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The Fiber Disease

Human Anatomy, Physiology, and Medicine. Anything human!

Moderator: BioTeam

Missing video

Postby Barz » Sat Jan 14, 2006 7:36 pm

Video is no longer online. Anyone know why? Someone contact South please.
Barz
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Postby ukguy » Sun Jan 15, 2006 12:24 am

C3 wrote:Indeed,

You can not discuss laboratory results before multiple test are run.
Because this target represents a multi cellular like entity
the process - and its interaction- is complex.
Answers are research budget depending.
This includes much time.

The best support you can give is to send the link out to international message boards.
A Spanish introduction would be welcome and not to forget all other languages.

As soon as the matter will get more attention the Institutes will go after it.
In fact they already do.
So, be ingenious.

tamtam may consider to patent london's nose as a broad spectrum bio sensor.


Quite. And understood.

TamTam also has a wicked sense of humour I see ;)

My thoughts for what it's worth:

If we're intending spreading this across messageboards then surely
we should discuss how best to do this? First impressions count.
The video content is superb but it needs to be complimented
with a press release that is easier to digest.

TamTam....you're running this right now. DO you agree?

(And please forgive me when I say 'we'...at the moment I don't
know for sure what I've got. Living in the UK doesn't make the situation
any easier since as far as I'm aware there are no confirmed cases ;)

I won't go into my 'symptoms' once again but after a few years looking
into this from a different angle it's looking highly likely right now
that my membership is confirmed, if only by me.)

The video is indeed DOWN at the moment which will seriously harm
any planned PR campaign. South ? What's happening..?

I just think we need to think about the 'PR' release before heading
forward.

Barz, Sky Troll, South...Cilla? ...please PM me if you'd like to get something together....

See ya
Ukguy
Last edited by ukguy on Sun Jan 15, 2006 12:30 am, edited 1 time in total.
ukguy
 

Postby ukguy » Sun Jan 15, 2006 12:29 am

Sorry if my continued use of 'PR' sounds trite.

I just think we need a concerted effort to do this properly.

See ya
Ukguy
ukguy
 


Postby ukguy » Sun Jan 15, 2006 12:37 am

C3 wrote:search term: pheromone/ quorum sensing and not "ferromone"


TamTam...I struggle enough with the weight of the information
provided here, AND it's written in my native tongue ;)

I always understand you...even when I dont understand you :)

cheers
ukguy
ukguy
 

Postby London » Sun Jan 15, 2006 3:42 am

FUTURE PROJECTS
We will continue to study reported interactions of CFTR with membrane
transporters as well as molecular mechanisms of CFTR activation
and salt secretion. The molecular mechanism of ion transfer in
Channelrhodopsins is our next challenge. We are also interested in
biotechnological applications of channelrhodopsins and other lightactivated
plant proteins.



Hi all. I am just now viewing the board today. I can and will

help in any way I can. I do not know if video has been located again or

what have you but as I told TamTam, I know of many sites ( message boards) both in European and English languages. Possibly one in
Spanish.

Someone just tell me what to do and when....and I will help in any way

I can.

PS: I believe Skytroll may be fluent in Spanish.

Sincerely,

London[

PSS: So, Is it going to be the Top Down or Bottom Up approach???
London
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Postby London » Sun Jan 15, 2006 5:18 am

Tam Tam,

Hurry! Have you found CFTR in vivo yet??? Interesting, very interest-

work.

and also TamTam, please read : must use internet explorer to view-

http://www.rense.com/general69/lyme.htm


Sincerely,

London
London
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Postby London » Sun Jan 15, 2006 12:51 pm

here's some interesting stuff:

http://www.nature.com/cgi-taf/DynaPage. ... 08_fs.html

and Stanford:http://news-service.stanford.edu/news/2005/november16/oilsr-111605.html

and humans/worms share genes storing fat:

http://www.genomenewsnetwork.org/articl ... _fat.shtml

and TamTam, I hope you see this one:

http://www.hikingwithafieldmicroscope.com

here's one on Myxococcus Xanthus:

http://cmgm.stanford.edu/~kaiserla/abou ... occus.html

and using Sciense for competetive tool:
http://www.rdmag.com/ShowPR.aspx?PUBCOD ... RODLETT=AX

PS I will come back to add to this post sith other links in a lil while.



London
London
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Postby ukguy » Mon Jan 16, 2006 1:09 pm

TamTam / London

Did you get anywhere with Stenotrophomonas maltophilia?
Dr Schwartz mentioned this.

Please see http://www.apsnet.org/phyto/pdfs/2000/1109-01R.pdf

Keywords: Fusarium oxysporum maltophilia c3

Regards
ukguy
ukguy
 

Dr Schwartz's Book

Postby ukguy » Mon Jan 16, 2006 2:22 pm

Okay I've tried to get Dr Schwartz's book but no luck so far.

London, I know you were trying to get it also.

Did you have any luck?

Did ANYONE reading here manage to get it?

If so PLEASE PM me....thanks.

I'm having enough trouble with doctors but my wife won't believe
me either....

Regards
Ukguy
ukguy
 

Postby Cilla » Mon Jan 16, 2006 8:17 pm

Hi all,
Uk Guy, I am still thinking about the horrible symptoms you have, and what you might do about them. Getting a copy of Dr Schwartz's book could help, but I am not sure if this includes updates of his later thinking concerning the need to incorporate antihelminthic medication into his regimen of prescribed drugs for those diagnosed with this condition. I do not know if he would be good enough, if asked, to communicate with a doctor in the UK about a specific person's clinical case. I do not know if he would charge a consultancy fee for this, given that the US has a wholly different system of health care management, and I do not know if any private health care insurance that you may have would cover this or not. You may prefer to pay privately, and not use any insurance at the moment, anyway. This keeps your health care data more confidential. It may be that he would not, or that an NHS doctor would not be in a position comfortably to engage in such dialogue - I do not know, you would have to ask the individuals involved. Many big cities in the UK operate a system whereby you can consult a private gp. It's approximately £80 per 15 mins., (and some 15 mins this is going to be if you turn up with photograhs etc. of this phenomena, although I don't see what else you can do to try and convince them). A private gp may be willing to discuss this, e.g. by e-mail, with Dr Schwartz, particularly if this excellent doctor had indicated to you his 'in principle' willingness to do this. However, you might have to pay the gp for this further 'referral' and their time. Alternatively, the private gp might refer you to a doctor who specialises in infectious and tropical disease, (the cost of the referral would be approx. £40, and then you would have to pay the specialist, very few of whom (perhaps) engage in private practice in the UK). Some big cities may have a private wing in their Tropical Disease hospitals. Once again, there would be a need to convince these doctors, and, unless they see the pictures, and are open enough to discuss matters with Dr Schwartz, I do not know if this would be possible or not.
A lot would depend on their obtaining objective evidence of, e.g. arthropods living, e.g. on your scalp. If these are tiny jumping things, they might be collembola, which may be found on scalp skin scrapings sent to the lab., (more expense if tests are requested privately). Another possibility is a blood test to see if you have antibodies to, e.g. a given tapeworm. Another test could be performed on a specimen of your stool, to see if there is any evidence of helminths being passed by this route. You could also search the internet for reputable medical services dealing with parasites, and see how you could go about sending specimens to them for analysis. I believe that they would send you out a specialised kit and instructions, which must be followed to the letter. I also believe that they will only send the result to a doctor.
You might try a doctor in one of the centres for Traditional Chinese Medicine. Even if they can only give you cream and shampoo to stop the infernal itching this would be something, and they might be able to give you something much better than this.
To everyone who has these distressing symptoms - have you had a blood test to rule out having antibodies to a specific tapeworm? A negative result might not be conclusive, but a positive one would be very interesting.
Cilla
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Postby Cilla » Mon Jan 16, 2006 8:51 pm

Hi again,
UK Guy, if you do consult a doctor, please note the advice of others about how you should phrase your presenting complaint. It's better to ask if you might possibly have parasites, remaining calm and referring to any objective evidence that you may have to substantiate your question. To be fair, it could indeed be something else that is causing the infernal itching, and what you want is treatment for this, (whatever it turns out to be). You are merely raising the Morgellon's/Fiber disease as a possibility. It could equally be that you are suffering from tinea, e.g. By all accounts, it seems to be when patients get very adamant that they can be diagnosed as delusional. It's not easy to walk the fine line between being quietly insistent enough to get the treatment you need, but not so belligerent that a doctor might (in the absence of objective evidence, or of a medically authenticated description of a possible new clinical condition) think you are mentally ill, or perhaps extremely stressed.
Cilla
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Postby ukguy » Mon Jan 16, 2006 10:44 pm

Hi Cilla

Thanks very much for taking the time to post. Your thoughts and expertise are very much appreciated!

Understand about the book but it's hard to find any solid body of work
out there. I guess that's the way it's meant to be right now.

The hardest thing for me is that I'M not sure what I have, so
I'm in the unusual position of trying to gather as much information as
possible in order to arrive at some kind of preliminary diagnosis BEFORE
I see my GP :) Of course , even if I do reach a diagnosis (using the term
very loosely), if I'm not walking into the surgery with eczema, an allergy
or scabies in mind, I'm going to have a struggle getting my point across.

I can't afford to pay for private treatment so I'm stuck with seeing my GP
at some point I think. Your suggestion of Chinese medicine is something
I will definitely look into Cilla.

I have a few things planned so I'll have to see how they pan out.

Can't thank you enough for responding Cilla and if anything good
happens in this regard I'll certainly let you know.

Thanks again
Ukguy
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