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The Fiber Disease

Human Anatomy, Physiology, and Medicine. Anything human!

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Postby RANDY » Mon Aug 07, 2006 8:57 pm

We are working on translating the English version. You have to be able to read German to read this site or have the program translated by Google but it does not do a very good job.

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Postby SarahConnor » Mon Aug 07, 2006 9:22 pm

Randy - I have done all I can do from this end (Australia). The Victorian Health Department told me they can do NOTHING until the CDC in the USA declares "Morgellons" a REAL disease.

I have emailed the CDC 3 times. I refuse to phone them because it is costing me money.

Money I DO NOT have.

I am done with writing letters - NO ONE REPLIES to them.

If people follow your personal advice - they WILL go CRAZY - their family will turn againist them and so will everyone in society.

Can you not see how all this so called hard work and doing the right thing spirals one into Suicidal ideation, further suffering and closer to dying from misery!

How dare you put up a link with reference to Good and Evil and an unknown skin disease. I refuse to even look at it. You bastards won't kill me off - no matter how hard you try.

From my persepective - you obviouisly don't even think I am REALLY suffering because you make no reference in your last post as to my state of health or even a simple "SORRY" for your suffering. Two other posts sent me good wishes but NOT you.

I will let the readers think about that one.

Randy - can you not see that your "rantings" are calls for help through your own desperation. I am assuming that you do have this disease and you are suffering?
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Postby SarahConnor » Mon Aug 07, 2006 9:45 pm

In reply to an earlier question - Why did I get banned from Lymebusters?

I received an email message from"Kerry" to say Banned from Lymebusters - "I hope you find some help over at MorgellonsWatch".

My sway on this - I spilled my guts over at MorgellonsWatch about my communication with the MRF which is what I know.

I first went to MorgellonsWatch because Mary L from the MRF told me about it and the hurtful things they were saying about her and her children, well naturally me being a human being tried to step in and help her and her kids.

MorgellonsWatch was tough going and I had to get away. So I decided to go over to Lymebusters to keep "Fighting the Good Fight" and find some more treatment options and Alternative Medicine - because I never used to post at all.

Neither worked for me - I was caught in the crossfire - arrogance and arguments of what appeared to me to be intelligent and well educated people on their own HIDDEN AGENDA.

I sent personal messages to the Psychologist on Lymebusters asking for some help and saying I needed to talk. Even one of the LB members told me to contact her. Well I am still waiting for her to contact ME.

Yesterday I clicked on the Lymebusters link from the Google Search and it took me straight to the Lymebusters forum - but there was a message there saying I had been banned. I couldn't even log in as a guest.

I went to the Trevor Marshall Website and sent him a personal message telling him my situation. Current treatment for Chronic Rickettsisos and also suffering Morgellons Syndrome. Told him my doc was trying to follow his regime, but he could not put me on BENICAR because my blood pressure was already 90/50. Could he help me out?

His reply was filled with ARROGANCE. He asked me to post my request to him on the message board forums, and he has been asked "that question" so many times - so please contact so and so and then they will point you in such and such direction.

All of this sent me into Suicidal Ideation - now do you REALLY THINK any of this is FAIR???!!!
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Postby SarahConnor » Mon Aug 07, 2006 10:14 pm

Well people - someone has roped us ALL in to make us sicker and look like fools.

All is quiet at MorgellonsWatch.

I can't even log in as a guest at Lymebusters. (not that I would want to).

All is quiet at the Morgellons Group Support Forum. Only recent post is from Cliff Michellson and he is supposed to be away for a few days?

All is quiet at MorphBorg fourm.

All seems to be rather quiet at Biology online.

I hope all you so called "do gooders" chock on your money and greed.
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Postby SarahConnor » Tue Aug 08, 2006 12:22 am

I have been banned from Lymebusters via my IP Computer address.
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Postby RANDY » Tue Aug 08, 2006 12:32 am

http://www.cbsnews.com/stories/2004/02/ ... 7751.shtml

Please read this article. Print it out and keep it for future reference.

Thank you

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Postby SarahConnor » Tue Aug 08, 2006 4:15 am

Dear People - inbetween reading your little articles can you please click on the link below.

http://www.cherokeechas.com/

Dr R.Wymore Scientist - Oklohoma State University.

This is where reseearch is taking place - not on the internet.

OSU is where we need time and money.
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Postby London » Tue Aug 08, 2006 6:56 am

Mike, (New Poster) thanks for your post. It was refreshing and contained great hyperlinks. And, you hit the nail on the head when you talked of synthetic insects.

Sara, I'm sorry you are so ill. I just do not know what else to say. I will keep you in my thoughts. Also, I saw in one of your post where you mentioned HIV. Does some of our symptoms not just mirror HIV? Take a look....


SYSTEMIC DISEASES
Cytomegalovirus Retinitis
DERMATOLOGIC DISEASE
Candida
Viral Infections
Folliculitis
Kaposi's Sarcoma
Bacillary Angiomatosis
Toxoplasmosis
Cryptococcal Meningitis
Progressive Multifocal Leukoencephalopathy
Central Nervous System Lymphoma
Non-Hodgkin's Lymphoma
Mycobacterium avium Complex
Tuberculosis
also, if ones cd4 count drops below 50 they are at increased risk for getiing:pseudomonas pneumonia, CMV retinitis, CNS lymphoma, aspergillosis, and histoplasmosis


I had a Doctor from UTSouthwetsern Dallas tell me on the phone the other day that Lupus could possibly effect a proper cd4 cell count reading and people should ask for the blood test that measures there viral load.

Again, one should take another look at the Bartonella….pretty soon they will not only say that it is from
The feline / cat but that it is in cattle, ducks, birds….just watch and see.

SABRINA, HEEEELLLLLLOOOOOOOOOOO are you okay? You are missed,ya know?!
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Postby Sabrina » Tue Aug 08, 2006 9:25 am

London wrote:SABRINA, HEEEELLLLLLOOOOOOOOOOO are you okay? You are missed,ya know?!


You called? Here I am, I have missed you all too.

Sorry so late in posting and updating but I have been doing wonderful lately and seem to be getting it together quit nicely in my personal life.

So, it has been a year and a day since I started this thread. We should reflect on what has been discussed here and what has been beneficial. :idea:

Here is the response I received from the CDC as promised.


“Centers for Disease Control and Prevention
Atlanta GA 33033


Dear Ms. ///////

Your e-mail to the National Institutes of Health regarding the condition some refer to as ‘Morgellons’ was referred to the Center for Disease Control and Prevention (CDC) for appropriate response. I am sorry to learn of you and your child’s difficulties. Please excuse the delay of this response.

CDC shares your concerns because affected persons are clearly suffering. However, CDC scientists currently have insufficient information to determine whether persons who identify themselves as having Morgellons have a single cause for their symptoms or what the risk factor(s) or possible control measures are for their condition.

Given the current limited knowledge of the condition, CDC is forming a multi-specialty internal working group, consisting of medical experts in environmental health, chronic diseases, infectious diseases, and mental health, to first define this condition. The working group will review available data to help us understand this pattern of illness or syndrome. Our aim is to gather information on people reporting this condition to see if they share common traits, experiences, or anything that might have put them at risk for these symptoms. At this time, the methods for information gathering are still being defined including methods for collection of any samples. We hope to learn enough about the condition so we can offer useful advice for control or treatment, something that is not possible now because too little is known. The chair of this working group will report to CDC’s Office of the Chief Science Officer.

Since CDC has no clinical center or hospital to evaluate or treat patients, we urge persons who believe they are suffering from this condition to or who have distressing symptoms to seek evaluation and medical care from their local healthcare providers. Health care providers can send inquiries to MorgellonsSyndrome@cdc.gov.

Thank you again for your inquiry. I hope this information is helpful.

Sincerely,
Julie Louise Gerberding, M.D., M.P.H.
Director”


This letter is stamped with the date JULY 11 2006 and I received it several days after that date. Please excuse me for not posting this sooner.

It appears that nothing was mentioned about any laboratory at a C-3 level or any other. Nothing was said about my questions about the scientist that has repeatedly claimed on this site serious allegation that may require serious investigation. :?: If there really is a source code how do we get it???

Peace,
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Postby tamtam » Tue Aug 08, 2006 10:37 am

There is no reason to demand the source code.
The source code represents specific data and this you will never get because it belongs to another department.

Mrs. Gerberding has been informed at least twice in 2004(....)

Immediate access to this infectious agent can be established at once.

She should be advised to contact ECDC in Solna Sweden with reference to: http://www.silentsuperbug.com

What I can not offer is: " that one or more than one US citizen(s) will start to demand this type intervention"

Again: access can be established at once; if necessary.

Interested health officials should contact:

http://www.silentsuperbug.com

or: http://www.quorumsensing@hotmail.com


Sincerely,

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Postby ppleater » Tue Aug 08, 2006 3:15 pm

OUCH!!! My face hurts =[
Hey everyone. I have so much to say, but cannot even consider where to begin (well that is one of the symptoms of morgellons, so I suppose those of you afflicted can probably sympathize?). Due to the complete lack of any compassion or scientific professionalism of the current medical establishment, I have had to make a self diagnosis of Morgellons after a ruthless search for answers. I am currently a student in Hawaii and I have a little background in biology and medical sciences-- I do not pretend to be a doctor, but from what it seems, I feel that most chronically ill people probably have a better understanding of the mechanics of their disease than most non-research physicians (let's face it, most 9-5 doctors are working more for the prestige and monetary gain, not out of compassion for their patients). Okay... I'm a bit cynical and rather bitter about what goes on in the healthcare community, but I have worked within it and my father is a practitioner, so I sorta have a behind-the-scenes perspective.
Anyway, I was curious if anyone has been bothered by the "microbes" entering their eyes? Also, can anyone explain the appearance of their lesions, also if they seem to be more inclined to surround their mouth? I have so many thoughts and questions regarding this, and I am unfortunately cursed with extreme curiosity (it figures I would get an illness that is so unexplored. My brain will not stop exploring the various avenues to research). I have also made a little questionnaire in order to compare case histories and see what similarities (environmental, med. history, age, occupation, etc.) individuals with Morgellons share. Just a crazy thought-- perhaps I am overzealous?
Thanks!!
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Survey / database on Morgellons - link

Postby FiberSymptoms » Tue Aug 08, 2006 4:47 pm

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Last edited by FiberSymptoms on Sat Dec 02, 2006 10:23 pm, edited 2 times in total.
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