Human Anatomy, Physiology, and Medicine. Anything human!
I have sent a letter to the NIH and asked them to please look into this. If any of you reading this forum believe, as I do, that this organization should investigate the issues raised here then please do your part and contact them with your concerns. I do have hope that they will help.
Thanks for posting about your computer problems. With Arrow having similar problems as I was experiencing with logging on here then perhaps I should contact Shar yet again. She knows me pretty good by now and we will see if she can figure out the problem once and for all.
Welcome to biology online and thanks for the suggestion on the ozone. Perhaps you could contact Dr. Holmes for all of us and find out how this study is coming along and if he is getting any good results from his therapy.
http://biology-online.org/biology-forum ... lianholmes
I cannot blame my illness on relationships in my life that may not have as strong of a foundation as I would like, but the stress and strain of this issue is sometimes too much to save such a relationship. It took me a year to tell him but I finally did it. Not an easy thing to do at all for me. The coping mechanism he has chosen is to ignore the disease and brake off our relationship of four years. It has been three weeks now and he has moved on quite quickly. I suppose I am better off but this fact does not make it any easier.
I have been going through medical records and I have come up with some ideas that may have validity. Is it possible that I could have been infected twice or more with a different variant? I experienced something new in the year 2003 that was new even for what I already had.
Thank you very much for your technical help. The touch of humor was nice too.
Could you please look at this article that came out in the YEAR 2000. In my uneducated opinion, it seems to back up what tamtam said. Please help me interput this.
http://www.pubmedcentral.gov/articleren ... rtid=33967
Novel antimicrobial targets from combined pathogen and host genetics
Carl D. Johnson*† and Leo X. Liu‡
*Axys Pharmaceuticals, South San Francisco, CA 90480; and ‡Cambria Biosciences, Bedford, MA 01730
†To whom reprint requests should be addressed at: Axys Pharmaceuticals, 100 Kimball Way, South San Francisco, CA 94080. E-mail: email@example.com.
Thank you for your continued dedication.
I am sorry your relationship took a turn. To loose love and support because of this health challenge must be very difficult.
I just e-mailed Dr Holmes to see what he is up to. He posts on another forum that discusses the use of ozone for dental issues but it seems that he has not posted since February so we shall see if he responds.
It is very, very difficult for anyone to understand what we go through. I would venture to say it is impossible unless you have it and then if you find two people that have it..they even question one another. Hang tight. A man who does not stand by you is no man.
That was kinda rough. I am just saying that I lost many a peson who I thought was a good friend who I had done so many things for..doctors that would not help me that were friedns since childhood.turned their backs on me.....And I state this with conviction......that if they can not help you when you are this down and insecure then those are their true colors. I hate to say it but this disease reveals the real jerks you thought were your friends. It is a looking glass. It is very sad but very, very true.
Please make it something that my buddies will say is real...PLEASE!!! Really that is all I ask..if it is BS again....I will give up knowing your name.
Isn't it funny how my pictures sparked competition and a new video...hum........narcassistic tendencies, I presume? Coincidence..I think not!
(Just teasin here people..calm down!)
What was particularly suspicious about the person you spotted in 2000? I think that you did the right thing in contacting the FBI, and anyone who might underestimate the cleverness of this organisation is quite foolish, in my opinion.
Yes, I think that everyone (who wishes to) should write to the appropriate department within the NIH or the Health and Safety Executive, requesting an investigation into the alleged release of a dangerous pathogen from a high biosafety containment level, (3 or above), laboratory.
These professionals are well paid, (in the case of the Health and Safety Executive by our taxes in the UK), and, since such serious allegations have been made, it is their duty to respond to concerned enquiries, particularly from those who have a direct interest in this.
I do not see the advantage in sending a uniform letter, such as that previously composed by the MRF, which was useful in alerting the CDC to your plight.
I think that things have now moved on, and, since a uniform letter can all too easily be met with a uniform response, the time is ripe for you (if willing) to be that bit more specific and particular.
Keep an exact copy of every letter that you do send, and of each reply received.
By all means, contact your senators and MP's too, and request that a full investigation be carried out at the highest level of government.
The UK government has a chief scientist, and scientific advisory bodies, whose remit includes appraising the possible dangers of working with genetically modified microorganisms in university laboratories.
If a new disease has occurred because of something going wrong in this arena, it stands to reason that someone will have to inform the government's Chief Medical Officer, and the Department of Health, as well as the relevant presidents of the various medical Royal Societies, (e.g. of Ophthalmology).
Some people might not be willing to write, perhaps because they do not wish to identify themselves.
Some might prefer to start up a pressure group, called something along the lines of RIND, (Rational, Infected, not Delusional).
You might wish to ask yourselves what it is that you want.
Some might be so sick of this disease that all they want is the best in the way of treatment prescribed, just so that they can get on with their lives.
They might want the standards of high biosafety containment level laboratories cleaned up, but they might not be too interested in a fight for compensation as such.
Others might view things differently, and want a full judicial investigation carried out, particularly as Tam tam has indicated that a criminal offence might have been committed, and that the American penal code should be entrusted with this task.
Naturally, such individuals would want appropriate and effective treatment too.
It might be a good idea to think about a pressure group, and to consider what it is exactly that you want, either from its activities, or in response to your letters to the authorities.
At the moment, you might only 'think' that you have this condition. You may or may not be right. Who knows what will come first, e.g. an accurate diagnostic test, or the development of an effective cure?
I would think about what South said re people's possible reactions (once this disease is openly acknowledged), before releasing my personal and sensitive data to an amateurish pressure group/stranger on a site, if I were you.
It is a personal decision, of course, and only you can decide.
There is possibly a tension between privacy concerns and getting the treatment you need, so the latter might outweigh the former when it comes to contacting the authorities.
You could ask that your data be kept confidential, but do be aware that the law on confidentiality is not absolute.
Sooner or later, by the law of averages, a person who will not tolerate any nonsense will be infected, be this a tropical disease physician, or an informed scientist, (about this type of research), or a member of either professional's family.
Time is running out for those who would label any and all infected with this as suffering from 'delusional parasitosis'.
It will run out all the quicker once you do all organise yourselves and start making effective waves.
The 'experts' who have been 'in the know' must see this, and, if Tam tam is right, they must equally see that the cat is well and truly out of the bag now.
I think that this is a very good thing, and we have a lot to thank Tam tam for.
I do not know if it is possible to become infected more than once with different variants, or forms of, this infection. I was basing my thoughts on what Tam tam said about sufferers possibly becoming a 'magnet' for other infections, in some situations.
It might be true that it is like the reactivation of the herpes virus within a person who might develop shingles when their immunity is lowered.
Or maybe it is more like the way an old infection of tuberculosis, previously held in check by the immune system, can reassert itself into open pulmonary tuberculosis when a person is at a low ebb.
Obviously, the best thing to do is to keep yourself as healthy as possible, and to boost your immune system in any way that you can.
This would include taking care of your health physically and mentally.
It is important to assert control over your life, (and of this infection), and taking steps to destroy its grip of you, (and to break the hold that those who may have perpetuated lies of delusionality have tried to place over you).
If such liars have done this, they have done so for a reason, which is to try and escape their own guilt. If what Tam tam says is true, their cover is blown, and, in the face of any competent investigation, this will be seen by all.
Keep your cool, because rational and sweet reason is your best weapon here, and do not forget that time is very much on your side now.
Do not be angry at everyone who muses about the possibility of delusional parasitosis. They may be innocent, or ignorant, and this will fly out of the window once all is revealed.
Be very measured in your use of language in the meantime. Say things like, 'it looked as though flies were breeding on my scalp, but maybe they just flew there....'. The medical profession will soon get the true message, viz. that some of you do actually have myiasis, as part of this condition.
Never forget, though, that delusional parasitosis does actually exist as a separate entity.
This is why it is so urgent that a proper diagnostic test be developed and becomes widely available, alongside better and more effective regimens of treatment, for this specific and assuredly non-delusional condition.
Sabrina ( and all)
This might help to understand the article (hyperlink you posted which was killer good > loved it! )
It's about host pathenogen reactions..........
http://tinyurl.com/m8z4q ( sorry it will not work, here is the abstract)
This review summarizes the present concepts regarding the biological processes that mediate intrinsic and innate host defense against microbial invasion of the lung. Innate immunity is the first line of defense of the higher organisms towards invading pathogens. It accomplishes a wide variety of activities including recognition and effector functions. The innate responses use phagocytic cells (macrophages, monocytes, and neutrophils), cells that release inflammatory mediators (basophils, mast cells, and eosinophils), and natural killer cells. The molecular component of innate responses includes complement, acute-phase proteins, and cytokines. Recognition of pathogen-associated molecular patterns is mediated by the pathogen receptors of the innate immune system, among these molecules toll-like receptors have emerged as fundamental components in the innate immune responses to infection, and a link between innate and adaptive immunity. Additional protection comes from polypeptide mediators of the innate host defense, such as the defensins and other antibiotic peptides. In view of the considerable burden in terms of mortality and morbidity that severe infections still pose worldwide, a better understanding of the biological basis of host-pathogen interactions opens stimulating future treatment perspectives.
The truth of Tam tam's videos does not depend on the opinion of your buddies. They could be wrong. There is nothing to be ashamed of in that. Many intelligent people have been wrong throughout history.
Instead of always holding your friends up as the standard of unbridled truth, why not, in the spirit of scientific discovery, ask the question from another angle?
Why cannot they come on this site, and explain exactly why so many precautions must be taken in high biosafety containment level (3 and 4)laboratories, within our universities?
Also, could they explain why specific experts within the fields of plants, insects, mammals, e.g., are required when cloning experiments of dangerous microorganisms are permitted to take place within such laboratories in the US?
In other words, what is the fuss all about, and should we be worried, if, hypothetically, Tam tam is absolutely correct, and, furthermore, his assertions would be substantiated by all the precautions alluded to supra?
They have a great deal more to answer before we could give any credence whatsoever to their hastily asserted opinions, as posted previously, and, a fortiori, before any weight could reasonably be placed on any opinion they might give, through you, regarding Tam tam's excellent and courageous work.
I second what Barz said. Hey, I know you post sometimes on Lymebusters- maybe as a guest- I don't know for sure, but they recently changed their forum where one has to be signed in to post. The reason I'm bringing this up is because I would love for you tp post your two letters above on Lymebusters. ( the one to Sabrina - with her name removed of course, and the one "to All" which was above that post.)
I think they are excellent letters of advice. If you are not a member and do not care to join that forum/ organization, I would certainly post them for you. Just give me the signal/ permission to do so and I will.
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