The Fiber Disease

[Sabrina]

I'm just going to turn off my computer-I'm too frustrated at the moment to deal w/this . My blood get boiling....and maybe i need to

seek spiritual counseling like Sabrina said- heck but I'm afraid that I will rip them to shreads too..... I know I have to just go now and get a grip/
drink a beer or something......

Later guys!


london

You have come such a long way and I am proud of you London!

I leave you Peace, thy peace I leave you. Go in Peace.

Peace,
Sabrina

[John Kern]

I actually agreed with some thing that he said to you in an earlier post, that is that whatever you think and what ever papers you find, you must be able to defend outside of this board. That is not him being difficult that is the fact of the matter.

It's kind of a PR exercise - you can't just take a huge jump of logic with doctors and scientists. They are used to going one step at a time - which is often fustratingly slow if you think you know where they should be going. But it's in your interest to build a slow solid case to arrive at a correct diagnosis.

Imagine:

Me: "Doctor, I've got this itching, and these lesions"
Doc: "Let me take a look"
Me: "And there's these fibers, you see"
Doc: "Looks like lint, this could be scabies, maybe we ...."
Me: "... I think HAARP might be involved!"
Doc: "your heart? no, ..."
Me: "... yes, read this leaflet, the Russians, NWO, Tesla, they use the Synchotron to lay down a woodpecker grid, haven't you seen the chemtrails, it's altering my electrical system with gridded scalar operations, and if it's not that, then it's a genetically modified butterfly/slime mold hybrid bioweapon, or climate change!!. Here, read this leaflet!"
Doc: (backing away) "er, what medications are you on?"

Regardless of the validity of your own ideas, if they sound insane to your doctor, then he's going to treat you like you are insane. If your ideas are valid, you have to lead the doctor(s) to them one step at a time, and cooperate in his annoyingly slow step-by-step diagnositic procedure. You have to eliminate the impossible before getting to the the wildly improbably.

- John

[Linn]

collations of statistics - size, color, photos.

but testing needs to be done to determine textile
derived to rule out. Photos are no help with that.
since they often look like, textile fibers and hair,
it needs to be chemicaly tested.
NUSPA has been asking for samples for quite a while
now, all anyone has to do is mail them. just cost you a few$

[in_the_uk]

Here's one of me:

http://s1.simpload.com/04164442e30e554b5.jpg

Lynne, my ex was a teacher (11 to 16 year olds) and I think that that picture is probably pretty close

Helen

[London]

Lynne, well I did make it to the cover of NG. They did an article on me when they cut all the trees down and exposed me.....

at that time I was living in Bornea.........but then I learned how to swim
by watching a red cross video and then i swam cross the Pacific until I reached the Marshall Islands- the Bikini atoll

but then I had to leave there too- Raytheon corp. ran me off that Island-
threatened me with a Nuc gun- I swear!!! Anyway I ended up in Haiwaii
for a year or two where I did a freak show and sold flowers and let the people take their picture with me.....then i swam on to California and

then rode the bus all the way to Dallas......Now that I'm here, I came down with Morgellons.....

Must of been shot silently with that gun from Raytheon afterall? hmmm..
___________________________________

Sabrina,

count me in, I'm game. I say let's go for it!


London

[in_the_uk]

Doc: (backing away) "er, what medications are you on?"

John,

You know that we have produced a leaflet that we are going to mailshot to primary care providers (health centres and the like). We have included some of the explanations that you have spoken about. What changes would you suggest to our first draft to get them to sit up and listen?

Helen

[Linn]

This will entail establishing a non-profit organization and I am completely on that already. I am also willing to raise some money if need be and in this case I am not above using any resource I can find to advance the cause.

Let me know what you all think.

It needs to have a non-internet address.
I am game to have "branches" in each local. however,
I am pretty much the only petunia here in Massachusetts,
I do believe the absolute first case reported here.
Aren.t I luky?
and according to the surrvey still only two cases >REPORTED<
but when the others come out of the woodwork or
"find" the internet information.....

Helen, I see you love your X ha?
mine, (yup) officialy in May, is also a caveman

OK Julia (my granddaughter would like to give out some info:

[John Kern]

collations of statistics - size, color, photos.

but testing needs to be done to determine textile
derived to rule out. Photos are no help with that.
since they often look like, textile fibers and hair,
it needs to be chemicaly tested.
NUSPA has been asking for samples for quite a while
now, all anyone has to do is mail them. just cost you a few$

Yeah, but tested for what - MRF tested some fibers with Fourier Transform Infrared Spectroscopy, which is pretty specific, and they just said "tentativly identified as cellulose." Which eliminates polyester, but not cotton, or tissue paper.

I think you should first see if everyone has the same kind of fibers (visually). Maybe there is more than one kind of fiber disease.

- John

[in_the_uk]

Helen, I see you love your X ha?
mine, (yup) officialy in May, is also a caveman

Oh no Lynne, I thought before you were reprimanding London for posting the photo of herself - the wild woman of Borneo with all those fibres coming out of her hear - and I was commenting that as I have seen years of teaching take their toll then it probably is quite a good likeness to London! Sounds like there were some crossed wires.

Just me and my cat - I hope to god I haven't given him morgellons.

Helen

[Linn]

think you should first see if everyone has the same kind of fibers (visually). Maybe there is more than one kind of fiber disease.

It has been included in other surveys John,
so we have statistics already.

[John Kern]

Doc: (backing away) "er, what medications are you on?"

John,

You know that we have produced a leaflet that we are going to mailshot to primary care providers (health centres and the like). We have included some of the explanations that you have spoken about. What changes would you suggest to our first draft to get them to sit up and listen?

Helen

Obviously I was referring to your leaflet there - it's just not going to get you taken seriously. Pretty much the entire "theories" section should be replaced with something along the lines of "We suspect these symptoms are caused by some unknown pathogen". Unless you've got some evidence, then adding the theories, especially the more esoteric theories, is just going to alienate the doctor. You need to bring it down to his level.

What will really get things taken seriously is some statistical studies. You know how Lyme was discovered - unusual groupings of childhood arthritis. A correlation was found between symptoms and locations, which then led to the ticks and bb.

A doctor is not going to look for an unknown pathogen based on just one case. Nor are they going to do it based on "I've heard of lots of people on the internet who say they have similar symptoms". There's no hard statistics. Doctors need cold hard numbers. They also need numbers that can be verified.

- John

[John Kern]

think you should first see if everyone has the same kind of fibers (visually). Maybe there is more than one kind of fiber disease.

It has been included in other surveys John,
so we have statistics already.

Well, where are they?

- John.