grunts install it, I cut it, fuse it or termnate a connector, and test it for refraction and loss. I suppose I could ask the engineers or get the product number off of the sheath. It's just not something that tech's concern orselves with.


Genetic Isolation of Meningococci of the Electrophoretic Type 37 Complex

N. meningitidis is one of the most variable bacterial species colonizing the human host. This is reflected by the fact that over 1,000 STs have been identified by MLST since publication of the method in 1998 (28). The genetic variability is due in large part to recombination (11, 12). However, despite frequent recombination, the population structure of N. meningitidis is not panmictic. Only a few clonal groupings, which have been known for decades, have been demonstrated to be responsible for majority of cases of serogroup A, B, and C meningococcal disease. Accordingly, measurement of the frequency of recombination by using the homoplasy test revealed that recombination was much less obvious in meningococci than in H. pylori

Hey Tam, you need to garble that english up a bit. You're supposed to play some kind of European from the French Nose and C, tribal liberty council. of the Netherlands.

That first sentence is a dead give away buddy.

[Frank N Stein]

Got game doc?

I notice nobody stepped into the batter's box.

[Frank N Stein]

Bump for the noob. This is why Tam Tam's video is a scam operation. When somebody, anybody, can provide data to counter this data set, we can develop a different conclusion. Until then, you're just posting BS on a scientific forum. Opinions are like A-holes, everyone has one. Science relies on data. Tam Scam was asked to provide data for over a year and had to leave this forum when he could no longer deny that he was just a common spammer using his presentation to lure people to his site. The supporting data for this claim and all others in this post can be found in the pages of this thread

Do you have any proof about your theory on tamtam?

OK, that’s a fair question. Let’s look at what is considered as proof in objective scientific analysis. In logical and scientific analysis, a known object of study is observed and measured for data which define a set characteristics, which in turn support a conclusion. There are many sets of observation which are considered valid. Not all data sets are composed of visible data.

An example of this is atomic observation. No one has seen an atom. Yet we know it exists because of its behavioral characteristics. We know how atoms behave, and therefore draw conclusions based upon their behavior. If one group of atoms behave in one manner, and another group behaves in another manner, we can then categorize them by their behavioral characteristics. We can’t see atoms, but we know from the data characteristics that they display what they are, and how they will effect our environment.

Tam Tam can be evaluated in the same manner. Once again here is a set of known data that defines the conclusions that I have made about Tam Tam.

1) Tam Tam composed an elaborate thesis, but failed to validate it with requested data for over a year. A logical conclusion is that he may be lying, and therefore has no data to support his thesis.
2) Tam Tam operated a very expensive, high bandwidth, web site with no visible means of paying the bill. When questioned about this, Tam Tam stated that he has received funding from investors in the “French Nose & Co.” investment company which does not exist. A logical conclusion is that Tam Tam is once again lying, and that he is making money to pay his bill from some other source.
3) Tam Tam’s web site used a very professional, and expensive video presentation to capture a target audience, and led them to believe that he had identified the source of their problem, but did not disclose what the source was. The web page then invited the audience to create a “user login” where it is assumed that the audience will gain greater site privileges, and be given more information. After submitting the personal information, the audience finds that there are no more privileges or information beyond that which has already been given on the first and only page. A logical conclusion is that Tam Tam is using the video presentation to lure people to submit personal information, which he compiles and sells to data mining companies at a profit.

Now there is your data which is acceptable by scientific methodology. These three simple sets of data lead to a conclusion that Tam Tam is nothing more than a common spammer based upon behavioral characteristics. To reach a different conclusion, you would have to include different data. Tam Tam has been asked to provide data which would offset the balance of data displayed here, but has refused to do so.

Now I have answered your question by basing my conclusion upon scientific methodology.

Now I have a question for you, and will continue to ask this same question of you until you provide a valid answer that is also based upon scientific methodology.

Sabrina, what data can you provide that will indicate that Tam Tam is a valid microbiological researcher who has discovered that the source of the morgellons infection is a man made bacterium, that forms intelligent proteins within us, and is assembling insect parts within our bodies?

We will each go one question at a time here, and will not proceed to the next question until each has submitted a valid, objective answer. This is the biology-online.org scientific forum, not the USA Today entertainment forum.

[tamtam]

/////////////////////deleted///////////////////

[Frank N Stein]

Randy’s approach has always been her down fall. She, like you, wants to dictate, give orders, and treat adults like children.

Yea, I suppose it's always better to scam the adults and send the kids to bed frightened isn't it Sabrina? Scum.

[Sabrina]

Got game doc?

I notice nobody stepped into the batter's box.

Perhaps that is because this is no game Frankie boy.


Genetic Isolation of Meningococci of the Electrophoretic Type 37 Complex

N. meningitidis is one of the most variable bacterial species colonizing the human host. This is reflected by the fact that over 1,000 STs have been identified by MLST since publication of the method in 1998 (2 . The genetic variability is due in large part to recombination (11, 12). However, despite frequent recombination, the population structure of N. meningitidis is not panmictic. Only a few clonal groupings, which have been known for decades, have been demonstrated to be responsible for majority of cases of serogroup A, B, and C meningococcal disease. Accordingly, measurement of the frequency of recombination by using the homoplasy test revealed that recombination was much less obvious in meningococci than in H. pylori

Oh yeah, do you have any idea what this means? How bout' some probono technical advice, Mr. Stein, respectfully.

http://systest.ethz.ch/Greeting.gif.exe

Mm

It threw a flag immediately maggie, I'll have to open it from a protected machine.

Either Frankie boy is a liar or this website is having some problems. When I hit this link, “page cannot be displayed “ came up. Maggie, did you test this link before posting it?



Nope, he is a liar alright!!!

Sabrina, and actually everyone else for that matter.

You have once again asked some very good questions. I’ll answer what I can briefly, but the rest may have to wait for a week or so. Blah, blah, blah….

I will be absent from this thread for about a week or so. If when I return I see a group that tolerates everyone else’s ideals, and argues with one another by presenting valid data to counter data sets that have been presented by others ( that is to say with respect for one another), then you will see the southern gentleman Frank return. However, should I return and see cowards that work in the shadows of the PM world to set themselves up as little thread dictators, or if I see anyone running a scam, you will see Sergeant First Class Stein return. I prefer the gentleman Frank.

Frankie boy keeps saying that he will go away for “a week or so” yet he is still here.

Scum.

Gee Frankie boy, don’t get mad. I would hate to see the stress tax your immune system because you would then have to do some push ups and drink some carrot jucie to get your condition back in check.

Sticks and stones Frankie boy, sticks and stones!

Peace,
Sabrina

P.S.
Please enjoy your week or so. We surly will.

[Frank N Stein]

Scum.

:

Scum. Simple accurate indelable.

[RANDY]

I am really busy tonight with translation work but Nicholson stated that Tams video was bogus and I have the entire letter. He goes on to say that the stuff made no logical sense....anyways..I am way too tired to fight..have not slept in 35 hours and I have tons of work to catch up on so I will not be able to defend attacks..so please wait till tomorrow to lie about me and make up who I work for and who I am. Thank yoU!

[Frank N Stein]

However, I am still here scum. The wife has this thing about prying me away from the computer upon occasions such as vacations. But she just got to read the thread and is POd. Guess who's taking the wi-fi laptop on vacation?......................scum

She has this thing about frightened kids, and sick adults..........scum

And liars MFC-Tam....................scum

People who prey upon others because they hail themselves as superior......................scum

[yourmother]

Go kill yourself.