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Suggestion on Sleep disorder as a symptom

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Suggestion on Sleep disorder as a symptom

Postby pian » Sun Sep 23, 2007 9:10 pm

I suggest and I’m begging you to create a site where the symptoms can be enumerated and possible diagnoses can be given. That would be a great help to both the patient and the doctor and your site will surely increase in popularity. I'm suffering from sleep deprivation eversince my accident last 6Sep03 which left me deaf and disabled (because I'm not able to balance probably because I’m deaf). I think a brain trauma resulted in having to suffer what the neurologist in the Philippines termed as myoclonus where I couldn't control my right hand. Although I could control my left hand, I couldn't control the tips of my fingers that's why I eat like a pig. I've undergone Occupational Therapy in 2 hospitals in the Philippines but I feel it's not helping me for the Therapist just tells me to relax. I asked myself, is this how you conduct Occupational Therapy to your patients where you just tell them to relax to achieve control? I feel using Psychology to cure something Physiological is inappropriate. What is happening to me is purely Physiological. That's why my Father and I researched the internet often. There's one drug that my dad researched and the doctor heeded, it's called Piracetam (generic name Nootropil). It helped a great deal to reduce the shaking, but after a while, its effects weren't as dramatic. I think my body has developed immunity which I also read holds true. I’ve taken a drug my dad researched for Myoclonus called Sodium Valproate whose side-effect is that it makes you feel drowsy, I thought this was what I needed for I'm not getting enough sleep. There are times when I couldn't sleep at all. I’ve read in the internet that lack of sleep is not age-related (which is a common misconception) but a symptom, so that what is happening to me is most likely related to my accident. I’ve taken Clonazepam (which I read was the first drug of choice for Myoclonus) for quite a while but it doesn't seem to work.
Before when I would attempt to button my blouse my nail bled and my right fingers would hurt. But I think thru constant practice and the right medication this doesn't occur anymore.
I was prescribed an anti-depressant to deal with my sleep disorder but it didn’t work. My current neurologist doubled the dosage combined with an anti-epileptic/anti-myoclonus drug and after 2 days I took a medication for Parkinson’s she also prescribed and this caused me to fall asleep earlier (really fall asleep) although I still wake up early, I still could not control my hands, and this effect lasted only 2 days.
People think my problem is not a big deal, but it’s really bothersome for me, because even if my eyes are really sore, I still couldn’t fall asleep.
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Postby Jammerz » Mon Sep 24, 2007 1:10 am

I suggest and I’m begging you to create a site where the symptoms can be enumerated and possible diagnoses can be given.

http://webmd.com already does that.

However, you should not rely on the internet for diagnosis and treatment information; there's a reason doctors exist. You should go to your doctor (or possibly pharmacist if the problem is related to medications/drugs) for information on these things.
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Postby pian » Mon Sep 24, 2007 4:16 am

Thanks very much for the info. You're the only person so far who was able to give that info. It's pretty unknown at the moment. I'll check it out.
I did say this will be a great help for both the patient and the doctor. I will still go to my neurologist. The diagnosis depends on the quality of the consultation and the background of the doctor. So if you're able to enumerate the symptoms, it would be a great help to the doctor. My neurologist prescribed a medication for Parkinson's (although I'm not suffering from it) and this caused me to fall asleep a lot earlier, although I stiill wake up early, I could not control my hands, and this effect lasted only 2 days, so I plan to go back. She didn't expect this medication to have that effect on my sleep, as she prescribed an anti-depressant I took 2 days earlier before the medication for Parkinson's, that's why I'm sure it's that medication that caused me to really fall asleep.
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Postby pian » Mon Sep 24, 2007 4:27 am

I've checked out the website and only saw search function, how would you be able to enumerate the symptoms? Sorry but I'm still on the learning curve here.
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Postby alextemplet » Mon Sep 24, 2007 4:29 am

You should also keep in mind that over the internet, you have no way of knowing if the person you're talking to has any clue what he's talking about. That's why you should always consult with a doctor in person before you make any medical decisions.
Generally speaking, the more people talk about "being saved," the further away they actually are from true salvation.

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Postby pian » Mon Sep 24, 2007 8:14 pm

What I was suggesting was to come up with a website where the patient can key in the symptoms and the website will give the possible diagnoses, and you will then show the printout to your doctor, who will make the final diagnosis with the aid of your printout and personal observation, so I am not forgoing the need for a doctor, but giving further assistance and zoom in on the diagnosis. I’m not for communicating with a doctor by the web as that will always be no match with seeing your own doctor. I know my suggestion can be done as searches are thru the internet, the reason why I came across this site.
I feel the current process can be enhanced by the power of the internet as right now, I don’t feel I’m getting the accurate diagnosis. Like I’ve said I had an accident last 06Sep03 where a brain trauma left me to suffer what the neurologist in the Philippines termed as Myoclonus, or to be more specific, Lance-Adam’s syndrome. But when I read about it, the symptoms don’t appear to match mine, so I’m not certain if that’s actually what I’m suffering. I feel if I’m diagnosed correctly (with the power of the internet), it will hit 2 birds with one stone. If I’m prescribed the right medicine, I can regain control of my hands, and get adequate sleep.
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Postby mith » Mon Sep 24, 2007 9:27 pm

http://symptoms.webmd.com/

Perhaps this? I'm not sure because the comp i'm using right now doesn't have flash 8.
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Postby pian » Tue Sep 25, 2007 1:15 am

Thanks for your help. I've checked out the website and it's quite close but complex and you can only deal with one symptom. What I had in mind was for the patient to be able to enumerate all the symptoms and the website to give possible diagnoses just like the search engine of the internet, so I know it can be done, the website will soar in popularity. Since there's already a similar website like that, perhaps they can further enhance it and make it easier and user-friendly.
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Postby mith » Tue Sep 25, 2007 2:07 am

1. We don't have that many web programmers here.
2. You're the first to suggest this since many years of operation. Not sure if there's really that much of a market.
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Postby pian » Tue Sep 25, 2007 2:29 am

mith wrote:1. We don't have that many web programmers here.
2. You're the first to suggest this since many years of operation. Not sure if there's really that much of a market.


Too bad there aren't that much web programmers but I'm pretty sure there's a market for it as I, as a patient, am looking for that type of website. It will also benefit the doctor in making the diagnosis much easier for him/her. It can zoom in on the diagnosis and lessen the frustration of the patient and the doctor and the website will surely increase in popularity as the current system can really be very frustrating.
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Postby mith » Tue Sep 25, 2007 3:05 am

Personally, I think there is no problem. People with diseases should seek medical attention from doctors. Trying to diagnoise vague symptoms usually leads to more hypochondriacs.
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Postby pian » Tue Sep 25, 2007 3:31 am

mith wrote:Personally, I think there is no problem. People with diseases should seek medical attention from doctors. Trying to diagnoise vague symptoms usually leads to more hypochondriacs.

That would be your opinion because I bet you’re not a patient. To know that the internet has that capacity could be frustrating, because you can’t really tell if you’re diagnosed correctly while you continue to suffer, in my case, sleep deprivation and inability to control my hands.
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