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The Fiber Disease

Human Anatomy, Physiology, and Medicine. Anything human!

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Postby Skytroll » Sun Jan 22, 2006 3:01 am

Uk guy,

I agree with yyz. We just move past the bickering and actually look at what Tam Tam said.

Trying to get the video out there to media, medical, even senators, and reps. working on state right now, including governor.

Well said UK

He is telling us, we have to think about the words he uses and the metaphors. I agree with following the posts and trying to see the big picture and the small picture.

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Postby ukguy » Sun Jan 22, 2006 3:01 am

To C3,

Please elaborate on 'quorum sensing magnet'...
C3 we need details here please.

This is very important....

Regards
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Postby Barz » Sun Jan 22, 2006 3:28 am

Ukguy
I think what he means is that we were EXPOSED to some other contaminant at one time prior to this. Now that we are exposed to a new contminant, the bacteria which we already carry within us is sensed by the latest aerosol contamination (oops , I mean bacteria). or if we were not previously exposed and we are thereby exposed again to a new modified bacteria we will also be more like a magnet (due to the quarum sensing ability) to such agent.
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Postby yyz » Sun Jan 22, 2006 4:07 am

Exposed to a different contaminent, or a different strain? I think different strain is what he meant and sounds more accurate in my case anyway.

And yes, paint sticks better to primer than it does to bare metal.

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Postby London » Sun Jan 22, 2006 4:08 am

Wow, looks like I missed an active strand that had you guys a typing fast. I just now glanced thru from where I replied
to Randy earlier today to maybe 1 more page. I must go back and read yours ukguy as well as C'3's.

The point of me jumping in here to post something was because my mind had been thinking of Randy and my post to her earlier today. I stepped out for a couple of hours and when I returned wanted to post to her/him that I certainly hope my tone did not come across as anger directed towards her/him but just at this disease in general.
But, to my amzement (FYI referee JILL) she seemed to agree with ME!
So Randy, I'm glad you have an open mind and could see over the areas where I certainly could have hurt your feelings. I indeed was in a rush when I wrote that. Still meant everyword of it too ,yet I wish it had been written in a more softer tone from me. Again, my fault here-my apologies here.
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morgellons

Postby Linn » Sun Jan 22, 2006 4:20 am

hello to everyone
this is my first time in this forum I just joined because I am feeling very alone and need to talk with folks who are having this too.
I have yet to be diagnosed by physicians, although they have all alluded to delusional P. I am saying that I have morellons. My greatest fear is that it is not the samre as what others have and they will find out what theirs is and it will be a different thing and I will really be alone.
So I would like to compare. besides brain fog and fatigue
My symptoms:
Seen with naked eye-
Extreme pinching itch.
White "track marks or burrows" tiny patches of white (pigment gone)
red bug bite type bumps. dark brown pigment areas.
Seen via magnifying glass-
black eyelash size fibers sometimes curved sometimes sharp.
pepper specks
crystals
round dots like eggs
seed shaped black things that are dug out of lesions all the same size and are uniform in shape.
black shaped things that are bigger than other material and have pointed sharp ends, and emerge out of the skin at which time the itch is horrible.
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Postby London » Sun Jan 22, 2006 4:27 am

Well the rest of my post were not able to be posted! Dunno why not??

It basically said to Jill that I do not think it is embarrassing when someone says they think this or that about our disease but actually they are really off line/target, so to speak. Well as much as our disease morphs there's no wonder. Heck even YOU did this with sometihng I had posted about in which you immediately nixed and graded the very minute it appeared online saying no b/c of........ But then you turn around and post it a couple of weeks later?

Jill, how bout the one where I had Guessed right- (PHi 10) and you again immediately came on board to tell me No! Cant work b/c of this year, etc.,
Well I do rember coming back online to tell you In a very nice way that yes it was PHi 10 due to the very fact that I had said it was re-invented in 2003. Original began in 1978. Now that's embarrasing! Go back and play patrol police-I do not care to waste any more Of my time on you.

At least you could have read it before you graded it Jill

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Postby ukguy » Sun Jan 22, 2006 4:45 am

London

I have great respect for you.
You are bigger than this London.

London, if you're angry with me, ok with it, or
indifferent...please PM me. I know you understand.
Relax..and read Linn's post please.

Our energies are need in other areas London.

Regards
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Postby befour » Sun Jan 22, 2006 5:03 am

Dear UKguy-

I agree with you 100 percent! Before I found this site I was becoming increasingly depressed, loosing hope and I was terrified at what I was seeing happen to my body. I did not tell anyone - I could not bring myself to tell my husband that I had bugs and worms living in me!! I could not believe it myself and I thought I was going crazy! I didn't even want to go to my GP because I thought the "men in the white coats" would take me away, if I told her all of my symptoms.

I found the Morgellons site last summer and it was a relief to find that there were other people like me, that were scared and suffering. But their information just seemed to stop and I needed MORE - someone to talk to, to share experiences with, compare symptoms with and find out what medications/treatments were working or not.

So, now I knew for sure it wasn't "rosacea", as the drs. had diagnosed. Instead I knew I had this horrible disease and now what do I do? I was so depressed and fatigued I could barely get out of bed. When the depression got so bad that all I could do was cry, my husband almost had to drag me to the dr. I never mentioned the morg., etc., did not know where to start. It took several weeks to get the depression under control with anti-depressants, but the underlying cause (morg.) was still there!!

Then I found this forum and it has been such a comfort for me. I will defend TamTam regardless of whether I know his credentials or not. He is the only person who responded to my posts, when I needed help and he has given me reliable, useful information. I don't always understand EVERYTHING, but I can always look up what I don't know. He has given all of us information that we have not been able to get elsewhere. His posts also prompt other discussions and in turn, we all benefit from his research knowledge.

Since I found this thread, I have been able to overcome most of the fear, which I have discovered, makes your symptoms worse. I also found the courage to tell my GP about the morgs. She could not tell me that I was delusional, because I had a large lesion on my temple, where the bug/parasite was clearly visible. I have not had a problem getting antibiotics since then. I also told her about Tam Tam's research and his theories re: meds, possible treatments, cyanobacteria + parasite, etc. She asked ME what antibiotic works best and took my advise. She admitted that she knew nothing about the disease, but never indicated that she would not continue to treat me.

I have lost almost all of the hair on my head now, but have finally just accepted it. My head - scalp, face and ears - is where I have ALL of this disease and it looks hideous!! But I know that there are so many out there that are much worse than I. Since I have been on Bactrim & Doryx for several weeks I have begun to feel better, at least have a little energy and I am not in much pain, I am so grateful for that!
I make myself go outside and sit in the sun for a few minutes everyday, no one can get well in a closed dark room!!

So, to anyone who doesn't like this thread, don't read it - go to another forum! I NEED THIS THREAD & THESE DISCUSSIONS - and I know that a lot of other sick people do too. And not just the ones who post, who knows how many people read this everyday. So if you are angry and want to take it out on someone, please don't do it here! Go hit some golf balls or just sit in the sun.

I am so grateful to all of you who are trying to help find the answers!

Regards -

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Postby Skytroll » Sun Jan 22, 2006 5:05 am

Linn,

Welcome. We are trying to follow Tam Tam observations. Have you read his info? It is very revealing.
He mentions keywords, google them and see what you can find as we are. Join in and we welcome your postings very much.

Barz recent post seems to collect some ideas together. UK guy and all are trying to find out he means in posts.

He does not speak English well, but, is very good, I think by using metaphors to describe how this thing or things work.

Tam Tam sent video to http://www.crosslines.net Watch the video. See if you see similar things. Let us know.

Stay tuned and keep focused on Tam Tam's findings. It may take you in different directions, but, hang in there.

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Postby Skytroll » Sun Jan 22, 2006 5:10 am

Befour,

thank you very much for that post. We plan to keep focused here on the issue. No distractions, there is much involved in this and I found a web page where I think they might be working on this. I will read some more and get back here with what I found. It mentions quorum sensing and molecules etc.

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Postby Skytroll » Sun Jan 22, 2006 5:17 am

Barz,

I think you have something there. I felt I was infected in 1991. Then around middle of 90s it seemed to almost disappear, but not totally, like it went dormant.
Then in 2000 it came back on my face, arms neck, back etc. It was like another virus or bacteria was added to it. Now, I may have had one of the "dummy shots for polio in 1955 which may have started those whole thing. I don't know, but then in 70s I had pyloric problems (e-coli), then the morgellons 1991 on until the worse part in 2000.

So, it seems if we have had an initial attack of one of the emerging diseases and senses another, it goes right to our systems somehow and sets up another attack which generally is worse. Keeping it at bay or keeping other viruses or bacteria from finding the pathway in is the key.

More thoughts? Tam Tam thank you for sticking with us. We appreciate your efforts.

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