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The Fiber Disease

Human Anatomy, Physiology, and Medicine. Anything human!

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Postby Sabrina » Mon Jun 12, 2006 6:17 pm

Dear London,

I tried to PM you the links you have been asking me for but could not get it to work, so here they are. Sorry it took so long to send them to you but, you would not have believed me at the time.

http://www.aclu.org/thespieshaveit/

http://apnews.excite.com/article/200606 ... PMF80.html


Cilla,

What can this organization do for an American? If our own government will not help us what makes you think that an international plea will help our cause and get the issues investigated? I hope they do take this seriously and I will ask them to do this. I will keep my fingers crossed.

http://www.ecdc.eu.int/


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Postby RANDY » Mon Jun 12, 2006 6:38 pm

You have been told this, and yet, you, Randy, make things up, after being clearly told more than once what was said. Everyone, look up the original posts between Tam tam and Dr Schwartz.

Yet, still you persist, Randy, in saying things like the drug information is 'second hand, or came from Dr Schwartz'. It is impossible to have a debate with someone who makes things up, and the stakes are furthermore far too high.

Cilla,

Do not tell me about any stakes darling..you do not have this disease. So you have no right to talk about any stakes in anything. The only stake you have is located..well never mind.

Anyways.. go ahead all those that will not even give their real names...go ahead and reveal yourself to this organization with a claim you can not understand. In fact..let us take a vote...who will do this...here is my vote NO WAY.

Go ahead any of you who have been total jerks to me..show me the letter you are sending and others can copy it and send it out too. Who is first? Any takers? Don;t be shy. This could save us all!

See..when pressed for reality..no one shows up. This has been my point all along. This is a game being played.

When the going gets tough the tought get going..where is Tam when he could represent all of you? No where to be found...and after you showed his video to anyone with a computer..Where is he now? He will not go the distance for you after all you ahve done for him...for shame.

Wymore, in the letter he sent to me will talk to anyone and everyone for us. If Tam is real..he would too. "Oh so bllind those that will not see."

You are telling lies Cilla. I am sorry but I can not have anyone believe you and I must speak out here.

All posts on this forum came through me from Dr Schwartz. All the drugs listed that you say Tam said to use came from other sources. Most of them do not work.

I am 90% better with 3 months of an anti-biotic, anti-fungal then anti-parasitic. The Dr Schwatz;s Avelox, Septra and then his second protocol. None of this was Tams idea. NONE of it.

I am not jealous I am pissed when someone taked crdit that does not belong to them. Just like naming a disease before it is discovered. These thing piss me off because they are WRONG! Not because I am jealous of stupid moves by people.

You are making things up Cilla, not me. There are no post between Tam and Dr Schwartz. Dr Schwartz gave Grace the notes and I posted them. No conversation ever went on between Schwartz and Tam..EVER. Tam never called Schwartz although he asked him to time and time again.

And no one on this site has any idea what the video means nor can they defend it to an organizatin that will ask specific questions.

Why don't you ask your Doctor friend that is watching this site to speak in the behalf of Befour and Hartuk and all? Who is going to be the voice here..South? Anyone takers?

Who will put their ARSE on the line for Tam now? Anyone?

So the only person with true knowledge of what is happening since Wynmore does not agree with Tam nor does anyone I know, is Tam himself.

Let him place his life on the line by acting in our behalf. Why should any of us place our lives on the line to be made a fool of?

They all passed his video around..now let him defend his thesis. I never heard of anyone defending another thesis..have you? That is just silly.

Really Janet do you so badly need another book?

Also ..what scientist makes a film with a movie intro and movie fades? Think about that one will ya?
Have you ever seen dosumentaries made by scientists???? This one was made by a film producer not a scientist.

Who want to be the person in the movie script that calls the above organization? CAST CALL!

And why are you so up his tushy Cilla.....???????? I though you did not know him? Yeah, right.

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Postby Cilla » Mon Jun 12, 2006 6:53 pm

Hi Sabrina,

I know that it might seem like a long shot for an American, but, if you were to pose the questions that I suggested to the ECDC, viz. along the lines of, does such research take place, could the eventuality of a stray target arise, (explain what Tam tam meant by the term, relate it to this high containment level 3 or above research), could this affect the health of individuals affected by it, have they ever heard of such a possibility, (very direct questions, and state that you definitely want answers to each and all of them), I do think that there is a very good chance that they will give you truthful answers.

Look at it this way, Sabrina. You know that you have something weird. I have not forgotten the feathers! And I am worried about your child, as I know that you must be, obviously so. Therefore, it is worth writing. If the ECDC do know anything about this being possible, surely they will make use of their links with the CDC. It will surely get balls rolling.

I also think that people have to make up their minds about what it is they want. Certainly, if this is all true, you have been greatly wronged. However, you might prefer to be pragmatic and state all you want is the best treatment to be made available, and even better ones to be researched, rather than to pursue litigation. On the other hand, you might think that this is the best way to proceed, but remember that you are up against, (so it would seem) so many rich companies or industry. I just do not know. Maybe, if I were you, I'd just demand the treatment, but make a threat of litigation if this is not provided forthwith. If the ECDC do know of the real hypothetical risk of this research, and do not answer your demands truthfully, they themselves could possibly be sued at a later date. Obviously, sufferers within the European Union should most definitely write. Write the letters in such a way that you might possibly have evidence that they do know about this. That is the way lawyers pose questions on behalf of clients to industry. Industry does not know what cards the questioner actually holds, but, if they lie, they will be caught out.

You may never find out who, or what country was responsible for the leak or release, if this is indeed what happened. That is a different fight. This one is the fight to get them to admit it is possible, they know of such a research-related risk, and (if they want to avoid further legal action), to admit this, so as to get yourselves treatment. If the ECDC, because of the terms of the legislation, are forced to admit the probable cause of this condition, the CDC would have to do likewise.

Alternatively, organise yourselves, and club together to pay a lawyer who is a specialist in European law to fight the case for you all. Or do this a bit later. It is hard to advise when it is your lives, and I do not know what you all want. Maybe just write the letters in the first instance.

I do not know if those who live in the UK are willing to do this or not. They could also contact the health and Safety Executive, newspapers, MP's, or do this a little later.

At least if you write, there is a good chance that you will receive the proper treatment. Somebody has to let the doctors know about this, bevause they do not at present.
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Postby RANDY » Mon Jun 12, 2006 7:04 pm

And on quick thing..before I go on vacation.... I found Per Daniel Bell Van Eedens web site which revealed for all to see that he was a computer kid and not a scientist.

Everyone made fun of me..saying OH YOU FOUND ONE PERSON WITH HIS NAME AND YOU THINK IT IS HIM..but yet..the following week the site was removed and most things assoicated with his name on the net can now not be found.

Why is that? I reveal who I think he is and his web site is removed the following week.

That is all..now everyone write to this organizaton.



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Postby Cilla » Mon Jun 12, 2006 7:15 pm

Randy,

Tam tam and Dr Schwartz did have a short discussion on this site. Tam tam did mention another drug. I am not repeating myself again to you, because you do not listen, and you twist around, which is not the way to conduct a basic logical argument.

My doctor friend does not 'watch' the site, insofar as I know. He listens politely when I mention snippets to him, and sometimes he is almost convinced that there is something new here, but I do not think he is completely persuaded yet. If he could believe the feathers, he would be, but it is difficult.

I have every right to care about the high stakes if I want to. You do not have to suffer from something to care.

I really do not know why you are so aggressive in your argument. I never said that you were the jealous type.

You have no right to circumvent the line of help I am advising here. If you do not wish to write to the ECDC, then don't, but please stop clouding the issues.

It is not Tam tam's role to act as your direct advocate. People have to write their own letters, and, I would advise, not a 'cloned' one, if you will excuse the pun. Certain issues must be directly raised, but they should all have their individual stamp, in my opinion.

No-one is under any obligation to tell you their name or country of birth. This is not your site.

I do not know what a tushy is, so have no idea what you might mean. I do think that Tam tam is a real hero, though, and so should each and every one of you. I wish that I did know him. Who told you that he has a PhD? I am sure that he has, but do not remember reading this information.

In the future, I do think that all of this would make a good film, as the themes within the whole story are truly remarkable. Tam tam as the hero, along with Dr Schwartz, and all of the other characters involved.

In the future, it will be seen as so obvious that these great men were right, just like the chap who had to take decisive steps to deal with the water pump in London so long ago that was causing the cholera, because no-one would believe him.

They also used to think that malaria was caused by bad air.

Even you would have a big role in the film, because, no matter what else, you are a character and a bit of a riot. That is not an insult, by the way, in England it means that you are a bit outrageous, but entertaining.

However, stop persuading people not to write the letters to the ECDC, I implore you.
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Postby Cilla » Mon Jun 12, 2006 7:17 pm

Where are you off to on vacation, Randy? I hope that you have a nice time, and I also hope that your mother is keeping a bit better.
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Postby standby » Mon Jun 12, 2006 7:50 pm

RANDY wrote:
I found xxx xxx xxxxx web site which revealed for all to see that he was a computer kid and not a scientist.

randy


First ... What gives you the right to reveal anyones personal information and remove their anonymity which is their chosen right. You consistantly do this. Just because you claim to suffer does not give you that right.

Second when attempting to discredit someone by any means your info is more innacurate than correct. In this instance above ....... again you are innacurarte and completely unvarifiable.

By the way Tam never claimed to be a scientist ever. He may speak as if he is knowledgable enough ... but knowledge does not make him a scientist.

Did you even consider whoever it was that removed their site (if they really did remove or remove it because of you) did it simply because you openly, outwordly associated them with something they might not have been involved with. Again claiming to be a sufferer does not give you the right to unjustly expose.

You also stated Tam was a sociopath. Another totaly innacurate statement. Look up the definition of sociopath. Maybe you can learn something.
Last edited by standby on Mon Jun 12, 2006 10:25 pm, edited 1 time in total.
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Postby Barz » Mon Jun 12, 2006 8:38 pm

Mods, She (RANDY) is insulting everyone. Please confront this issue before our forum becomes locked once again. This type of behavior should not be allowed. We are all not NIMRODS (pg 201).
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Postby canalon » Mon Jun 12, 2006 9:36 pm

Barz wrote:Mods, She (RANDY) is insulting everyone. Please confront this issue before our forum becomes locked once again. This type of behavior should not be allowed. We are all not NIMRODS (pg 201).


Well Randy has been warned, as you have ALL been about the rules of posting which could be in short RESPECT.

But in this particular case, I have to admit that except if I miss a particular definition of Nimrod (please give a pointer, in PM if it is offensive) I do not find this exactly insulting. Puzzling maybe, but not insulting.
As a side, not should I say that I find really puzling people complaining about breaching the anonimity of Tamtam by quoting his name, just in case I think someone had missed it in the first post I suppose?
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Postby ukguy » Mon Jun 12, 2006 9:51 pm

Randy

Here we go yet again.

That was sorted a long time ago. That DV Eeden
has nothing to do with TamTam. The web site you
claim has disappeared IS STILL THERE with axactly
the same information it had on there before: the
guy is a talented Linux systems Administrator.
Not the drug crazed individual you tried to portray
him as before. It took me maybe 5 seconds to find
his site....so this big cover up you talk about did
not happen because, well guess what...you are
incorrect.

You're going over the same ground here Randy.
causing unrest and spamming this thread.

How many people have you now accused of
something and then been proved wrong?

You said Dr Wymore had his licence revoked. That
was totally wrong and I can only presume you
didn't bother to check, well any facts before posting
that. You should count yourself lucky that Dr
Wymore is so understanding.

The DV Eeden you branded a drug addict because
he was a computer 'geek' and had dreadlocks?
Woefully incorrect.

That doesn't really sit well with your 'scientific approach' does it Randy?

We ask..we see where it is written, we check that out..we are as a culture, scientist.


Your words Randy.

Randy, you've posted some great information here in the past.
I just don't understand why you act like this continually.

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Postby standby » Mon Jun 12, 2006 10:22 pm

Canalon wrote:
As a side, not should I say that I find really puzling people complaining about breaching the anonimity of Tamtam by quoting his name, just in case I think someone had missed it in the first post I suppose?


Canalon,

Agree, I acted hastily and did not realize my own action when I included the gentlemans name in my post. I apologise and understand why it puzzled you.
With all do respect I removed his name from my post. Thankyou for pointing that out.

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Postby Sabrina » Mon Jun 12, 2006 11:17 pm

RANDY wrote:

Do not tell me about any stakes darling..you do not have this disease. So you have no right to talk about any stakes in anything.


Anyways.. go ahead all those that will not even give their real names...go ahead and reveal yourself to this organization with a claim you can not understand.


Who is first? Any takers? Don't be shy. This could save us all!

See..when pressed for reality..no one shows up. This has been my point all along. This is a game being played.

When the going gets tough the tought get going..where is Tam when he could represent all of you? No where to be found...and after you showed his video to anyone with a computer..Where is he now? He will not go the distance for you after all you have done for him...for shame.

Wymore, in the letter he sent to me will talk to anyone and everyone for us. If Tam is real..he would too. "Oh so blind those that will not see."

You are telling lies Cilla. I am sorry but I can not have anyone believe you and I must speak out here.


I am not jealous I am pissed when someone has taken credit for that which does not belong to them. Just like naming a disease before it is discovered. These thing piss me off because they are WRONG! Not because I am jealous of stupid moves by people.


And no one on this site has any idea what the video means nor can they defend it to an organizatin that will ask specific questions.

Who will put their ARSE on the line for Tam now? Anyone?

So the only person with true knowledge of what is happening since Dr. Wymore does not agree with Tam nor does anyone I know, is Tam himself.

Let him place his life on the line by acting in our behalf. Why should any of us place our lives on the line to be made a fool of?

Really Janet do you so badly need another book?

Also ..what scientist makes a film with a movie intro and movie fades? Think about that one will ya?

Have you ever seen dosumentaries made by scientists???? This one was made by a film producer not a scientist.


Randy


Dear Randy,

Where do I begin?

First of all we really need to welcome everyone regardless if they are infected or not.

Yes, Cilla has a stake in all of this. It’s contagious and spreading around everywhere and nobody has a clue as to how to protect themselves or their loved ones. It’s an everybody disease as Tamtam has implied. Surly you know this to be true. We all have a stake in this.

I can understand that video and what tamtam has tried to convey to all of us. I see you tried too on page 48. Perhaps you could ask some questions to clear it up for you. In other words, what don’t you get? I will try to explain what conclusion I have come to if you ask a question.

I have no intentions of saving anyone but my family and myself and if writing letters is involved then so be it. I will be first. What else can I do? Sit around and wait for somebody to suddenly get it and start treating us? I can’t sit around and wait for that Randy, I can’t.

So, all of that stuff on your website about not contacting the CDC or letting your doctor know what is going on is IMO, the worst thing any sufferer can do. We must have a voice and be heard as way too many of us go by undetected in the first place. Each one of us represents thousands of people who are infected, clueless, and do not know what they have and have doctors that do not know either.

Now this stuff about Tamtam representing us and trying to shame him for some reason is very unfair! As far as I can see he has done nothing but tries to help and has taken a whole lot of heat for it too. After what I have experienced it is in everyone’s best interest to remain as anonymous as possible for good reason.

Randy, in his video, and because of his theory I have been able to identify some specimens that fit almost everything he says exactly. I cannot deny my own eyes and logically I see no other explanation that could be plausible. Can you rule this theory out?

And the time frame fits, just like I said before. What was it Tam, 1978? Even though an alleged release happened in 2000, it is possible to have had this years before. Search the thread for this info. If you need help finding it please ask.

About Dr. Wymore…… I am beginning to get annoyed that few people address him properly. He is a doctor and deserves the title. He seems like a creditable professional that is very sincere in trying to help us. I so wish he had the resources he needed to help his work.

His letter to take to our doctors is a double edged sword IMO. People really are blind, we don’t have Morgellons. Why is this disease being called something that it clearly cannot be?

Snip
“The disease is named after a medical condition described in 1674 by the British author Thomas Browne. Known as "Morgellons," Browne said the disorder caused children to "critically break out with harsh hairs on their backs..." The Morgellons Research Foundation says that it is doubtful that the 17th century disease is related in any way to modern day Morgellons.”
Snip

http://news.yahoo.com/s/space/20060526/ ... aaRbqs0NUE

This could be causing us more harm than good. I share your anger Randy!!!!


All this talk about a movie, what can one say? Probably my fault from day one and page one. I never meant it literally!!! It is sooooo like a movie I cannot even begin to explain it and in all honesty I hope they go for it! No doubt it would be a box office smash! Do we get royalties because I could really use some cash for meds and all the other garbage you have to purchase to attempt to keep it under control?



Dear Cilla,

What do I want? I have a big list! :D


Peace,
Sabrina
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