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The Fiber Disease

Human Anatomy, Physiology, and Medicine. Anything human!

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Postby in_the_uk » Sun Apr 09, 2006 6:16 pm

London wrote:anything else that you think I should or should not be doing?


I'll let you know if I think of something.

oh yes... why don't you write down all of your research and ideas in the form of something that can be easily scanned through for possible solutions, rather than having to scroll through all the pages of the message board? .... you did ask.

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Postby London » Sun Apr 09, 2006 7:11 pm

Helen,

Your right, I did ask and I'm glad you wrote. I think that is a good idea

but it is not that easy to do.....when one finds new info out there, we just post it.

But i agree, a more cohesive summary should maybe be done....

With time allowing, I will try to do this.

Hope no hard feelings Helen. this disease just needs to be hammered out at times, you know?

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Postby in_the_uk » Sun Apr 09, 2006 7:37 pm

London,

I've got no hard feelings. you come up with a lot of stuff. It would be good to have it complied in an easily accessible form. They call it intellectual property in those same academic circles that we are banging on the door of.

My life is now a battle zone. It totally revolves around the strategies that I have put in place. Every time I turn around I find that I am buying something else that I think will help combat this thing.

I've got a question. I can produce fibres from my hands if I apply an irritant. Firstly it was dettol (received wisdom from Ed), now it includes vinegar, tea-tree oil and peppermint oil. I can understand my hands being exposed to some biting/ stinging thing in Ed's mill and that is why they are infected. But can you say if the rest of my body is infected?

One thing that I thought about your question to Lynne about the vinegar is the possiblity that impregnating the skin with vinegar deprives the whatever it is of a breeding ground. Today I had my usual soak in vinegar and dettol bath, then I sprayed neat vinegar on my hands and rubbed tea-tree oil and peppermint oil on and then I got some small rubber gloves and put them on and put elastic bands around my wrists. I was hoping that by doing so lots of fibres would rush out and then I would use the process whilst sitting in the GPs waiting room so that I could produce a good display when I get in. My hands went a little cold with the peppermint but now, having had the gloves off for some time and washed my hands several times I am having considerable trouble coaxing any fibres out. I wonder if that means that I have stopped the fibres in their tracks or made the top layer of skin impermeable to them. Do you, or indeed anyone, know? Does it mean that whatever it is, or just the fibres, lives in the top layer of skin?

Is this what I should be doing on Sunday afternoon?

Helen
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Postby London » Sun Apr 09, 2006 8:48 pm

I don't know the answer to the question ?"if fibers are only in the top layer of the skin.

But I would guess....NO! I think they are in our brain and everywhere else......yet i do not know!!!

If I die first I have instructions to donate my body to medical science (and i hope the fibers jump out and strangle the people>>kidding!!!)

but really I hope that they will be able to see and learn from this.

I don't get the fibers from rubbing yet i can get the tiny black particles out though. i gave up trying. I don't rub a dam thing wxcept when my feet hurt......they always, always have to have some type of cushion under them. Even walking on carpet wearing a pair of socks hurts! i have to have shoes on at all times.

No Helen, that's the answer to your question of whether it sounds like you should be doing this on a Sunday afternoon.

I must get off the computer---my 9 hours for the day are up!!!

I have to teach tomorrow, so maybe I will catch you all tomorrow night.

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Postby Skytroll » Sun Apr 09, 2006 9:04 pm

Helen,

Working on a book. Do you want to do a pamphlet?

We could put one together.

Many of us at Lymebusters are categorizing things and you can view threads.

We have surveys, we post our observations, remedies, descriptions of doctor visits.

Doctors who help etc. Have you been there?

We have many things going on there.

Go to the Morgellons board, there are many threads there, describing this disease,

Please join us and discuss findings.

We are putting info together.

http://lymebusters.proboards39.com

Many discussions and lots of research.

Save you some work.

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Postby in_the_uk » Sun Apr 09, 2006 9:27 pm

London, thanks for your reply.

Skytroll, I was thinking of an ebooklet (epamphlet) to mailshot to the frontline health services, GPs, health centres etc. There is no reason either why it should not go to researchers or clinicians as well. Basically to start raising awareness. It should make people's expereince eaiser if the GP that they are talking to has heard of fibres coming out of the skin. Of course it would make it even easier if there was an antibiotic on their drugs list that was speically for fibres.....but that might be a can of worms.

The working contents list is:
- Introduction,
- symptoms and how it effects lives,
- people's personal experiences,
- coping stragegies of those effected,
- Over view - the different perspectives and explanations,
- Response from the medical community/ government,
- changes that those effected would like to see happen,
- List of useful info/ websites/ Diagnosis Code,

"We could put one together."

Are you offering your help in a practical way??? If so brilliant, thank you. Which bit would you like to do? I think that I would be lost on the different perspectives because I don't know one end of a bacterium from the other. I would like people to send personal experiences to me and I think that I could do the symptoms and coping strategies. If we don't message before hand shall we touch base 1 week from now - 16th April.

Any one else who can help, please do.

Helen
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Postby London » Sun Apr 09, 2006 10:17 pm

Helen,

SkyGod is Good!! She will be great! She just has not had time to write her book yet b/c she is always searching for answers for us so we can get better!!! She' be the best bet !!!!
______________________________

To all:

Toxic Algea and how they detect it:

http://www.awi-bremerhaven.de/Biomeer/m ... p09-e.html
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Postby in_the_uk » Sun Apr 09, 2006 10:22 pm

London,

Great. I am sure that anyone else who wants to get involved will also be welcome.

Helen
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Postby London » Sun Apr 09, 2006 10:23 pm

and here is the EPA's take on algea.....

http://www.epa.gov/owow/monitoring/tech/appdixd.html


Later- i'm really getting off line this time :)
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Postby Linn » Sun Apr 09, 2006 10:31 pm

Hi I can not post at lymebusters due to my server :(
please don't forget about me folks. :(
I like this forum because the format is so clean
and easy to follow.

Helen. I will help with an e-book, If I can somehow, I am not too
brilliant in computer things though. but I have had a course in
micro apts.

I know I want to know what kind of tissue some have lesions in, I have noticed I only get them in "hard" tissues and not fatty areas.

Update on me...
i told you I am symptom free.. that means only with the fibers, parasites and fresh lesions, but i fear there is still something going on and it may begin again. I have learned to not hold my breath.

I forgot to add that I also do not know where the parasites
that my angelfish camr from, I can not assume they were
present when I first got them, I also purchased tropical
water plants, and I had been drinking large ammounts of tap
water.
cryptosporidium had crossed my mind too as there had been
some found previously in the drinking water.

I still think, that the "parasite that harbors the fibers and bacteria was a seperate incident and that my immune system dysfunction made me more susceptable.

I dont know, some I know were healthy before that point. I thought I was doing good despite what I had happen to me.

I dont know why I think this way but I have a strong interest
to try to find common denominators.

So it is like everything is suspect at this point.

I know there are other surveys,
but Helen, our own is a good idea.
"How far you go in life depends on your being tender with the young, compassionate with the aged, sympathetic with the striving and tolerant of the weak and strong. Because someday in life you will have been all of these".

~ George washington Carver
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Postby Skytroll » Sun Apr 09, 2006 10:58 pm

Helen,

I will work on Overview....if that is okay?

The same info is being used for another project too.

So, we remain consistent across the board.

Can do observations, of which there are some very good ones already out there on Lymebusters board.

And others here who submit to either Helen or myself.

Please join in everyone,

What ammunition we have: And we are going with the postive folks here.

Tam Tam's video
Dr. Wymores studies
Dr. Martins Theory(ACE)
Dr. Matthews Protocol
http://www.familymedgaithersburg.com/
UK guys video
Dr. Pruisner (Prions)
http://skindisease.proboards50.com/index.cgi?...
http://www.crossinglines.net
http://ww.mercuryexposure.org/forum/index.php?...
http://216.122.128.184/dc/dcboard.php
http://www.silentsuperbug.com/
http://www.carnicom.com/contrails.htm

These are best for theories etc.
If you have time, maybe can see big picture, so we have to have a lot of background, to cover all bases.

However, would not be all included in pamphlet.

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Postby in_the_uk » Sun Apr 09, 2006 11:13 pm

Lynne, that's great if you want to help with the ebooklet. Which bit would you like to do from the list above (Posted: Sun Apr 09, 2006 9:27 pm)? I have asked skytroll if she could do the different perspectives and I can have a go at the general symptoms and coping strategies. But it will help to compile a list of coping strategies if people mail their personal experiences/ coping strategies. Skytroll says that there is a growing database on lymbusters so I can look at that. What would you like to do? What do you think is your strongest area? Any overlaps can be edited together. I think that your personal experience is interesting. We are going to touch base about it on 16th April, but I will pm you now.

I really hope that your remission remains a remission. You really deserve to get a break out of it.

As for the common denominator for me, it is quite simple. It was the crate, then backwards to California.

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