The Fiber Disease

[Linn]

And this is a 125 page thread - not that I'm complaining, but how can I find the link to the statistics?

125 page thread Ya think

I know, sorry
I am feeling lazy to get it for you, I thought that yet again or stand by reposted that whrn you had just came on board so guess ya didnt see it.
I will get back with that for you and the case study of the 4 bay area woman ....Hold on

[John Kern]

Here's the summary of the original Lyme paper:

An epidemic form of arthritis has been occurring in eastern Connecticut at least since 1972, with the peak incidence of new cases in the summer and early fall. Its identification has been possible because of tight geographic clustering in some areas, and because of a characteristic preceding skin lesion in some patients. The authors studied 51 residents of three contiguous Connecticut communities -- 39 children and 12 adults -- who developed an illness characterized by recurrent attacks of asymmetric swelling and pain in a few large joints, especially the knee. Attacks were usually short (median: 1 week) with much longer intervening periods of complete remission (median: 2.5 months), but some attacks lasted for months. To date the typical patient has had three recurrences, but 16 patients have had none. A median of 4 weeks (range: 1-24) before the onset of arthritis, 13 patients (25%) noted an erythematous papule that developed into an expanding, red, annular lesion, as much as 50 cm in diameter. Only 2 of 159 family members of patients had such a lesion and did not develop arthritis (P less than 0.000001). The overalll prevalence of the arthritis was 4.3 cases per 1,000 residents, but the prevalence among children living on four roads was 1 in 10. Six families had more than 1 affected member. Nine of 20 symptomatic patients had low serum C3 levels, compared to none of 31 asymptomatic patients (P less than 0.005); no patient had iridocyclitis or a positive test for antinuclear antibodies. Neither cultures of synovium and synovial fluid nor serologic tests were positive for agents known to cause arthritis. "Lyme arthritis" is thought to be a previously unrecognized clinical entity, the epidemiology of which suggests transmission by an arthropod vector.

[edit] from: http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&list_uids=836338&dopt=Citation

That should give you some idea of the type of statistics that are needed. Note the low P values.

- John

[in_the_uk]

And this is a 125 page thread - not that I'm complaining, but how can I find the link to the statistics?

I know there are limited resources - but any statistics need to be made public, so you can show them to people.

I agree that the search engine on this site is not very good. I think that Lynne is printing it off so at least there will be a permanent copy of what is on this thread.

All there is at the moment is anecdotal so statistics are important. What help do you need Lynne?

Helen

PS why isn't mrf publishing statistics?

[Linn]

thats why Helen and sky know it is going to take a long time to collect, sort, organize, and enter data.

I better get to work Fred!

Sorry Helen about the language difference Helen, I forgot you people talk funny (Just kidding)

[in_the_uk]

I forgot you people talk funny

Talk funny? You guys can't spell properly

I'm out of here. I'm 5 hours ahead and I should be in bed.

[Linn]

Helen, thanx for the help, but you are doing enough,
I am just reading and highlighting for now and have a paper chart. then I will set up an access program which I do not remember how to do, perhaps thats the hepl I will need, and I do not know a thing about programming. One of the micro-bi students on here had a good survey nd I am waiting for him to read his PM about how to do.

I was hoping to talk with ukguy by phone, but his wife is due with babe very soon, its not fair to bother him.
Helen, just go ahead with the other aspects for now, set up the website and we will go from there. when I get more organized, I will relay the info to you and sky. or enter it at the site.

I am in the brainstorming stage, like the thinking stage of architecture (that I hate the most) : basic idea, gather data. think of how to approach. but once the design! Its sailing.
1. every one knows I am bIG on geographical location
so I am definetly including that one, even if its already bee done.

I am trying to think of a way to approach the fiber data in a way it has not been done yet.

Ok Time to find that info for you John BRB

[Linn]

I forgot you people talk funny

Talk funny? You guys can't spell properly

I'm out of here. I'm 5 hours ahead and I should be in bed.

I only spell correcly if I have to

si mi esta consada,

[Skytroll]

John said,

"Obviously I was referring to your leaflet there - it's just not going to get you taken seriously. Pretty much the entire "theories" section should be replaced with something along the lines of "We suspect these symptoms are caused by some unknown pathogen". Unless you've got some evidence, then adding the theories, especially the more esoteric theories, is just going to alienate the doctor. You need to bring it down to his level."



We have no idea where the doctor's level is. Some are so arrogant, how can we approach them at any level. We have tried almost everything you mention. We have been labeled. We are trying to loosen that death grip on us.

The CDC label everything as pathogen. John we cannot even get our doctors to get an accurate blood test and then they do not give us the printed out results, which we are entitle to. Now, how are we going to do this when we cannot get our doctors to even look at us. To most of us we are call DOP and send us out the door.

What do we do? hold a protest?

I have had 15 years of this, John, and have the right to post the theories, after reveiw and looking at the fibers that long. I have done my homework. Do you know what objective is?

These fibers will never see the inside of regular labs.

If DOP is given after biopsies which they call fatty deposits and never look beyond their definition of cancer, which could be worms, could be algae, fungus, we are not tested for these things.

The only way we can get a test that may help us is by protest. And that will come next.


Statistics are skewed in some states. You even said so yourself. They are underreported and you know that.

The theories are tentative and I do have proof.

I know about the polio, the reintroduction of the bacteriophages, and other plans.

Carnicom has documented evidence of what is in Chemtrails.

We are not treated for worms in America. that is fact.

Lymes was a release from bioweapons lab at Plum Island, not far from Lymes Conneticut. The ticks were load with biological pathogens.

Every theory has some proof. Chemtrail patterns, climate change, the fire in Oakland, the Tsunamis, not from natural plate movement, there used to be a base near where the earthquake happened, and the resulting tsunami. Earthquakes, tornadoes can me generated by experiments from the military.

We know this for fact, from some pilots, from military personnel.

there will be proof, for the theories.



Skytroll

[carriescamp]

Hello John...I hope you are still here. I didn't have a chance to read all the replies but I did read upon where you said your conditions that brought you to this forum.

It looks like you could very well have our disease too. I just wanted to say that before I go read the last pages of this board. I think I read something where you felt this may be a disease of the mind!? I may be mistaken...excuse me if I am. If I am not, please stick around if you can. I'm still mothering my children while trying to keep up with what is going on here.

[carriescamp]

Excuse my last post. I read the post completely and realize that John is really trying to help.

So John, you're not saying what I thought you were saying...sorry. I think from the last couple pages that I've read you've made some excellent suggestions. Not to take anything away from that, please understand what Skytroll is saying...DOP comes so quick...there are very few doctors that will even look let alone listen.

How can I view the pamphlet you guys are talking about.

[Skytroll]

Carrie,

It is on page 121 of this thread, by in._the_uk,

about halfway down.

Skytroll

[Linn]

OK I got booted, and I cant find the survey I had book marked
the survey by someone named Alex, is in a link provided by yetagain, i had just cpied that and got booted, page 94 of this thread, How do you go there with search? doesnt work or I am doing something wrong.
Please can someone get those survey links to John?

On the case of the 4 woman in bay area, case stidy of fibers:

http://www.texramp.net/~chazman/JHav-02.htm
This was one of the earlier ones John, I am sure every one who has been around already have read this.

I need to print that in case I loose it again from my files.

OK there is stuff going on in my "hood" need to go watch the drama...something about someone shot my neighbors
pitbull with a paint ball gun, and the police have arrived.
goodnight
never a dull moment here!